Wonderful! I'm glad they were normal.. _____ From: Sotosyndrome@yahoogroups.com [mailto:Sotosyndrome@yahoogroups.com] On Behalf Of Kellie Siers Sent: Friday,...
 Results were normal except for swelling in one of the knees. They are going to try and put blue sleeves on them to help with the swelling. NO surgery at...
Hi Tame, My daughter Lydia has an 15 degree curve on top and a 25 degree curve on the bottom. She wears a Miami Brace, which is very similar to the Charleston....
Thanks, Tammy. SOrry so late in responding (computer broke down). Ethan is doing well. Went to the doctor last week and he had rosiola (sp?), Thrush, and he...
We'll be thinking of you and Daniel. aj + ethan ________________________________ From: Kellie Siers <rottiemamadogs@...> To: Sotosyndrome@yahoogroups.com...
Daniel's MRI is tomorrow. We have to be there at 7:oo am. He has to be sedated so we have to be there early. I'm going to take the computer with me so I have...
Thank you to each of you with your kind words regarding Johnny's recurrence of epilepsy (which never went away in the first place, it was just controlled!)....
Claudia, You made a mistake. It happens to all of us. Stop beating yourself up over it. Kellie  Rotten Rottie Mama ________________________________ From:...
Today we visited the orthotic who made Ben's new back brace. Apparently he is doing great in it. It is 'normal' to see a slight decrease in appetite, slight...
Hi Claudia!! I am very sorry to hear the news. We have talked so many times about medications for epilepsy. And I thought you were definetly convinced about...
Claudia, I am so sorry to hear that...I do hope that Johnny is ok Tammy ... From: Pamela LeProhon To: Sotosyndrome@yahoogroups.com Sent: Tuesday, November 10,...
LOL! How funny! That's Jacob.. If I don't want him to have something, then it gets relegated to the deepest darkest portion of the cupboard behind the lima...
Over the years I've heard all your stories of having to put padlocks on the refridgerator and things like that. Zak ate a lot when he was smaller, but we never...
Just thought I'd up-date you on Johnny's seizure situation. He is almost 12 and has had seizures since age 5 or 6. For over 3 years he has not had a single...
So sorry to hear this Claudia. Don't beat yourself up though. (That Doctor should have kept his mouth shut. He's not helping you any, only making himself feel...
I am so sorry Claudia I hope that Johnny is ok. Those are very scary. Give him lots of hugs and kisses ... From: hubby4kids <hubby4kids@...> Subject:...
Just thought I'd up-date you on Johnny's seizure situation. He is almost 12 and has had seizures since age 5 or 6. For over 3 years he has not had a single...
He had surgery for hydrocephallus related issues not for his back. When he wore the Charleston bending brace (curved him in the shape of a banana...lovely) at...
 Pam is slightly nice than even I am Please, she's waaaayyyy nicer than you! LOL Kellie  Rotten Rottie Mama ________________________________ From: Tammy...
Our son seemed to have scoliosis and some therapists still tell me he does, but basically his curved spine is correcting itself. The biggest help has been...
Well, I can let other people know that I am not right? lol ... From: Jennifer Heater To: Sotosyndrome@yahoogroups.com Sent: Monday, November 09, 2009 7:56 AM ...
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