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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 65863 - 65892 of 69280   Oldest  |  < Older  |  Newer >  |  Newest
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65863
... Shane is 11 now and doesn't get sick as often.  When he was younger he would get sick all the time.  It also seemed like when he did get sick it was...
james candy
jkcandy2000
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May 1, 2009
10:35 am
65864
Aha the techicsl terms. Has Joey ever done listening therapy? -t Sent from my iPhone On Apr 30, 2009, at 10:29 PM, "Tammy Burtt" <tburtt@...>...
Tame
dazies2001
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May 1, 2009
10:52 am
65865
No, he hasn't. He seems to be doing much better now Tammy ... From: Tame To: Sotosyndrome@yahoogroups.com Sent: Friday, May 01, 2009 6:52 AM Subject: Re:...
Tammy Burtt
tammy_jesses...
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May 1, 2009
11:32 am
65866
--my son seemed chronic until he graduated last may, honestly he has been better sinc ehe is away from all the other sick kids. You might want to check for...
abjkv99
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May 1, 2009
11:57 am
65867
HI Donna, I am sorry that you are going through this. I am assuming that Zak's hearing loss is not due to fluid build up? I only dealt with hearing loss due...
Tammy Burtt
tammy_jesses...
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May 1, 2009
12:04 pm
65868 explorepsi
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May 1, 2009
12:19 pm
65869
HI Pam I guess when I mean apraxia training that the aide has a good understanding of what it means and how to work with him... right now at the school he is...
explorepsi
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May 1, 2009
12:30 pm
65870
Hi Donna - sorry to hear about that - have you been to an ENT Doc? Kyle was considered deaf until age 18mths when they put in tubes as he had the fluid on his...
explorepsi
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May 1, 2009
12:38 pm
65871
I aeen reading all sorts of stuff on "milk" - (for work I load courses for a continuing education medical website) anyway it has come up a bunch of places for...
explorepsi
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May 1, 2009
12:48 pm
65872
Our son was also sick a lot as a toddler - asthma, ear infections, etc. We took him off all milk products (around age 4) and it made a huge difference. No more...
hubby4kids
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May 1, 2009
1:14 pm
65873
... Also it is easy for them to send him off them to actually educate him and give him a chance, they will tell you all kinds of crap and see if you will do...
abjkv99
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May 1, 2009
1:53 pm
65874
... Arlene...
abjkv99
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May 1, 2009
1:57 pm
65875
... Arlene...
abjkv99
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May 1, 2009
1:58 pm
65876
Hi everyone, I'm wondering how many families we have in the S. CA area? I hosted a potluck about 2 years but I'm sure there are some newly diagnosed since...
spencerzmama
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May 1, 2009
2:38 pm
65877
Tammy, Yeah it's not that this time. A month ago when he did his yearly screening, they thought there might be fluid, his hearing had declined ALOT . Turned...
donnarlee@...
donnartleef
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May 1, 2009
2:52 pm
65878
Delia, what's a sound field? Yeah, I remember thinking Zak was deaf when he was a baby... HE WAS! but again, because of fluid. Once he had the tubes put it he...
donnarlee@...
donnartleef
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May 1, 2009
3:01 pm
65879
OMG Delia, That is absurd that they did that to him!! I so understand what you mean now!! We lucked out and have a SLP who understands apraxia (had a few kids...
Pam
kevsmom72699
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May 1, 2009
3:08 pm
65880
Just have PATIENCE, LOVE, PERSEVERANCE to work every day with your child.Feel free to write everything you feel because all of us are familiar with each...
Denisse39@...
olivadenisse
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May 1, 2009
3:20 pm
65881
I'm just going to complain some more here, because you all would understand... Two weeks ago, Zak's school had a fire drill. Zak's class was walking out in an...
donnarlee@...
donnartleef
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May 1, 2009
3:29 pm
65882
Sorry to hear of your day Donna. Hopefully things will get better as the day progresses. I would start with the ortho doc first, ask if it would be covered, or...
April Hooper
ahooburg79
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May 1, 2009
3:44 pm
65883
Dang. Its always something, isn't it?... I hope your day improves... jenny ... From: donnarlee@... Sent: Friday, May 01, 2009 11:29 AM To:...
Jenny Heater
jennyheater
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May 1, 2009
3:57 pm
65884
Hi Donna, When you see an orthodontist, when you pay and more work needs to be done, it is usually covered under the amount that you paid. When Jesse got his...
Tammy Burtt
tammy_jesses...
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May 1, 2009
4:03 pm
65885
Its the same for jacob.. Once we covered the contracted amout.. Repairs fell under that umbrella. ... From: Tammy Burtt <tburtt@...> Sent: Friday,...
Jenny Heater
jennyheater
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May 1, 2009
4:11 pm
65886
It was the same thing for me when I had my braces done. I paid a set amount for the work to be done (via monthly installments) and when something "broke" I...
Pam
kevsmom72699
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May 1, 2009
5:05 pm
65887
I was wondering if there are any families in the Northern Ca Sacramento area that might be interested in meeting? I am the mother of Rylee 18 months with...
lisadestiny2002
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May 1, 2009
5:19 pm
65888
Hi Lisa, We're in SLO and we'd LOVE to meet up. Actually, I'll be down in LA next Friday for a genetics appointment for Jonas, so we're going to stay for the...
Cindy
gypsysoulcindy
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May 1, 2009
5:43 pm
65889
That what I was thinking before... I never even bothered to ask. But with the graying tooth and the hearing aids, I was beginning to panic seeing dollar...
donnarlee@...
donnartleef
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May 1, 2009
5:46 pm
65890
Hi Donna, Wouldn't it be great if we all lived in the same town - Sotos Town, USA Hugs given in person are much better but an email hug will have to do for ...
ccnvcabin@...
smashsis
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May 1, 2009
6:13 pm
65891
Hi Lisa~   My name is Kelsey and jordan is my son who is 2 years old and was diagnosed 2 months ago. I am from Santa Rosa about 2 Hours away from sac and I...
Kelsay Poore
jordan112007
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May 1, 2009
6:24 pm
65892
HI Tammy, I pitty the professionals if we all lived in the same town, lol. Can't your husband make alternate arrangements to get to and from the airport? You...
Tammy Burtt
tammy_jesses...
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May 1, 2009
6:28 pm
Messages 65863 - 65892 of 69280   Oldest  |  < Older  |  Newer >  |  Newest
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