Wheelchair Nation ~ Because no one should cope with a spinal cord
injury alone. ~ www.wheelchairnation.com

Have you used an eye tracker or head mouse device to help you
communicate and interact with others? Did it work well for you? What
would make it better?

I'm a student currently working on a project to develop a new adaptive
eye-tracking technology. I would appreciate any thoughts from current
users of these kinds of assistive devices that can help us tailor the
new technology to better meet the needs of people who have lost their
ability to move and speak. Thank you!

A group for support and understanding




The group Intimacy is looking for members that are open
about talking about intimacy with out being to graphic
and foul language....

I am also looking for new members that just don't set
on the sideling and read what others have to say,We like
you to be active on the board and post messages that deal
with this subject..

This group been around for mamy years and very active
message board...There over 1,700 members..

This is the only group I know of in which members have
information on there profile..at least 90 percent or
higher..If you check other group you will find most members
have nothing on there profile..

What I ask of its members to have information on there
profile and post messages that has substance,Please no
one liners or say things like I agree with you,If you
agree then explain why you agree...

This is mainly a support group for those with physical
disability and different in body style..With me I was
born with spina bifida and with this I have some deformity
of spine....I am not ashame of my body and you should't
be either and not let people staring at you keep you from
going out and enjoying life to its fullest,Just remember
your a unique person and nobody can make you feel like
you don't deserve love and intimacy.If you go out in life
and think people are better then you,Then you will never
make it in this world.

Here is the addy to the group,I hope you join and check it
out..If your a positive person then this group is for you..
We are now going into our fifth year....

http://groups.yahoo.com/group/INTIMACYFORTHEDISABLED/

Sounds like a plan. Let me know what your lawer says.
--- candle850-keeper@... wrote:

> Tom, I just emailed my lawyer and explained what you
> wrote about being unethical and possibly illegal. I
> also shared the input of other posters. I explained
> that I didn't want to be billed for her services if
> it is unethical and I did not want to work with her
> again as I do not trust her to look out for my best
> interest. Thanks for your information.
>
>   You know, I wonder if I can drum up enough
> business with sewing or something like that to help
> with meds. Then I wouldn't be at the mercy of other
> people's opinions of my ability. I have to say, it
> took me about 6 months to do a quilt, so it wouldn't
> be profitable as in getting rich, but maybe I could
> do smaller projects and get a little income coming
> in.
>
> Thomas Dreyer <maytagtom@...> wrote:
>   Hi - Just saw your post. A few thoughts:
>
> First - I recently received a masters degree in
> Vocational Rehabilitation Counseling. You should
> report your counselor to the agency she works for
> and
> whichever state agency oversees counselor licensing.
> What this counselor did was unethical and possibly
> illegal.
>
>
> --
>
>   Candle
>
>   May there always be a light to guide you.
>


Tom Dreyer

__________________________________________________
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Hi - Just saw your post. A few thoughts:

First - I recently received a masters degree in
Vocational Rehabilitation Counseling. You should
report your counselor to the agency she works for and
whichever state agency oversees counselor licensing.
What this counselor did was unethical and possibly
illegal.

Candle

Hi - Just saw your post. A few thoughts:

First - I recently received a masters degree in
Vocational Rehabilitation Counseling. You should
report your counselor to the agency she works for and
whichever state agency oversees counselor licensing.
What this counselor did was unethical and possibly
illegal.

Second - I am a C4/5 incomplete and use a power chair
to get wherever. Our local bus system (the only public
transportation available) has, as per ADA
requirements, made all buses wheel chair accessible.
There is also a curb-to-curb service available. Does
your bus service offer these services?

Third - If the above are viable transportation
alternatives you can then begin (with a reputable
counselor) to evaluate necessary accommodations to
facilitate working.

Fourth - as to needing to move or lie down after
sitting for 45 mins.: How many of us , before we were
injured, sat for more than 45 min. to an hour without
needing to move? How many "normal" people do you know
that you know do that?

