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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 63195 - 63224 of 69273   Oldest  |  < Older  |  Newer >  |  Newest
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63195
Wow you are busy. I went to an inservice on autism and during the presentation they mentioned PPD. They went on to catagorize different types of symdrims as...
Tame
dazies2001
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Feb 1, 2009
1:43 pm
63196
Hi! You asked: "is sotos a spectrum disorder?" Sotos syndrome (with the common deletion) is a contiguous gene syndrome incorporating coagulation factor twelve...
taina.hickey
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Feb 1, 2009
2:27 pm
63197
I haven't read that information Before. Interesting. At the training the presentor indicated a spectrum disorder was a disorder that varied in extremes from...
Tame
dazies2001
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Feb 1, 2009
2:42 pm
63198
Thanks Ed! ... name, ... whatever. ... yahoogroups.com ... Mountain ... yahoogroups.com...
explorepsi
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Feb 1, 2009
3:16 pm
63199
AS far as I know Sotos is a genetic condition that has a spectrum of medical and behavioral issues - one synmptom of which can be autisim or autistic-like...
explorepsi
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Feb 1, 2009
3:31 pm
63200
Tame, you said you heard or read PPD, do you mean PDD (Pervasive Developmental Delay, it means delayed all the way around, in every area to be measures) or am...
April Hooper
ahooburg79
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Feb 1, 2009
3:35 pm
63201
Hi, welcome to the group. Eliezer's been seeing the geneticist since he's 7 months old. He had the bone age test at 13 months, and it was advanced. He had a...
Rivka Schmelczer
rschmelczer
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Feb 1, 2009
3:46 pm
63202
About the bedbugs, I'm the only one that has them. I think I picked it up in the summer when I went up to the country for a few days. Since I didn't realize...
Rivka Schmelczer
rschmelczer
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Feb 1, 2009
3:49 pm
63203
Sorry I did mean PDD... This darn iPhone anyway. I am not positive but I think it was weavers. My slide show handout is at work but I'll check Monday. Sent...
Tame
dazies2001
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Feb 1, 2009
3:49 pm
63204
I'll email the info from slides dicussing the term directly. The presenter is getting her doctorate degree with a minor in autism and she works for our school...
Tame
dazies2001
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Feb 1, 2009
3:53 pm
63205
Thanks, I am interested in what you have found. I figured you meant PDD. I am very curious actually. I just had my son's previous diagnosis of autism removed...
April Hooper
ahooburg79
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Feb 1, 2009
4:00 pm
63206
Hmmm.... Maybe he was mad at you for leaving him??? Ben does that to me also. He is just so attached to me sometimes he can't seem to seperatr from me and his...
Tame
dazies2001
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Feb 1, 2009
4:04 pm
63207
Nope! Nothing to do with me leaving, that's his normal, regular, behaviour at home. He's is a perfect, charming, little angel with everyone else. Meir also...
Rivka Schmelczer
rschmelczer
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Feb 1, 2009
4:16 pm
63208
I think medical terms are always changing as new info becomes available. Like what you said about autism. My son was screened and displays a couple...
Tame
dazies2001
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Feb 1, 2009
4:26 pm
63209
My genetisist I'd treating a sotos paitient that is only in the 75% but has all classic symptoms and tested + for mutation. He said all sotos aren't hugely...
Tame
dazies2001
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Feb 1, 2009
4:32 pm
63210
I understand your point. My son seen the Washington State Dean of Pediatric Psychiatry a couple months ago. This doc does not usually see patients directly, he...
April Hooper
ahooburg79
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Feb 1, 2009
5:47 pm
63211
Kathy, I don't think you should feel bad for pointing out all of the emails... I also have a hard time wading through all of them to find the information that...
Wendy Lebel
hiphomeschoo...
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Feb 1, 2009
5:56 pm
63212
Hi Delia. Jacob had a doc that said the same thing. he could jibber jabber on so he was too social. BUT his speech was too deteriorated to have Aspergers. I...
jenny
jennyheater
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Feb 1, 2009
6:10 pm
63213
Kathy, I agree with you on all the emails coming in that have nothing to do with sotos. I also am going to unsubsribe. I am the person that answers the toll...
Toni Williams
tonidaughter
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Feb 1, 2009
8:28 pm
63214
I've been at boy scout camp this weekend and couldn't email regarding this subject. .... Really there isn't much I can add to this group anymore besides chit...
Jenny Heater
jennyheater
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Feb 1, 2009
9:52 pm
63215
Hi T, My son was 95% for height and weight and had advanced bone age. It is one of the clinical criteria used to diagnose Sotos. It is quick and easy to get...
Pam
kevsmom72699
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Feb 1, 2009
11:11 pm
63216
I know this is the sotos site, but this is the clinical criteria used to diagnose weaver syndrome too...advanced bone age, DD, and height/weight ... From:...
April Hooper
ahooburg79
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Feb 1, 2009
11:25 pm
63217
That is interesting - I have never heard anyone refer to it as autistic-like but it makes sense. I think that people are just coming to understand that it is...
explorepsi
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Feb 2, 2009
1:38 am
63218
Once there was a family, I'll tell you all about. Whose members, severl hundred, All over the world spread out. This family was, As unique as you could get. ...
Rivka Schmelczer
rschmelczer
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Feb 2, 2009
1:49 am
63219
Hi Delia, What you say about Sotos is true: Sotos is a Syndrome because it has many different symptoms, but I would agree that is a spectrum, because clinical...
Irene Talarico
groly16
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Feb 2, 2009
1:59 am
63220
since jacob's initial dx of autistic-like/aspergers-like... another doc at the same clinic officially dx'd him with true aspergers.. just high functioning....
jenny
jennyheater
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Feb 2, 2009
2:09 am
63221
April, I could be wrong, maybe you know better, but I seem to remember one of the docs saying once that the bone age was advanced in both Weavers and Sotos,...
donnarlee@...
donnartleef
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Feb 2, 2009
2:22 am
63222
I am not sure, it will be interesting to see of some one else does. I believe the bones measured would be the same ones, not sure though. I do remember a book...
April Hooper
ahooburg79
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Feb 2, 2009
2:37 am
63223
Thanks for sharing Rivka, you have a wonderful way with words! ... From: Rivka Schmelczer <yyandrms@...> Subject: [Sotosyndrome] A special family-poem by...
April Hooper
ahooburg79
Online Now Send Email
Feb 2, 2009
2:38 am
63224
Amen. ... From: "Rivka Schmelczer" <yyandrms@...> To: Sotosyndrome@yahoogroups.com Sent: Sunday, 1 February, 2009 6:49:40 PM GMT -07:00 US/Canada Mountain ...
donnarlee@...
donnartleef
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Feb 2, 2009
2:45 am
Messages 63195 - 63224 of 69273   Oldest  |  < Older  |  Newer >  |  Newest
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