... move, all his stuff is not put in order it is everywhere, and gramma is not well so he is hanging in there.He has had his asthma and sinuses flared up in...
Sherri, All of this is very disheartening. I am still interested in following through on my ideas. Please do not disgard me or those of us who are willing to...
Hi, It probably would not be unusual with all the stress of getting a diagnosis and then processing it all, that panic/anxiety attacks set in. I would suggest...
We mailed our conference $ and confirmation almost one month ago and haven't heard back. Should we be concerned? Also, is there a way to find out what the...
1. I will ditto that! 2. I have learned more about advocacy then I ever thought I would. 3. I love the compassion and love I see in Lydia (on her good...
Hi Wendy, I live in Ft. Wayne, IN. I have a friend that works at UofM in the grants dept. Her daughter has another type of syndrome (very long word). Because...
i am glad its going well even though you are exhausted!! the change will be good for kristopher and you also,try and get some rest in between all the new...
Hi Marlie, I live in Benton Harbor, Michigan and would like to have Torry be a part of this research if you can pass his name along to your friend. Thank you, ...
... sinus pressure can do that too if they don't feel well? Does he wear glasses and is he focusing with one eye or both? Spatial awareness is big with these...
Hi Marlie, Yes, I'm very interested in applying for the research. Thank you for thinking of me and Landon. We couldn't afford the neuro psych evaluation...
not yet..my surgery is july 17th..we think we have an appartment just waiting for the paperwork to come thru..sent payroll stuff in..then we will know how much...
hi,his ears are fine as much as i can tell,his shoes fit ok,one keg does look a little bowed,the leg shape is differant from the other one,it just doesnt look...
Hi Greg and Gisela Did you get my e-mail sent directly to you on 24 June. If not, let me know and I'll send it again. I am also from Perth, Como. Cheers ...
... check it if he is bowed leg,I had a nephew that had a hip sorter than the other,he had some kind of surgery at 15 and turned out fine.Thats the problem...
thanks arlene,michaels asleep right now,hes had an hour and a half asleep already i will wake him up in a minute,but by 6.30 tonight he will be tired and need...
... staying awake at night but up early in the morning. If he issleeping throught the night that is a huge plus because alot othese kids are u at night all...
hi, group. Has anybody had an experience with nootropil? Has anybody tried it on their children? I'd like to know. (My english in the morning is kaputt)...
Ahhh…Being in MA, I hate seeing the old truck come! At least it will be a while before we need a fill up! Pam :-) ... From: Sotosyndrome@yahoogroups.com...
No.. Not here. Perdon, yo no ayudo. Saludos jenny ... From: "jose fernando de santiago villalvazo" <josefer09@...> To: sotosyndrome@yahoogroups.com Sent:...
I've got your name on the list thanks, Marlie Dana Cox <dana.cox39@...> wrote: Hi Marlie, I live in Benton Harbor, Michigan and would like to have Torry...
will do, I have you on the list Marlie jenny <jaheater3@...> wrote: Hi Marlie… I live in Garden City, MI and wouldn’t mind being a part of this too....
Thank you for the response, and God's speed on your surgery, Marlie sherri oneal <josokoso@...> wrote: not yet..my surgery is july 17th..we think we have...
Okay, 1. In the past I have underestimated my sons abilities, I learned to never "estimate" anyones abilities but to take what comes and be pleased at the...
Hi Michaelann,  I knew of a co-worker who had OT denied on her child, but I did not know her child's diagnosis(es). The wording used on my daughter's OT...
Wendy, you are right, that book is EXCELLENT. I stumbled across it last year and it was great therapy! Every story was relatable.  Another good one is...
What a great suggestion to express the positives our kids have taught us. I am sure there are many common themes among us all. My top five that I have...
Hi Marlie, Â I'd love the information on the research study. We live very close to UM and our daughter has not gotten a definitive genetic diagnosis as yet. ...
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