Lastly - I was retail manager for 17 years before I
became a teacher. I can tell you, from experience,
that people are hired for what they can do, not for
what they cannot do. Both counselors and employers
occasionally need to be reminded of this. The question
you should be asking, after you decide what you want
to do, is, "How can I perform this job with a little
accommodation?" A good web site to visit is the Job
Accommodation Network. This site offers explanations
of laws and regulations as well as specific
accommodation recommendations. (Think that's enough
"M's"?)

I hope this helps. Remember - there is nothing for you
to be embarassed about (that's something I refuse to
do). You have done much to be proud of. You just have
to "Keep on keepin' on."

Candle

I agree with all that wrote you, no one knows what we go through unless they ride a day in our place. I didn't say walk cause have been in wheelchair since 1974, and has not all been easy, if not for my family, hubby, kids and grandkids , this life as we call it would have been unbearable. Keep your head up and know you can do WHAT you can do and not what someone else thinks you can do. Funny how these v.c. people think that we can just do whatever, sure they have title to so say help us, but where do feelings come in, after all we are PEOPLE TOO. You take care and DO NOT push yourself, do what's best for YOU, and all will be ok. We must all be there to help each other, so write when you want.
TAKE CARE, Theresa in Louisiana

stacey padgett <highwayman731@...> wrote:

Were the letters M.D. in front of your vocational counselor title?  It seems she has infinite knowledge on spinal cord injury.  Tell her instead of walking two miles, that you will stand up just long enough for her to kiss your ass!  We go through way to much bullshit on a day to day basis, even if it's a good day so don't let a v.c. bring you down.  hardly anyone knows what kind of stuff people like us go through.

 

                                                      Highwayman731

candle850-keeper@yahoo.com wrote:

I sent this earlier, but didn't see it on the list. Sorry if this shows up twice.

Can anyone who had learned to walk again walk 2 miles?

 

Yesterday, I had a vocational counselor do an assessment on me. I was excited and hopeful until the end. She said that I should talk to a doctor about starting a walking program because a person like me should be able to do 2 miles. I was devastated and started crying right in front of her. I was so embarrassed. My first thought was that she just doesn't understand. She explained that if I could walk, then I could get to the bus stop and ride that back and forth to a job. It was as if my last 4 years of working hard at recovery and maintaining some range of motion and strength was just a lazy vacation that I need to stop.

 

We almost lost the house because I could not work. I have missed so many of my nieces and nephew's events because I cannot move and may be having a bad pain day. I cannot go with  my husband to his important functions at times because of my mobility issues. Yet, I guess that I am supposed to be able to walk 2 miles and get in and out to a job. I was so hoping that she would have ideas of what I could do at home to earn money.

 

(My emotions are all over the place even as I right this. I am having anger and depression and feel like my emotions are all over the place so please let me apologize now if this post sounds horrible and awful.)

 

Last night, I started wondering what was wrong with me that I cannot walk 2 miles. I have trouble with walking to the garage and my husband will pull the car up on to the lawn to get as close to the fence as he can so I don't have to walk as far.

 

I am an L3-L4 incomplete that spent 5 weeks in the hospital learning to walk and worked my way up to a walker. I went home with a wheelchair as I could not maintain walking for long periods of time. I also had AFOs (Ankle Foot Orthotics-braces) on both legs but only need them on one foot now. I had 6 months of outpatient PT and worked up to a cane. I think that I was able to walk for 10 minutes at one time at PT on their treadmill, but that was very slow so I don't know how far it was.

 

I am so down right now and feel like people must think I am the biggest faker of all time. I was proud that I worked up to sitting up and doing email. I can sit for about 45 minutes at a time and then I need to move or lay down for about 15 or 20. I try to maintain the times so I can tell if I am having a bad day or easy day. Even on my bad days, I try not to get stuck in bed. I try not to jump first to my pain pills because I am scared to death of building up a tolerance and having nothing to relieve the pain. I am so bummed out that I no longer want to even consider working because if a vocational counselor doesn't understand my health problems, there is no way that an employer is going to understand when I can't function and I just don't want to deal with that.

