Kyle (age 5) sometimes will be watching tv and then burst into tears (hysterical)- usually it is something that really scares him and since he can't use words...
Dear Claudia Thanks for your thoughts - it's funny because our daughter (non-Sotos but with many developmental/neurological issues) is just 12 and we too have...
It has been along toime since I have written My son is 3 years old. Just a while ago, he was watching TV and the next thing I knew, he was throwing a fit. He...
Hi aj We met with the neurologists at Sick Kids last month. They were to go over my son's MRI with us because he had some changes from a typical 2 year old...
Thanks for sharing this with us Claudia. I know many parents with special needs children will do ANYTHING and go to ANY lengths to help their children. But...
I wrote this in reply to someone in the apraxia listserv. Thought I'd share it here as it kind of explains "where we're at" in this whole process. Yes, we...
Hi, everyone. My baby is 11 months old and we will be seeing a neurologist this week Tuesday. I have a list of questions and was wondering if anyone has any...
Glad you got some answers:)Â Â Are the blue sleeves the knee braces? aj ________________________________ From: Kellie Siers <rottiemamadogs@...> To:...
Apparently, the Osteo Chrondritis cleared up on its' own and the swelling is a risdual side effect of the Osteo and is what is probably causing his pain. ...
Wonderful! I'm glad they were normal.. _____ From: Sotosyndrome@yahoogroups.com [mailto:Sotosyndrome@yahoogroups.com] On Behalf Of Kellie Siers Sent: Friday,...
 Results were normal except for swelling in one of the knees. They are going to try and put blue sleeves on them to help with the swelling. NO surgery at...
Hi Tame, My daughter Lydia has an 15 degree curve on top and a 25 degree curve on the bottom. She wears a Miami Brace, which is very similar to the Charleston....
Thanks, Tammy. SOrry so late in responding (computer broke down). Ethan is doing well. Went to the doctor last week and he had rosiola (sp?), Thrush, and he...
We'll be thinking of you and Daniel. aj + ethan ________________________________ From: Kellie Siers <rottiemamadogs@...> To: Sotosyndrome@yahoogroups.com...
Daniel's MRI is tomorrow. We have to be there at 7:oo am. He has to be sedated so we have to be there early. I'm going to take the computer with me so I have...
Thank you to each of you with your kind words regarding Johnny's recurrence of epilepsy (which never went away in the first place, it was just controlled!)....
Claudia, You made a mistake. It happens to all of us. Stop beating yourself up over it. Kellie  Rotten Rottie Mama ________________________________ From:...
Today we visited the orthotic who made Ben's new back brace. Apparently he is doing great in it. It is 'normal' to see a slight decrease in appetite, slight...
Hi Claudia!! I am very sorry to hear the news. We have talked so many times about medications for epilepsy. And I thought you were definetly convinced about...
Claudia, I am so sorry to hear that...I do hope that Johnny is ok Tammy ... From: Pamela LeProhon To: Sotosyndrome@yahoogroups.com Sent: Tuesday, November 10,...
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