Hi my nane is Janet, I am been a member of this group for a while, and I got useful info about SOTO a how todeal with MD, and Board of Ed , thank you. My 4...
Hi Janet, The group that provides financial assistance for families to attend the annual Sotos Syndrome conference is the Sotos Syndrome Support Association...
Hi Amber Thankyou for answering my questions. I am glad you are have a good life. I was wondering what your parents have to say about your behaviour growing...
Hi Teora. Declan is 10 1/2 years old.He started on the scheme just before Christmas. The reading scheme is phonic based and just seems to work for him.The ...
I am trying to purchase it and I have a few more questions. Are you using the Red Readers Tools to Use by Peter and Sheryl Sloan and and what is the order of...
Have any of your children been able to stop taking Depakote? My son, age 3, has Sotos and started having the myclonic seizures (sudden jerks) at age 1....
My son was on Depakote for behavior, but I know it is a seizure medicine as well. It was not the right thing for my son he was only on it for a short time, it...
Hi my son now 16 was on depakote for most of his child hood. It did the trick for controling the seizures for a very long time. Then all of a sudden it stopped...
i know someone had previously posted an article regarding service dogs for children with Autism but i caught this & thought i'd pass it along for those of you...
Clear DayJesse met with his orthopedic surgeon this morning. She checks him yearly for any curvature of his spine, which there is none, Thank God. She also...
Tammy: Our son, Grant (7) has all of those things....scoliosis, one leg longer and has worn AFO's, SMO's and now inserts! They monitor it all to keep the...
HI Jeanne, what are AFO's and SMO's? Tammy ... From: jklafleur@... To: Sotosyndrome@yahoogroups.com Sent: Wednesday, April 02, 2008 4:41 PM Subject: Re:...
Hi Teora. Declan is on the orange booster books at the moment which I presume are the first stage .I don't have a link to the publisher as I left it to the...
William (age 14) has been on depakote for about a year, with the dosage increased about 5 months ago. He has been seizure free in this last five months....
No I am in the US - Alabama -I found the orange booster books on Amazon(UK) but the monetary amount was in another currency, so I was unsure of how much i...
I found the link, tryied uncessfuly to make the international call, and have sent them an email with a few question prior to ordering the set. Thank you for...
Anyone see the program about the autistic girl, Amanda, on CNN the other night? I saw parts of it and would like to see it again. It gives me great hope that...
Sorry I missed it, but have seen another short film that you might be interested in. It could be found at your local library, it is called "Autism Is A World"....
Yes, April, I do recall seeing that one and was inspired by it also. I wonder if they have it in Spanish as we live in Costa Rica and the therapists work with...
I think I might have seen the report on Amanda, but I watched a ton of them. In fact, I posted Jacob up with the other kids pictures in IReport. Jenny On...
Hi Claudia, I didn't see any of the CNN stuff that day, but I know that if you go to Youtube & do a search for "Amanda Baggs" you can find a bunch of videos...
I remember seeing that it does come in spanish! try googling it, I also remember that any one can get a FREE copy, you just have to call in or write... ...
Too funny! I've got to spend more time around him at the next conference! Monica ... From: Kellie To: Sotosyndrome@yahoogroups.com Sent: Sunday, March 30,...
I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can see it. First, you need to join...
Thanks so much The divore decree states that Chris is supposed to visit his father on all breaks. So Chris grandparents usually pick him up and tkae in to...
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