__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Candle

Were the letters M.D. in front of your vocational counselor title?  It seems she has infinite knowledge on spinal cord injury.  Tell her instead of walking two miles, that you will stand up just long enough for her to kiss your ass!  We go through way to much bullshit on a day to day basis, even if it's a good day so don't let a v.c. bring you down.  hardly anyone knows what kind of stuff people like us go through.

 

                                                      Highwayman731

Candle

Hi - Just saw your post. A few thoughts:

First - I recently received a masters degree in
Vocational Rehabilitation Counseling. You should
report your counselor to the agency she works for and
whichever state agency oversees counselor licensing.
What this counselor did was unethical and possibly
illegal.

Second - I am a C4/5 incomplete and use a power chair
to get wherever. Our local bus system (the only public
transportation available) has, as per ADA
requirements, made all buses wheel chair accessible.
There is also a curb-to-curb service available. Does
your bus service offer these services?

Third - If the above are viable transportation
alternatives you can then begin (with a reputable
counselor) to evaluate necessary accommodations to
facilitate working.

Fourth - as to needing to move or lie down after
sitting for 45 mins.: How many of us , before we were
injured, sat for more than 45 min. to an hour without
needing to move? How many "normal" people do you know
that you know do that?

Lastly - I was retail manager for 17 years before I
became a teacher. I can tell you, from experience,
that people are hired for what they can do, not for
what they cannot do. Both counselors and employers
occasionally need to be reminded of this. The question
you should be asking, after you decide what you want
to do, is, "How can I perform this job with a little
accommodation?" A good web site to visit is the Job
Accommodation Network. This site offers explanations
of laws and regulations as well as specific
accommodation recommendations. (Think that's enough
"M's"?)

I hope this helps. Remember - there is nothing for you
to be embarassed about (that's something I refuse to
do). You have done much to be proud of. You just have
to "Keep on keepin' on."
--- candle850-keeper@... wrote:

> I sent this earlier, but didn't see it on the list.
> Sorry if this shows up twice.
>
>     Can anyone who had learned to walk again walk 2
> miles?
>
>   Yesterday, I had a vocational counselor do an
> assessment on me. I was excited and hopeful until
> the end. She said that I should talk to a doctor
> about starting a walking program because a person
> like me should be able to do 2 miles. I was
> devastated and started crying right in front of her.
> I was so embarrassed. My first thought was that she
> just doesn't understand. She explained that if I
> could walk, then I could get to the bus stop and
> ride that back and forth to a job. It was as if my
> last 4 years of working hard at recovery and
> maintaining some range of motion and strength was
> just a lazy vacation that I need to stop.
>
>   We almost lost the house because I could not work.
> I have missed so many of my nieces and nephew's
> events because I cannot move and may be having a bad
> pain day. I cannot go with  my husband to his
> important functions at times because of my mobility
> issues. Yet, I guess that I am supposed to be able
> to walk 2 miles and get in and out to a job. I was
> so hoping that she would have ideas of what I could
> do at home to earn money.
>
>   (My emotions are all over the place even as I
> right this. I am having anger and depression and
> feel like my emotions are all over the place so
> please let me apologize now if this post sounds
> horrible and awful.)
>
>   Last night, I started wondering what was wrong
> with me that I cannot walk 2 miles. I have trouble
> with walking to the garage and my husband will pull
> the car up on to the lawn to get as close to the
> fence as he can so I don't have to walk as far.
>
>   I am an L3-L4 incomplete that spent 5 weeks in the
> hospital learning to walk and worked my way up to a
> walker. I went home with a wheelchair as I could not
> maintain walking for long periods of time. I also
> had AFOs (Ankle Foot Orthotics-braces) on both legs
> but only need them on one foot now. I had 6 months
> of outpatient PT and worked up to a cane. I think
> that I was able to walk for 10 minutes at one time
> at PT on their treadmill, but that was very slow so
> I don't know how far it was.
>
>   I am so down right now and feel like people must
> think I am the biggest faker of all time. I was
> proud that I worked up to sitting up and doing
> email. I can sit for about 45 minutes at a time and
> then I need to move or lay down for about 15 or 20.
> I try to maintain the times so I can tell if I am
> having a bad day or easy day. Even on my bad days, I
> try not to get stuck in bed. I try not to jump first
> to my pain pills because I am scared to death of
> building up a tolerance and having nothing to
> relieve the pain. I am so bummed out that I no
> longer want to even consider working because if a
> vocational counselor doesn't understand my health
> problems, there is no way that an employer is going
> to understand when I can't function and I just don't
> want to deal with that.
>
>


