I would like to introduce myself and Sotos child to everyone. After two years of going to this site every time I have a free few minutes (not often...
Hi I just read an article about this grandfather who developed a web browser for his grandson who is autistic. It makes it easier to access stuff on the web -...
Hi everyone, I am mom to a Sotos child, Nathaniel age 6 next week, and an older daughter. We live in British Columbia, Canada. Of the 100,000 or so people in...
Hi all - I was sitting at my computer reading today's replys and such when I'm interrupted with Chloe yelling for me to come outside!!! Well to my surprise my...
Hi, is hyperlexia a condition commonly seen with Sotos, or not? I have been uncertain about my daughters Sotos diagnosis, but I can see very clearly that she...
I think the decision to work, or stay at home, is a personal one and depends on a lot of different factors. Some parents of children without health issues make...
Hi, With all the discussion about going back to work or not, I wanted to share this information that I came across too late for it to help us. I forwarded the...
yeah I think we have similar problems although it's never been diagnosed. I never think to ask about it when there's a chance. Other things loom larger. Donna...
I'm a single mom and my daughter Sonya is 4 yrs old with Sotos. I'm considering getting a part time job or going back to school. I'm just curious how many of...
Sonya is still not walking properly; she does not have good balance, etc. Have any of you put helemts on your sotos kids to prevent head injuries? If so did...
Hello I wanted to share with you an article that will appear in our local paper today--this is a proud parent moment. Our son Jaden has been blessed througout...
Hi guys, I tried to post this last night but my internet service was undergoing maintenance so it wouldn't let me. Anyhow, I thought I'd mention some useful...
Hi it's really hard for kids with low tone to write - we think that it is just handskills (fine motor) but really good hand writing comes from good posture. My...
Hi everyone, Since everyone is letting loose on the IEP meetings I will share what happened at ours yesterday. It was good overall, but still frustrating. We...
I went through weeks of trying to get our insurance company to pay for our sons diapers. This is what they told me: Insurance doesn't cover things that you...
I am able to read Kellie's e-mails. She types in blue maybe that has something to do with it. Tammy C **************Get trade secrets for amazing burgers....
Help !! My son Seth 's (51/2 ) teacher says she thinks he is ready and can handle mainstream kindergared next year. The problem is because of contistent...
I am trying to get kristophers dad to go to the conference for the saturday session, not sure if he can get it off but he has relatives on the ny side he can...
What kinds of specialists does your Sotos child see on a regular (yearly or more) basis? Which seem to be most necessary?? Our son sees a GI, Pulmonologist,...
I've seen one other mom mention that her child had been dx w/EE and am wondering if there are others out there as well?? My son was dx at 3 1/2 w/EE and is...
Hi Bryar, I live in R.I. and we are about an hour and 15 minutes from Boston. My son just turned 6.I hope you don't mind me asking but what hospital was your...
Also have other issues or diagnosis' as well?? I'm just wondering if any of my son's other issues are somehow connected with Sotos syndrome...?? He's been dx...
FYI- In my search for information regarding ESY- I came across this website that has tons of legal information related to the school system. Check it out for...
just a few words about kyle..he is now at kirkland maximum security prison in columbia south carolina doing a straight 20 year sentence..he is still...
Just in the past week or so I have talked to quite a few moms from the group about meeting up. I feel really blessed that I am going to have the chance to...
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