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Ebrel Reaction??   Message List  
Reply | Forward Message #14186 of 18089 |
Re: [Spondyville] Re: Ebrel Reaction??

Well I've had what they suspect to be Crohns disease since I was only nine years
old. All of the doctors I have been to all of these years have told me its just
IBS and stop worrying about it. They never sent me to a specialist or sent me
for any tests. All of these years I knew it was something more but had just
accepted this was the way it was going to be for me. It's made my life very
difficult, work, school everything has been affected by my bowel problems. Now
that the rheumatologist diagnosed me with AS he tested me right away for Crohns
and it came back positive. I have a colonoscopy scheduled for next Wednesday.
Then the rhuematologist is putting me on Humira, he said it treats both
diseases. He also said I shouldn't take Ibuprofen of any kind if I have Crohns
too because it makes Crohns worse. The Gastroentrologist did tell me yesterday
that alot of people will have both diseases if they have one or the other or
will eventually develope them both.

Olympia Chagouris <ochagouris@...> wrote: Hello All:

I've been meaning to post for weeks now...my schedule, as usual, is just awful
and email is a luxury these days!! lol Anyway, I have a question...Who of you
has bowel involvement with AS?? I'm having a terrible time over the past couple
of months...all very new symptoms, and my rheumy wants me to have another
colonoscopy w/ biopsies done...she suspects IBD/Crohns etc...I ahve this once to
twice weekly collicky, crampy, miserable pain associated with it and the looses
stools are hit or miss...they may or may not occur with the pain. Anyway, It's
just awful. Does anyone have any thought on this issue with regard to possible
Inflammatory Bowel and AS?

Pia

spenser23as <no_reply@yahoogroups.com> wrote:
I've never used Enbrel, so I can't give you any personal experiences,
but I'd say it's worth making a call to your doctor about it. I'm sure
some of the Enbrel users here will respond with their thoughts.

Spenser23as

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Tue Dec 4, 2007 2:25 pm

mandymay262000
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Message #14186 of 18089 |
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Hi Everyone I hope your weekend was enjoyable. I am on the Ebrel sure-click, which I take on thursday nights. This thursday, it was extremely painful. My dad...
Kelly
munchkn430
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Dec 3, 2007
2:24 pm

I've never used Enbrel, so I can't give you any personal experiences, but I'd say it's worth making a call to your doctor about it. I'm sure some of the Enbrel...
spenser23as
Offline
Dec 3, 2007
6:31 pm

Hello All: I've been meaning to post for weeks now...my schedule, as usual, is just awful and email is a luxury these days!! lol Anyway, I have a...
Olympia Chagouris
ochagouris
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Dec 4, 2007
1:45 am

Well I've had what they suspect to be Crohns disease since I was only nine years old. All of the doctors I have been to all of these years have told me its...
mandy duck
mandymay262000
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Dec 4, 2007
2:25 pm

I guess my daily max dose of Indocin doesn't help then...LOL Pia mandy duck <mandymay262000@...> wrote: Well I've had what they suspect to be Crohns...
Olympia Chagouris
ochagouris
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Dec 5, 2007
2:33 am

Kelly, I've been taking Enbrel for a year now and have never had the type of reaction you indicate. There are times when it hurts or burns more when I inject,...
kddid323
Offline
Dec 3, 2007
8:08 pm

or you can call 1800 4 enbrel and nurses will answer questions ... From: kddid323 <no_reply@yahoogroups.com> Date: Monday, December 3, 2007 15:08 Subject:...
snooksmama@...
snooksmama89
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Dec 3, 2007
8:50 pm

Yes I agree I would call 1-800 4enbrel as they will be able to answer your questions quick. I started out on Enbrel (6 months) and now the Humaria is winding...
Jim Stevely
jim_stevely
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Dec 4, 2007
3:01 am

I had a doctor appt today, so I asked her about it and she said I propbably hit or irritated a nerve. Just for future reference in case it happens to you....
Kelly
munchkn430
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Dec 4, 2007
10:54 pm

Hi Pia~ Yup, sounds familiar. I know colonoscopies aren't highly rated on the fun-o-meter, but it sounds as though you might need to have one done. Actually,...
tchyder@...
tymtraveler3150
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Dec 4, 2007
2:07 am

Tyler's right on the money, as always. It's all inter-connected. A doctor once described this to me by saying; think of all these related diseases as a bunch...
spenser23as
Offline
Dec 4, 2007
3:54 am

The reason for this is they are all auto immune diseases. I'll bet most of us started out with allergies, which are so common that we didn't think much of it....
Linda Estes
lyn12255
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Dec 4, 2007
4:12 am

A smorgasbord! Where's the Swedish meatballs? heehee Ty [Non-text portions of this message have been removed]...
tchyder@...
tymtraveler3150
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Dec 5, 2007
3:23 am

Thanks, Tyler...This will be coclonoscopy # 2 for me and I hated it the 1st time!! Oh well...gotta do it I guess. The problem is that the first one was...
Olympia Chagouris
ochagouris
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Dec 5, 2007
2:36 am

Hey Pia, I have had IBS for years and never connected it with the AS. BUT.......now that I am treating for AS my IBS is practically gone. I use to have 3 or 4...
Carla Dreyer
eyes4u863
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Dec 5, 2007
1:51 am

Hi JS~ Remicade is delivered via infusion every 6-8 weeks for AS. The cancer you asked about is lymphoma. The risk of acquiring lymphoma is about the same...
tchyder@...
tymtraveler3150
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Dec 5, 2007
2:47 am

Thanks Tyler Sure does help! JS ... From: Spondyville@yahoogroups.com [mailto:Spondyville@yahoogroups.com]On Behalf Of tchyder@... Sent: Tuesday,...
Jim Stevely
jim_stevely
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Dec 5, 2007
2:30 pm

Blow out belly!! LOLOLOLOL. Exactly. The symptoms you mentioned are exactly like mine. When it hits, it's miserable; when it's over, whew--much better!! :-) ...
tchyder@...
tymtraveler3150
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Dec 5, 2007
3:17 am

Pia, just go in there chanting "versed, versed, versed..." :-) (For those unfamiliar with this med, it is pronounced VER-SAID) Good luck. Tyler [Non-text...
tchyder@...
tymtraveler3150
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Dec 5, 2007
3:21 am

Blow Out Belly?! I suppose when company is over, you shorten it to BOB. As in, "I'm going to the John for BOB." Spenser23as...
spenser23as
Offline
Dec 5, 2007
5:27 am

That sounds like a good plan, Tyler...hehehe!! Hey, one more thing...do you guys know anything about the IL-23R gene?? I just read about it in Spondylitis...
Olympia Chagouris
ochagouris
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Dec 6, 2007
1:06 am

you like that huh!!! isnt funny how e have pet names for our worst things..makes them seem less evil...lol ... From: "tchyder@..."...
Carla Dreyer
eyes4u863
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Dec 5, 2007
4:35 am

HAR HAR HAR! Very witty as usual, Michael. Thanks for the laugh. Ty [Non-text portions of this message have been removed]...
tchyder@...
tymtraveler3150
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Dec 5, 2007
7:25 am

Definitely...and we could use a lot less evil and many, many more laughs!! Thanks for providing the comedic "relief". :-) Tyler [Non-text portions of this...
tchyder@...
tymtraveler3150
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Dec 5, 2007
7:29 am
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