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Enbrel   Message List  
Reply | Forward Message #7516 of 18087 |
Re: [Spondyville]Enbrel

My son, age 15, started Enbrel on 8/12. Last night, we went bike
riding...something he had been unable to do since before his diagnosis
over 2 and a half years ago. It was an incredible moment watching him
pedal past me...
He is still not in remission by any means, but we are seeing a LOT of
progress! His hips, knees, ankles and back are all affected.
Just wanted to share our success!
Maria, mom to Rob

On Tue, 07 Sep 2004 03:46:38 -0000 spenser23as <no_reply@yahoogroups.com>
writes:
Yes, this is just another shameless con. If any wants information on
the theory of diet and AS, they can get all the info they want for
free on the SAA message board (www.StopAS.org ) as well as the
www.KickAS.org website.

Laurie Savage of the SAA clued me into this website about a month
ago, and I know they were planning on writing a strongly worded
complaint to Yahoo regarding it being a sponsored link.

Spenser23as



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[Non-text portions of this message have been removed]
Fri Sep 10, 2004 2:38 am

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snooksmama89
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Forward 		Message #7516 of 18087 |
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In a message dated 8/14/2004 10:55:13 AM Eastern Daylight Time, ... ? Wow..I didn't think so.. she was only referring to Herself and her own situation. She...
onefineseamstres@...
onefineseams...
Offline Send Email 		Aug 15, 2004
5:17 am

My son, age 15, started Enbrel on 8/12. Last night, we went bike riding...something he had been unable to do since before his diagnosis over 2 and a half years...
snooksmama@...
snooksmama89
Offline Send Email 		Sep 10, 2004
2:16 am

Maria, What wonderful news! I am so happy for you and your son. It must be great for him to be able to do what other teens take for granted. Continued good...
C. Moore
tiregoddess2
Offline Send Email 		Sep 10, 2004
12:45 pm

Maria, Thank you for responding and I'm very happy for Rob. No one should lose those years. Jr. Prom here I come. I felt that same effect when I started Enbrel...
sliced14
Offline Send Email 		Sep 11, 2004
3:12 am

Thanks Brad, we appreciate the prayers. Rob isn't feeling as good tonight, he didn't want to ride bikes again. Maybe tomorrow. We'll see what happens! Good...
snooksmama@...
snooksmama89
Offline Send Email 		Sep 11, 2004
4:36 am

For the people on this list that have autoimmune disorders were you in the service and exposed to Agent Orange or may be in gardening or worked with chemicals...
aday4me@...
ace1028
Offline Send Email 		Jan 9, 2005
10:39 pm

AS is the primary disease in the group of diseases known as Spondyloarthropathy. These diseases, include AS, Crohn's, Reiter's Syndrome (aka Reactive...
spenser23as
Offline 		Jan 10, 2005
3:13 am

Also, Psoriatic Spondylitis ......
spenser23as
Offline 		Jan 10, 2005
3:15 am

I did real good taking my first shot of Enbrel. I iced the spot really good then I got injected. Hardly any pain. Jeffrey...
Jeffrey Kumjian
jeffrey_kumjian
Online Now Send Email 		Mar 5, 2005
6:03 am

Good job, Jeffrey! ... I did real good taking my first shot of Enbrel. I iced the spot really good then I got injected. Hardly any pain. Jeffrey Yahoo! Groups...
tchyder@...
tymtraveler3150
Offline Send Email 		Mar 5, 2005
5:50 pm

As I wait for the shipment of Enbrel to come in, I am starting to wonder about things. After a beautiful March day, a group of our neighbors got together for a...
C. Conwell
cmconwell
Offline Send Email 		Mar 13, 2005
2:07 pm

Hi Craig, Soley in the interest of furthering human knowledge, and at great personal risk to myself, I can tell you that I have conducted many personal...
serge_disera
Offline Send Email 		Mar 13, 2005
6:44 pm

