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Off to a nursing home   Message List  
Reply | Forward Message #1177 of 4641 |
Re: [Spinalcordinjury] Off to a nursing home

I never went to a nursing home but I know when I first was in ICU doctors suggested it to my parents being that I was a quad and wuld need 24 hr care. My parents flipped out at the thought of this because nursing homes are not ideal places. My parents called friends who have disabilities to see where to get help and what offers the best physical therapy for a SCI. We found a place in Abilene, Tx three hours from my home and I spent 5 months there relearning how to sit, syand, eat, walk, and as far as even going to the restroom on my own. The physical therapy was incredible and for my injury level and in the year I have done amazing thanks to God and prayer. However, when mom mentioned they recommended a nursing home for me all of the therapist I had said that woud have been the worst place for me to go. Most of the people in a home are older folks who have lost memory and are unable to recogonize family members, do not know there own age, people whose minds are gone, and people who do not do therapy or do not want to do therapy because it is of no interst to them due to old age. For a young person this is a negative place a place of sadness. He should be around people who want to help him and see that he has the ability to get better. If his parents are worried about the money some centers give scholorships or aid they just have to ask. He has so much more ability but a nursing home cannot offer him advancement- it is just not a good place they won't challenge him because already the have become acustom to the older people not wanting therapy, they will be llazy pretty much. He will be alone a majority of the day which is bad he needs positive people w/ him and he needs motivation and suppot from friends and especially family and to me that family is not thinking about him getting better...it is almost selfish well no it is. I will pray for you and your friend. He really needs a good rehab facility.
 
Shane

Amelia Barragan <ac25ac@...> wrote:
Hey  Mid,
 
After my accident I spent about a month and a half at a hospital. I then went to rehab for another month and a half. I had to wear, what I call a turtle shell, for five months. (It is a removable body cast) Because my movement was limited I could only complete the first fase of rehab. I was supposed to come back after the doc gave the ok to do away with the shell. Meaanime, I had to stay at a nursing home becuase my husband was working 12 hour shifts, my sister had just had a baby, and my mom was going through chemo therapy. There was nobody else available who could help with my care.
 
The nursing home was the worst thing that happened to me, even considering my injury. I was the youngest person they had ever had in the facility. It is supposedly one of the best places in Houston. They even had therapist for rehab. Nothing compared with TIRR but still it was something. The food was great also, not that I ever wanted to eat. The place was as clean as could be expected. The place felt more like a home than a hospital. At least the lobby did. Still....
 
Up until that point I had an unbreakable spirit. I realized it was a nursing home, and no matter what they called it, it was. My doctor liked to call it SNIF. (Skilled Nursing.... something or other) I felt disccarded. Put away, out of the way. And the things I saw and heard, made it even worst. I do not recomend  it for anybody. I can only ask anybody who is thinking about putting a loved one into a facility of this sort to consider how it would feel for themselves. We (the patient, injured, dissabled) feel pretty shitty already during those first few months, post injury. Having to be put aside made me feel terrible.
 
God help us!
 
Amelia
 

Midwestern Yankee <midwesternyankee@...> wrote:
So I found out last night that my buddy's family has
been working with the hospital social worker to place
him in a nursing home.  I panicked when I first heard
this, because everyone's first image of a nursing home
is a warehouse for decrepit people waiting to die.

Of course, the stereotype doesn't match reality.

But I was really hoping he'd go to a rehab.  I wanted
him to go to a place that specializes in either spinal
cord injury or brain injury.  I looked up the home and
it has a good rating and a good staff to patient
ratio.  But I don't think it has people on staff with
expertise in either area.  A friend, trying to cheer
me up, suggested that the nursing home might be a
necessary  step on the way to a rehab.  It just seems
so--so--final.  Like no one expects much from him so
they're settling for a good maintenance plan.

Have any of you had nursing home experiences?  How
hard is it to get specialized therapy if no one on
staff has the needed expertise? 



     
           
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Wed Feb 2, 2005 4:35 pm

winklestx
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So I found out last night that my buddy's family has been working with the hospital social worker to place him in a nursing home. I panicked when I first...
Midwestern Yankee
midwesternya...
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Feb 2, 2005
2:55 am

I haven't lived in a nursing home but I have visited people there with my supervisor last year when I volunteered at the Center for Independent living and I'm...
revis sparkman
virgel20002002
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Feb 2, 2005
4:33 am

I wish the indepdendent living center could help out in this case, but my buddy appears to be in a persistent vegetative state. He can barely follow commands...
Midwestern Yankee
midwesternya...
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Feb 3, 2005
3:09 am

Hey Mid, After my accident I spent about a month and a half at a hospital. I then went to rehab for another month and a half. I had to wear, what I call a...
Amelia Barragan
sci_f_wheel_...
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Feb 2, 2005
12:48 pm

I never went to a nursing home but I know when I first was in ICU doctors suggested it to my parents being that I was a quad and wuld need 24 hr care. My...
shane jones
winklestx
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Feb 2, 2005
4:36 pm

Thanks for the advice. My buddy probably qualifies for medicaid. But since he is in a what I think they call a "persistent vegetative state," maybe he cannot...
Midwestern Yankee
midwesternya...
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Feb 3, 2005
3:04 am

Hi, Just read about the nursing home thing. Before my accident I was a paramedic and went to my fair share off emergencies at nursing homes. NOT impressed....
mary cooper
mmchmc1
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Feb 2, 2005
2:23 pm

Thanks for the advice. I know they're working with a hospital social worker, so I figured they'd get good advice. Now I am not so sure. ... ...
Midwestern Yankee
midwesternya...
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Feb 3, 2005
3:07 am

i have known several people that have been in nursing homes...the most important advice i could offer is to monitor his skin. it seems like they don't keep on...
erica baze
mommeeeerica
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Feb 3, 2005
3:27 am

He had several fractured vertebrae and I don't know how fsat these things mend, so I'm not turning anything without guidance! But I appreciate the tip. ... ...
Midwestern Yankee
midwesternya...
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Feb 4, 2005
3:25 am

the skilled people do all the turning, where are u all located, maybe i can make some recommendations for a rehab center that handles these things too. Erica ...
erica baze
mommeeeerica
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Feb 5, 2005
7:45 pm
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