Tom Dreyer

__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Were the letters M.D. in front of your vocational counselor title?  It seems she has infinite knowledge on spinal cord injury.  Tell her instead of walking two miles, that you will stand up just long enough for her to kiss your ass!  We go through way to much bullshit on a day to day basis, even if it's a good day so don't let a v.c. bring you down.  hardly anyone knows what kind of stuff people like us go through.

 

                                                      Highwayman731

candle850-keeper@yahoo.com wrote:

I sent this earlier, but didn't see it on the list. Sorry if this shows up twice.

Can anyone who had learned to walk again walk 2 miles?

 

Yesterday, I had a vocational counselor do an assessment on me. I was excited and hopeful until the end. She said that I should talk to a doctor about starting a walking program because a person like me should be able to do 2 miles. I was devastated and started crying right in front of her. I was so embarrassed. My first thought was that she just doesn't understand. She explained that if I could walk, then I could get to the bus stop and ride that back and forth to a job. It was as if my last 4 years of working hard at recovery and maintaining some range of motion and strength was just a lazy vacation that I need to stop.

 

We almost lost the house because I could not work. I have missed so many of my nieces and nephew's events because I cannot move and may be having a bad pain day. I cannot go with  my husband to his important functions at times because of my mobility issues. Yet, I guess that I am supposed to be able to walk 2 miles and get in and out to a job. I was so hoping that she would have ideas of what I could do at home to earn money.

 

(My emotions are all over the place even as I right this. I am having anger and depression and feel like my emotions are all over the place so please let me apologize now if this post sounds horrible and awful.)

 

Last night, I started wondering what was wrong with me that I cannot walk 2 miles. I have trouble with walking to the garage and my husband will pull the car up on to the lawn to get as close to the fence as he can so I don't have to walk as far.

 

I am an L3-L4 incomplete that spent 5 weeks in the hospital learning to walk and worked my way up to a walker. I went home with a wheelchair as I could not maintain walking for long periods of time. I also had AFOs (Ankle Foot Orthotics-braces) on both legs but only need them on one foot now. I had 6 months of outpatient PT and worked up to a cane. I think that I was able to walk for 10 minutes at one time at PT on their treadmill, but that was very slow so I don't know how far it was.

 

I am so down right now and feel like people must think I am the biggest faker of all time. I was proud that I worked up to sitting up and doing email. I can sit for about 45 minutes at a time and then I need to move or lay down for about 15 or 20. I try to maintain the times so I can tell if I am having a bad day or easy day. Even on my bad days, I try not to get stuck in bed. I try not to jump first to my pain pills because I am scared to death of building up a tolerance and having nothing to relieve the pain. I am so bummed out that I no longer want to even consider working because if a vocational counselor doesn't understand my health problems, there is no way that an employer is going to understand when I can't function and I just don't want to deal with that.

__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

I sent this earlier, but didn't see it on the list. Sorry if this shows up twice.

Can anyone who had learned to walk again walk 2 miles?

 

Yesterday, I had a vocational counselor do an assessment on me. I was excited and hopeful until the end. She said that I should talk to a doctor about starting a walking program because a person like me should be able to do 2 miles. I was devastated and started crying right in front of her. I was so embarrassed. My first thought was that she just doesn't understand. She explained that if I could walk, then I could get to the bus stop and ride that back and forth to a job. It was as if my last 4 years of working hard at recovery and maintaining some range of motion and strength was just a lazy vacation that I need to stop.