... time! ... Sounds like a plan. Perhaps we can get the mayor to let us open a pub. We can serve all types of beverages, but the pretzels will not be the...
C. Conwell
cmconwell
Offline Send Email 		Mar 14, 2005
2:14 am

I hate to seem like the leader of the local temperance movement, but I believe that if a drug warning tells you not to drink alcohol when taking it, that is...
spenser23as
Offline 		Mar 14, 2005
4:29 am

Craig, My husband Craig was in the same clinical trials as Serge... he has maybe 4-6 drinks in a weekend and feels just peachy. But like Spencer has said, when...
Jenn
jennbwalker1979
Offline Send Email 		Mar 14, 2005
7:41 am

I am also taking enbrel and have been for a little over a year, I dont drink often but if I am going to dinner with friends or just want a drunk after a long...
Patty
lea0068
Offline Send Email 		Mar 14, 2005
11:55 am

Hm, I've looked over the "product information" for Enbrel and I don't see anything about not drinking alcohol. If anyone has info on that could you send a...
Kathryn
kathrynljames
Offline Send Email 		Mar 14, 2005
7:38 pm

... Hi Kathryn, It depends on what other meds you are taking. I'm on Enbrel and also take Methotrexate, which is commonly prescribed with it. I think I'm ...
Gigi
gigibda1
Offline Send Email 		Mar 14, 2005
9:13 pm

you will find in methrotrexate not to drink alcohol, but enbrel does not have that listed. ... Hi Kathryn, It depends on what other meds you are taking. I'm on...
Amanda Campbell
amanda_campb...
Offline Send Email 		Mar 15, 2005
8:08 pm

Has any one had a eye Iratis and taking Enbrel? Jeffrey...
Jeffrey Kumjian
jeffrey_kumjian
Online Now Send Email 		Mar 20, 2005
7:23 pm

I have had Iritis whilst on Enbrel. Only once in three years though and that episode was after I spent a week near the equator - the strong sun seems to set it...
Michael Kobliska
michaelkobliska
Offline Send Email 		Mar 20, 2005
8:45 pm

Hi - Thought I'd let you know that my Enbrel treatment is going well so far !! I did manage to spill the first dose by not getting the vial adapter on all the...
Joy Last
joy_last
Online Now Send Email 		May 14, 2006
1:28 am

Joy, glad to hear the Enbrel is working for you! Keep us informed on your progress. Spenser23as...
spenser23as
Offline 		May 14, 2006
4:12 am

... If you call the number in the material for the enbrel you can get that dosage replaced. I did the same thing with that little adapter and they sent...
spedmus
Offline 		May 14, 2006
12:22 pm

Hi everyone, I began Enbrel treatments just a few weeks ago, and have run into a problem, and was wondering if anyone else experienced this. I refridgerated my...
mauricemarcott
Offline Send Email 		Jan 4, 2007
2:36 pm

Frozen Enbrel ... hmmm ... An Enbrel-sicle. Spondylitis relief on a stick. Now with chocolate coating. :-) Seriously, I have never heard of that. I guess...
spenser23as
Offline 		Jan 4, 2007
2:54 pm

I remember my first Enbrel injection. The medicine was still very cold and instead of reacting at the injection site my face went completely red. It took a...
gigiwolf76
Offline 		Jan 5, 2007
6:52 am

You will need to let it warm up a bit, 15 to 30 minutes. It will be fine after that. Craig ... From: "mauricemarcott" <moe11662@...> To:...
Craig Conwell (mobile)
cmconwell
Offline Send Email 		Jan 4, 2007
2:51 pm

/here are a couple of Enbrel tips... 1. turn down your refrigerator a bit 2. do not store your enbrel in the back of the refrigerator; that's the coldest part...
Tyler Hyder
tymtraveler3150
Offline Send Email 		Jan 4, 2007
3:34 pm

Dear Group members, I have been a member this group for several years, but I haven't posted in over a year. Last week my Rhumy put me on Enbrel, and I haven't ...
Jayne Bailey Holland
caylargo
Offline Send Email 		Sep 24, 2008
4:37 pm
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