--I didn't know they had that, is that new? Arlene ... with the Boy Scouts.... and they are chatting about letting her join Venturing, with is Coed Boy...
Susan, I'm very sorry for both of you. It's so hard as a mom to watch these types of things happen to our kids. I don't really know any great solutions other...
I'm not sure how old the Venturing program is.... its pretty awesome though. I would have really enjoyed it when I was a teenager. Go to this link here... ...
Thank you so much to everyone who replied to my post. Your support really is appreciated. I will take all your advice and use it thank- you. Shannon is a...
Hi, i have a 6 yr old little girl who doctors all think she has sotos syndrome but they keep telling me that she has to have more blood work done but her...
Do you have a geneticist? My sons' Dr. diagnosed him w/o any blood test done. They did an MRI and then diagnosed him on clinical observation. Also, if you...
... who told us that she needed to go out of states to get blood test done she just had another mri done this week while she was in t he hospital so i should...
Hey Simone B How is your little man progressing? Have you meet any other sotos kiddies from Oz. I spoke to the Childrens Hospital Genitics people and all I got...
Hi Liz, If your child has delays they should be addressing them and assessing her. A diagnosis helps, but if she is delayed and has a history of seizures they ...
... liked to be better than the boys and win all the awards!!!! LOL she is extremely competitive. Arlene ... awesome though. I would have really enjoyed it...
... Thanks for the info were in flordia she just had her first seizure this past monday they had us in the hospital all week long doing CT, X-RAY AN a short...
... Thanks for the info were in flordia she just had her first seizure this past monday they had us in the hospital all week long doing CT, X-RAY AN a short...
Liz, Since you're in Fl then Arlene (who is on this list) would be a good resource to talk to you on Florida laws regarding ieps issues. She knows the system...
Thank you so much Jason for all of your insight. My son John just turned 2 on Jan. 21st. He was diagnosed with Sotos at 3 months of age. He has a large head...
Hello everyone Gaby is now 1 year old today.she has progressed a lot. I finally was able to obtain a referal to have her evaluated for any type of therapy she...
I know you will hear from others on this list whose kids are bi-lingual. I thought I'd add what I've been told. My ex-husband's first language was spanish, and...
Happy Birthday to Gaby. Kellie Rottie Mama ... From: christina To: Sotosyndrome@yahoogroups.com Sent: Sunday, March 02, 2008 3:46 PM Subject: [Sotosyndrome]...
... will contact the doctor first thing in the am to see what we can do about her once again thanks to all of you. ... Sotos diagnosis. He will diagnose...
... telling everyone that one day my cj will be more than they ever thought she could be everyone babys her and feels bad for her cause she cant speak very...
I was influenced by the Glenn Doman program ("What To Do About Your Brain-Injured Child") and they claim any child can learn NUMEROUS languages. So we've done...
I say go for it too. Some languages, I was told by a therapist, can actually be easier for a child to articulate! English is a hard language to learn,...
I say go for it too. Some languages, I was told by a therapist, can actually be easier for a child to articulate! English is a hard language to learn,...
Hi Everyone, Thank you (you know who you all are) for posting the Feingold Diet information. I have been reading for hours and I'm going to give it a shot. It...
Hi Marlie, I'm Olivia (4)'s grandma and I am a firm believer in the Feingold diet. If you read his book, which I admit is pretty old, it is so convincing when...
Are they vitamins just like a multi kind? Kathy gernie5 <gernie5@...> wrote: Hi Everyone, Thank you (you know who you all are) for posting the Feingold...
we are watching a show tonight on momo syndrome, a rare genetic syndrome, only 4 documented cases worldwide, they tend to put on a pound a week....they...
No Super Nu Thera has more things than the average multi-vitamin. My son was on it when he was younger along with cod liver oil and we saw a lot of ...
... We are a bilingual family, and there was no way we would change the way we interact with each other and family and friends even after we knew Adi had a...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