 

We almost lost the house because I could not work. I have missed so many of my nieces and nephew's events because I cannot move and may be having a bad pain day. I cannot go with  my husband to his important functions at times because of my mobility issues. Yet, I guess that I am supposed to be able to walk 2 miles and get in and out to a job. I was so hoping that she would have ideas of what I could do at home to earn money.

 

(My emotions are all over the place even as I right this. I am having anger and depression and feel like my emotions are all over the place so please let me apologize now if this post sounds horrible and awful.)

 

Last night, I started wondering what was wrong with me that I cannot walk 2 miles. I have trouble with walking to the garage and my husband will pull the car up on to the lawn to get as close to the fence as he can so I don't have to walk as far.

 

I am an L3-L4 incomplete that spent 5 weeks in the hospital learning to walk and worked my way up to a walker. I went home with a wheelchair as I could not maintain walking for long periods of time. I also had AFOs (Ankle Foot Orthotics-braces) on both legs but only need them on one foot now. I had 6 months of outpatient PT and worked up to a cane. I think that I was able to walk for 10 minutes at one time at PT on their treadmill, but that was very slow so I don't know how far it was.

 

I am so down right now and feel like people must think I am the biggest faker of all time. I was proud that I worked up to sitting up and doing email. I can sit for about 45 minutes at a time and then I need to move or lay down for about 15 or 20. I try to maintain the times so I can tell if I am having a bad day or easy day. Even on my bad days, I try not to get stuck in bed. I try not to jump first to my pain pills because I am scared to death of building up a tolerance and having nothing to relieve the pain. I am so bummed out that I no longer want to even consider working because if a vocational counselor doesn't understand my health problems, there is no way that an employer is going to understand when I can't function and I just don't want to deal with that.

__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Everyone is different, I'm a c5-6 incomplete going on 20 years.  The dr.s don't know everything, if they did I'd be a turnip.  So smile and remember things could always be much worse.

Candle

Can anyone who had learned to walk again walk 2 miles?

 

Yesterday, I had a vocational counselor do an assessment on me. I was excited and hopeful until the end. She said that I should talk to a doctor about starting a walking program because a person like me should be able to do 2 miles. I was devastated and started crying right in front of her. I was so embarrassed. My first thought was that she just doesn't understand. She explained that if I could walk, then I could get to the bus stop and ride that back and forth to a job. It was as if my last 4 years of working hard at recovery and maintaining some range of motion and strength was just a lazy vacation that I need to stop.

 

We almost lost the house because I could not work. I have missed so many of my nieces and nephew's events because I cannot move and may be having a bad pain day. I cannot go with  my husband to his important functions at times because of my mobility issues. Yet, I guess that I am supposed to be able to walk 2 miles and get in and out to a job. I was so hoping that she would have ideas of what I could do at home to earn money.

 

(My emotions are all over the place even as I right this. I am having anger and depression and feel like my emotions are all over the place so please let me apologize now if this post sounds horrible and awful.)

 

Last night, I started wondering what was wrong with me that I cannot walk 2 miles. I have trouble with walking to the garage and my husband will pull the car up on to the lawn to get as close to the fence as he can so I don't have to walk as far.

 

I am an L3-L4 incomplete that spent 5 weeks in the hospital learning to walk and worked my way up to a walker. I went home with a wheelchair as I could not maintain walking for long periods of time. I also had AFOs (Ankle Foot Orthotics-braces) on both legs but only need them on one foot now. I had 6 months of outpatient PT and worked up to a cane. I think that I was able to walk for 10 minutes at one time at PT on their treadmill, but that was very slow so I don't know how far it was.

 

I am so down right now and feel like people must think I am the biggest faker of all time. I was proud that I worked up to sitting up and doing email. I can sit for about 45 minutes at a time and then I need to move or lay down for about 15 or 20. I try to maintain the times so I can tell if I am having a bad day or easy day. Even on my bad days, I try not to get stuck in bed. I try not to jump first to my pain pills because I am scared to death of building up a tolerance and having nothing to relieve the pain. I am so bummed out that I no longer want to even consider working because if a vocational counselor doesn't understand my health problems, there is no way that an employer is going to understand when I can't function and I just don't want to deal with that.

