This is a private member-only website for people with Selective Sound Sensitivity. People who suffer from general hyperacusis which is a loss of tolerence for louder or even moderate sounds (in general all sounds) should not join this group. This is a specific subset of auditory symptoms that is not generally related to hyperacusis.

Selective Sound Sensitivity can occur in people of all ages, and can have a sudden or gradual onset, often around puberty. Most often cited objectionable sounds include lip smacking, chewing, swallowing, breathing, teeth or silverware clinking, plate scraping, paper tearing, fingernail biting, computer mouse clicking, or low pitched hums of electrical circuits or machines. Some people with 4S find certain letter sounds objectionable, i.e., s or k or p.

Reactions can include rage, sadness, panic attack, indecision, loss of cognition, physical itching or crawling sensations, urge to flee, or fight. Some people have to make vocalizations in response to the aggravating sound, others wear earplugs in an attempt to avoid provocation.

Most often the person's hearing is good or even excellent, and there are no overlying major conditions or pathologies, so the person is unable to find knowledgeable providers or even a support system.

The condition is mysterious and does not appear to be associated with hearing loss, or injury. There are some people who suffer from 4S and misophonia (dislike of sound) or phonophobia (fear of sound).

Welcome to this site, hosted by Marsha Johnson, AuD, audiology specialist in hyperacusis and related conditions. She named this syndrome after realizing in 1997 that there were many people affected by these unusual symptoms, and at present, conducts treatment, research, and support for patients from all over the world. Dr. Marsha is located in Portland, Oregon. Her email is oregon7@aol.com.

Please feel free to respond, make comments, or ask questions.