Hi Janice, I can understand your concern and dilemna about your daughter's size. My son, who is 5, is around 4 ft tall and weighs 95 lbs. It is a constant...
... are a ... (Daniel is ... seen by ... Drs. ... case of ... Dear Kellie, thanks for your information. One of the biggest concerns with Kyle is that his sleep...
I've been to two alone and one with our son. It was easier without him and I really enjoyed it! At two of the conferences I shared a room which helped with the...
Delia, Do you think it would be worth it to go to the conference in July and speak with the docs there? I'll try to answer your questions as best I can. I...
Hi my name is Nina and I am a new member to the Sotos Syndrome group. My favorite little cousin in the whole world has sotos and I am actually giving a...
Well, at least he'll be out of there in three weeks. I can only hope that she'll become a better teacher down the road. At the very least I hope that the...
Nina, Welcome to the Sotos Syndrome group. I have attended two conferences and found them invaluable. First, you get to meet people on this list face to face....
Where you aware that your child could recognize words prior to attempting this? My son Ian is 6 and non verbal, he likes books, but there is no evidence that...
Delia, have the ENT check for enlarged adnoids and tonsils. many of our kids have had this problem. My Zak (12) snored from the time he was a baby, and had...
There is another diagnosis that is very similar to sotos that tends to have Cafe-au-lait spots. (does anyone here remember which one it is?) I remember a few...
I'll look for the list teora, it can't be too far.... I think they were for most anyone with sotos. But he didn't mention orthopedic doctors on his list or how...
FYI everyone- Nina is Jalen's cousin. Glad to see you on the group. Hopefully you'll get some info from others. They are often helpful! Talk to you soon! ...
I'm glad that he won't be there much longer. It nice that you two have paved the road for other families... If they follow the rules for the next kid with an...
Hi Nina I will try to answer some of your questions the best I can. 1. I have not been to a conference yet but hope to someday. Last year is when we found out...
maybe Bannayan-Riley-Ruvalcaba syndrome was the one I was thinking of. I looked it up and it mentioned "pigmintation on the male genitals". But I do remember...
Hi Lynn - I taught our son to read when he was 3 with the Glenn Doman method. ("How To Teach Your Baby To Read" "What To Do About Your Brain-Injured Child" -...
Hi Paige, I'm not sure what Dr. you are seeing, but I would highly recommend a pediatric nuerologist/eptologist. They will be the best source of diagnosing the...
Way to go Kellie, there is always a reason, one more time, to thank our Mother's!!!! Marlie Kellie <rottymama@...> wrote: I just wanted to update all of...
Oh yea. We find just having the parents or other consulting adults makes the conference stay focused and on task. Marlie itsgabbytoyou <gabschwarz@...>...
Hi Nina - here are my answers. (1)Yes, I attended 3 (Germany, Canada, U.S.). Very impacting as I realized how much we all had in common. So interesting to meet...
Hi Claudia, I have read some stuff by Temple Grandin and feel she assumes ALL autistic people see things like her. I have seen stuff on the mother (Toma ?)...
I am a single mom so attend with just my two kids. There are others I have seen there, some by themselves without their Sotos child because it is more...
Hi?Marlie, We are?seeing a ped. neurologist who am?very happy with.? The last bit of advice came from his assistant, over the phone.? That is why I questioned...
I just hope that she improves down the road. Kellie Rottie Mama ... From: Sotosyndrome@yahoogroups.com [mailto:Sotosyndrome@yahoogroups.com]On Behalf Of marlie...
I'm hoping that they will watch her closer in the future. Kellie Rottie Mama ... From: Sotosyndrome@yahoogroups.com [mailto:Sotosyndrome@yahoogroups.com]On ...
... Hi Lisa, I just read taht info! It is kind of hidden in the "SSSA Conference 2008 Frequently Asked Questions" link that is on the website info about the on...
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