Can anyone who had learned to walk again walk 2 miles?

 

Yesterday, I had a vocational counselor do an assessment on me. I was excited and hopeful until the end. She said that I should talk to a doctor about starting a walking program because a person like me should be able to do 2 miles. I was devastated and started crying right in front of her. I was so embarrassed. My first thought was that she just doesn't understand. She explained that if I could walk, then I could get to the bus stop and ride that back and forth to a job. It was as if my last 4 years of working hard at recovery and maintaining some range of motion and strength was just a lazy vacation that I need to stop.

 

We almost lost the house because I could not work. I have missed so many of my nieces and nephew's events because I cannot move and may be having a bad pain day. I cannot go with  my husband to his important functions at times because of my mobility issues. Yet, I guess that I am supposed to be able to walk 2 miles and get in and out to a job. I was so hoping that she would have ideas of what I could do at home to earn money.

 

(My emotions are all over the place even as I right this. I am having anger and depression and feel like my emotions are all over the place so please let me apologize now if this post sounds horrible and awful.)

 

Last night, I started wondering what was wrong with me that I cannot walk 2 miles. I have trouble with walking to the garage and my husband will pull the car up on to the lawn to get as close to the fence as he can so I don't have to walk as far.

 

I am an L3-L4 incomplete that spent 5 weeks in the hospital learning to walk and worked my way up to a walker. I went home with a wheelchair as I could not maintain walking for long periods of time. I also had AFOs (Ankle Foot Orthotics-braces) on both legs but only need them on one foot now. I had 6 months of outpatient PT and worked up to a cane. I think that I was able to walk for 10 minutes at one time at PT on their treadmill, but that was very slow so I don't know how far it was.

 

I am so down right now and feel like people must think I am the biggest faker of all time. I was proud that I worked up to sitting up and doing email. I can sit for about 45 minutes at a time and then I need to move or lay down for about 15 or 20. I try to maintain the times so I can tell if I am having a bad day or easy day. Even on my bad days, I try not to get stuck in bed. I try not to jump first to my pain pills because I am scared to death of building up a tolerance and having nothing to relieve the pain. I am so bummed out that I no longer want to even consider working because if a vocational counselor doesn't understand my health problems, there is no way that an employer is going to understand when I can't function and I just don't want to deal with that.

this is a nice crib here.....

http://www.disabledparents.net/crib.html

this site his made for disabled parents, has a lot of
info and resources

http://www.disabledparents.net

Candle

I have a friend who was recently paralyzed (from the waist down). she
was pregnant at the time of injury, and the baby is due is just a few
weeks! I am searching for some sort of modified crib, so that she may
be able to take baby in and out of crib. Anyone have any suggestions
as to where to look?

Candle

here is a crib you can actually buy

http://www.babeetenda.com/crib.htm


--- Jerry ***** <quickie_xtr@...> wrote:

>
> this is a nice crib here.....
>
> http://www.disabledparents.net/crib.html
>
> this site his made for disabled parents, has a lot
> of
> info and resources
>
> http://www.disabledparents.net
>
> --- lheitzman <lheitzman@...> wrote:
>
> > I have a friend who was recently paralyzed (from
> the
> > waist down).  she
> > was pregnant at the time of injury, and the baby
> is
> > due is just a few
> > weeks!  I am searching for some sort of modified
> > crib, so that she may
> > be able to take baby in and out of crib.  Anyone
> > have any suggestions
> > as to where to look?
> >
> >
>
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam
> protection around
> http://mail.yahoo.com
>


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

this is a nice crib here.....

http://www.disabledparents.net/crib.html

this site his made for disabled parents, has a lot of
info and resources

http://www.disabledparents.net

--- lheitzman <lheitzman@...> wrote:

> I have a friend who was recently paralyzed (from the
> waist down).  she
> was pregnant at the time of injury, and the baby is
> due is just a few
> weeks!  I am searching for some sort of modified
> crib, so that she may
> be able to take baby in and out of crib.  Anyone
> have any suggestions
> as to where to look?
>
>


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

I have a friend who was recently paralyzed (from the waist down).  she
was pregnant at the time of injury, and the baby is due is just a few
weeks!  I am searching for some sort of modified crib, so that she may
be able to take baby in and out of crib.  Anyone have any suggestions
as to where to look?

i am trying to find my sister, margie aquino.  i have not heard from her in over
a year.  she
may be the margie aquino who is posting on this web site.

she would be about 55 years old.  her middle name is Linda.  and she was living
in the key
west florida area.

if this is the same person. please let her know that her sister has a computer
and an email
which is bostonphil7@...

thank you

Hello Everyone!

