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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 58506 - 58540 of 69278   Oldest  |  < Older  |  Newer >  |  Newest
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58506
does anyone know if there is going to be a conference for next year 2009 and Where?? or if the next conference is not until 2010? I was unable to attend this...
christina
christinalon...
Online Now Send Email
Aug 1, 2008
7:18 am
58507
Now, that would be cool and again cheap for me with all my relatives living there or could we all just stay with you? Kellie Rottie Mama ... From:...
Kellie
rottiemamadogs
Offline Send Email
Aug 1, 2008
11:17 am
58508
The Conference for 2009 is in Salt Lake City. Kellie Rottie Mama ... From: Sotosyndrome@yahoogroups.com [mailto:Sotosyndrome@yahoogroups.com]On Behalf Of...
Kellie
rottiemamadogs
Offline Send Email
Aug 1, 2008
11:18 am
58509
Come on over and join the prty! ... From: "Kellie" <rottymama@...> To: Sotosyndrome@yahoogroups.com Sent: 8/1/08 7:17 AM Subject: RE: [Sotosyndrome]...
Jenny Heater
jennyheater
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Aug 1, 2008
12:04 pm
58510
I was not at the conference (unfortunately) so my comment on the "circle of support" is not from what was said there. I just wanted to mention that someone...
hubby4kids
Offline Send Email
Aug 1, 2008
1:07 pm
58515
I don't mind the legos as much as I do the little green army guys. though, I agree. stepping on them is bad. We were missing a piece or two yesterday, but...
jenny
jennyheater
Offline Send Email
Aug 1, 2008
1:20 pm
58516
I was shocked. I tried to by pass it. Yahoo makes it extremely complicated, your kid needs their email address, then their subs name and a password .. etc...
jenny
jennyheater
Offline Send Email
Aug 1, 2008
1:27 pm
58517
Yeah. Jim said that too.. I just hate going through all of this when I do know that he won't check his email. I just wanted him to try it out. We'll see.....
jenny
jennyheater
Offline Send Email
Aug 1, 2008
1:28 pm
58518
That is what we use and it works GREAT!!! We have 4 computers running in the house off the one connection.   Jeannette ... From: abjkv99 <abjkv99@...> ...
Jeannette VanDenberg
jeannette.va...
Offline Send Email
Aug 1, 2008
1:33 pm
58519
The conference next year is in Salt Lake City. The location for 2010 is not decided yet. Tam ... From: christina To: Sotosyndrome@yahoogroups.com Sent:...
Tammy Burtt
tammy_jesses...
Offline Send Email
Aug 1, 2008
2:08 pm
58520
You can get a wireless router/splitter and there would be no need to run any cords Lori _www.myspace.com/plinkette_ (http://www.myspace.com/plinkette) In a...
plinkette@...
PLINKETTE1
Offline Send Email
Aug 1, 2008
2:39 pm
58521
got to this site to create an email for him. Use your email address as secondary email address. You shouldn't need a credit card...i tried just now and they...
plinkette@...
PLINKETTE1
Offline Send Email
Aug 1, 2008
2:53 pm
58522
... Arlene ... 2010 is not decided yet. ... year ... was ... 7/29/2008 12:00 AM...
abjkv99
Offline Send Email
Aug 1, 2008
3:34 pm
58523
Heck no they should have it in St Paul and we can all go shopping at the Mall of America! Talk to you soon! Jeannette ... From: abjkv99 <abjkv99@...> ...
Jeannette VanDenberg
jeannette.va...
Offline Send Email
Aug 1, 2008
3:35 pm
58524
Maybe in NY? Have they ever had it in NY before? That would also be a great vacation spot and so easy for me! lol Alexis mom to Aidenn ... From: abjkv99...
alexis rivera
r22alexis
Offline Send Email
Aug 1, 2008
4:26 pm
58525
Hello again This week has been so confusing for my family. Aidenn has been doing so great these days but yesterday was a nightmare for us. In the past Aidenn...
alexis rivera
r22alexis
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Aug 1, 2008
4:40 pm
58526
Can I bring the dogs, too? I'm sure "Moose" would like to meet you. LOL Kellie Rottie Mama ... From: Sotosyndrome@yahoogroups.com...
Kellie
rottiemamadogs
Offline Send Email
Aug 1, 2008
4:46 pm
58527
Hey all, Those are great suggestions. Just remember if you suggest it then you have to plan it. They said that they wanted the 2010 conference to be in the ...
Kellie
rottiemamadogs
Offline Send Email
Aug 1, 2008
4:49 pm
58528
Alexis, You need to have him evaluated or reevaluated by a Neurologist. Daniel does not have a seizure disorder but I used to ride with an ambulance crew so I...
Kellie
rottiemamadogs
Offline Send Email
Aug 1, 2008
4:59 pm
58529
Sure. as long as they can get along well with the greyhounds. :-) _____ From: Sotosyndrome@yahoogroups.com [mailto:Sotosyndrome@yahoogroups.com] On Behalf Of...
jenny
jennyheater
Offline Send Email
Aug 1, 2008
5:01 pm
58530
I'd have him at the ER to be evaluated, than contact his neurologist.. We don't deal with that here, but I think that is probably what I would do. How scary! ...
jenny
jennyheater
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Aug 1, 2008
5:06 pm
58531
We did that and they drew his blood and those results were normal. We are following up with his neurologist... I am actually waiting for him to call me back...
alexis rivera
r22alexis
Offline Send Email
Aug 1, 2008
5:17 pm
58532
Hi Alexis, First of all, I am so so sorry that you had to go through this. Zach had seizures when he was 5 months old and i will never forget how scary that...
lorisheryl
Offline Send Email
Aug 1, 2008
5:20 pm
58533
Yes we called our pediatrician and they told us to call the neurologist. Aidenn has had many EEG's before. We have an EEG and MRI done every August. He...
alexis rivera
r22alexis
Offline Send Email
Aug 1, 2008
5:26 pm
58535
Hi Alexis I have so been there and done this with Kyle so many times! Each and every time it freaked me out!  We would have to call 911 each time and I...
Jeannette VanDenberg
jeannette.va...
Offline Send Email
Aug 1, 2008
6:55 pm
58536
How about St. Louis...it's in the middle of the country! _www.myspace.com/plinkette_ (http://www.myspace.com/plinkette) In a message dated 8/1/2008 11:26:33...
plinkette@...
PLINKETTE1
Offline Send Email
Aug 1, 2008
7:21 pm
58537
Seizures are scary every time! Here's our experience - with the first one (not counting the febrile convulsions before age 5) we did take our son to ER and...
hubby4kids
Offline Send Email
Aug 1, 2008
8:28 pm
58538
I thought you all might like to see pictures so Here we go.... 1. Zak just before surgery with the nurse he called "UGLY" because she made him breath sleeping...
donnarlee@...
donnartleef
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Aug 1, 2008
8:51 pm
58539
Hi Jenny,   As someone else has said, if they put it in this area we'd be the ones planning it. I was on the planning committee for a similar conference here...
Susan Brattin
sdb2956
Offline Send Email
Aug 1, 2008
9:11 pm
58540
Hi,   I'd be interested in attending a picnic in Ontario also, depending on when and where.   Also, if I am not mistaken there are several of us on this...
Susan Brattin
sdb2956
Offline Send Email
Aug 1, 2008
9:30 pm
Messages 58506 - 58540 of 69278   Oldest  |  < Older  |  Newer >  |  Newest
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