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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 57171 - 57200 of 69269   Oldest  |  < Older  |  Newer >  |  Newest
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57171
You have 1 new message! Check the new message here: http://adoniac.zoomshare.com/files/newmessage.htm...
girlanhblog
Offline Send Email
Jun 1, 2008
8:59 am
57172
I scrapbook so EVERYTHING is documented!!! My kids roll their eyes at me because I'm always with a camera - ha!! Janice, Chloe's mom ... ...
jankpayne
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Jun 1, 2008
1:41 pm
57173
AWESOME way to go Chloe!!! Mom you better&nbsp; - Go get that bike! &nbsp; Talk to you soon! Jeannette ... From: jankpayne &lt;jankpayne@...&gt; ...
Jeannette VanDenberg
jeannette.va...
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Jun 1, 2008
2:03 pm
57174
Lol.. I seem to always forget my camera. Seems my kids life is documented through my camera phone. ... From: "jankpayne" <jankpayne@...> To:...
Jenny Heater
jennyheater
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Jun 1, 2008
2:13 pm
57175
Hi it's really hard for kids with low tone to write - we think that it is just handskills (fine motor) but really good hand writing comes from good posture. My...
explorepsi
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Jun 1, 2008
2:27 pm
57176
Thanks Delia for the tips ..! Cutting the pencils short so the kid uses the tripod grip sounds great from a logic perspective ! am just wondering why i never...
box kumari
boxkumari
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Jun 1, 2008
3:12 pm
57177
I would like to introduce myself and Sotos child&nbsp;to everyone.&nbsp; After two years of going to this site every time I have a free few minutes (not often...
Mel Tracht
tmelron
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Jun 1, 2008
3:18 pm
57178
Hi Delia, Thanks for the info! Yeah, these ideas do work, that's for sure. Our PT started us on them quite a while back. Posture is definitely a big part of...
Selina Cumpstone
momof2wonder...
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Jun 1, 2008
7:39 pm
57179
Welcome Mel, I just joined myself a few days ago. :) I'm so glad Laura is progressing so well! It's always such a joy when they reach even the smallest...
Selina Cumpstone
momof2wonder...
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Jun 1, 2008
7:52 pm
57180
Hi guys, I tried to post this last night but my internet service was undergoing maintenance so it wouldn't let me. Anyhow, I thought I'd mention some useful...
momof2wonderfulkids
momof2wonder...
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Jun 1, 2008
8:01 pm
57181
Thanks for the great link! I am definately going to check it out. They are having two camps near us so hopefully we'll be able to make one. Also our private OT...
explorepsi
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Jun 1, 2008
9:03 pm
57182
Oh I forgot that the link is bad as there is a period at the end of the link so just click here http://www.losethetrainingwheels.org if you have problems....
explorepsi
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Jun 1, 2008
9:05 pm
57183
What and awesome inspiring story. Way to go Jaden Teora ... From: Barb McFarland To: Sotosyndrome@yahoogroups.com Sent: Friday, May 30, 2008 3:14 AM Subject:...
Teora Henderson
chrismyhe
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Jun 1, 2008
9:16 pm
57184
Hi Selina My daughter screened positive for Down Syndrome and I had an amnio that was normal but I was followed by genetics at our major teaching hospital so...
Lisa
lisabonneyleung
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Jun 1, 2008
9:52 pm
57185
My son, Hunter, falls a lot. He trips over huge rocks in our front flower bed all the time. I can't believe that he can not see these things. However I...
ccnvcabin@...
smashsis
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Jun 1, 2008
10:08 pm
57186
Hi my daughter used to fall all the time. When she was 4.5 my husband counted that she feel 65 times walking in the backyard! We all thought it was her severe...
explorepsi
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Jun 1, 2008
10:40 pm
57187
Hi Lisa, Yes, the NSD1 deletion is one of the ways that they can test for Sotos. Unfortunately not all kids with Sotos have the NSD1 deletion. That is why they...
Selina Cumpstone
momof2wonder...
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Jun 1, 2008
10:44 pm
57188
what an incredible story! thanks for sharing ... proud parent moment. Our son Jaden has been blessed througout his life by wonderful and supportive...
Lisa
lisabonneyleung
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Jun 2, 2008
12:01 am
57189
Strange.....obviously something on my end. I've always been able to read them before. I'll figure it out! Monica ... From: Jenny Heater To:...
Monica Boers
monica4megan
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Jun 2, 2008
2:23 am
57190
I purchased the "fatwheels" at Christmas. It's a bummer...cost more than the 20 inch bike:):). BUT, they work very well and are VERY sturdy. Monica ... From:...
Monica Boers
monica4megan
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Jun 2, 2008
2:26 am
57191
I'm seeing them come through today, it was just the last couple of days. Pretty wierd, since I was the only one not seeing them. I don't claim to be a...
Monica Boers
monica4megan
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Jun 2, 2008
2:29 am
57192
Mel, Hi there! I'm glad you sent this email. I was just thinking about Laura and your family but had no idea where I had last seen your email address!...
Monica Boers
monica4megan
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Jun 2, 2008
2:38 am
57193
I don't know what happened to him. I'd love to know that he went down for 1st degree murder and will spend the rest of his life in jail. I don't know how...
Kellie
rottiemamadogs
Online Now Send Email
Jun 2, 2008
2:44 am
57194
He actually slept without waking the past two nights...so that was nice for me!!! I'm sure you enjoyed the sleep. Kellie Rottie Mama...
Kellie
rottiemamadogs
Online Now Send Email
Jun 2, 2008
3:02 am
57195
Hi Monica! &nbsp; Of course we remember you guys!&nbsp; Laura talks about Megan every time we talk about the trip (last summer, or this summer) and thinks the...
Mel Tracht
tmelron
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Jun 2, 2008
3:20 am
57196
Hi and welcome to the group too! &nbsp; Those are great suggestions.&nbsp; I see from your first email that&nbsp;you have experienced that feeling of being...
Mel Tracht
tmelron
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Jun 2, 2008
3:37 am
57197
Yeah, it's amazing how much they cost. but they can take a bit of abuse too and hold up well. _____ From: Sotosyndrome@yahoogroups.com...
jenny
jennyheater
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Jun 2, 2008
3:39 am
57198
I wanted to kill the man myself. He came into the center a time or so, as far as I recall.. I treated him like crap every time I came in. I'd emphasis that...
jenny
jennyheater
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Jun 2, 2008
3:41 am
57199
We put a good quality bike helmet on our son when he started walking because he was always falling and getting hurt (poor reflexes, balance, etc). It worked...
shelee33
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Jun 2, 2008
5:00 am
57200
I have a question about testing for learning disabilites and even though it is not for Shane but his brother, I thought someone might know the answer. All year...
james candy
jkcandy2000
Offline Send Email
Jun 2, 2008
1:22 pm
Messages 57171 - 57200 of 69269   Oldest  |  < Older  |  Newer >  |  Newest
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