Here is another VERY important Action Alert to respond to. Senator
Hillary Clinton and Mayor Rudy Giuliani are front runners for their
parties in the Presidential race, yet, BOTH of them have declined to
attend and participate in the Disability presidential Forum which
will be taking place in New Hampshire on November 2nd. Tell them
don't Ignore Our Community! Copy and paste this link into your browser

http://capwiz.com/rochestercdr/state/main/?state=NY


Then, click on the Take Action button for each of them. You may send
the sample letter, or personalize it. Afterwards, delete any
information that may already be there, and add your own, then, click
Send. This Action Alert is open to EVERYONE, not just people from New
York, so please respond!

ACCESSIBLE FORMATS

If your speech reader cannot navigate the CDR advocacy website, send
an email to bradw@... in order to obtain text versions of the
letters along with forwarding faxes and email addresses. Ideally, it
is best to use the CDR website whenever possible because the system
is preprogrammed to forward the letters to the correct fax numbers
and email addresses automatically.

Thank you and have a great day!!!

I've noticed that the day after I eat shell fish, my liquid output goes way up for a while. Anybody else get that reaction?

 

Candle, those pics arent forgotten, son has camera.

Candle

What type of AFO do (did) you have? Mine is a basic one that holds the ankle at a plus 4 and goes up to about mid shin/calf. It used to have a knee stop but it was removed some time ago. There's no metal to mine, all composite except for the velcro straps that hold it on.

Only problem is fitting was required as it was made to the leg. I have an off the shelf one that isn't as rigid as this nor is it a plus 4. I think it was 75 dollars. Would you like a picture of that one?

Candle

Hi Candle

 

I'm not sure what an AFO is but if it's something medical you can try www.wisdomking.com  I purches som of my supplies from them, there prices are reasonable.

 

Don

Candle

I have been bookmarking medical sites that people have suggested for various items. Well, we had some problem with our computer and now I don't have that folder anymore. My AFO broke and my deductible is $1000. We don't have that right now so I wanted to order an AFO online until we can save up for it. I hated the company that made my AFO so if the ordered AFO is good enough, I can basically use that instead and save the $1000 for some other necessity.

 

Can anyone recommend (or re-recommend) online sites to order an AFO or other medical products. I'll just book mark them again and also put the posts into a folder for saving for later.

 

Thank you so much.

--

 

Candle

 

May there always be a light to guide you.

www.heartlinemedical.com



is the best place to buy catheters from. They might
have heel and foot orthotics as well. check them out




--- Don Smith <scamper95@...> wrote:

> Hi Candle
>
>   I'm not sure what an AFO is but if it's something
> medical you can try www.wisdomking.com  I purches
> som of my supplies from them, there prices are
> reasonable.
>
>   Don
>
> candle850-keeper@... wrote:
>             I have been bookmarking medical sites
> that people have suggested for various items. Well,
> we had some problem with our computer and now I
> don't have that folder anymore. My AFO broke and my
> deductible is $1000. We don't have that right now so
> I wanted to order an AFO online until we can save up
> for it. I hated the company that made my AFO so if
> the ordered AFO is good enough, I can basically use
> that instead and save the $1000 for some other
> necessity.
>
>   Can anyone recommend (or re-recommend) online
> sites to order an AFO or other medical products.
> I'll just book mark them again and also put the
> posts into a folder for saving for later.
>
>   Thank you so much.
>
>
>   --
>
>   Candle
>
>   May there always be a light to guide you.
>
>
>
>
>




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