--I agree, if kyle writes to someone that is a private letter between you and him, I think that should stay that way also.If someone feels he is in danger in a...
I thought about that yesterday that is why i did not send it out. ... From: zed <zed@...> To: Sotosyndrome@yahoogroups.com Sent: Friday, February 1,...
Hey All, To be honest I'm not sure how talking about Kyle and his situation is off the subject of Sotos since he has Sotos and his Mom is a member of this...
Becki, I still don't have all the info I want about that clinic in MN. the doctor was familiar with Sotos (amazing!), but told our Chiropractor that because...
Jeanette and Michelle, AS you can see from my post to Becki, they are still discussing Zak's case. they might want to send us to Dallas instead, there's the...
Well said, Kelly. I will help how I can. Jeanne...mom to Grant (7) ... From: Kellie <rottymama@...> To: Sotosyndrome@yahoogroups.com Sent: Fri, 1 Feb...
Hey Donna! Well we just might have to go get an X box...LOL We have a playstation dont ask me which one and we also have nintendo (old) but I think the kids...
Hi Kellie, I must have missed a post somewhere as your email is confusing. I haven't said much about Kyle as I don't live in the States, but I read all the...
Hi Tammy, I was confused also when i read the post but if you go down the list there were comments made about how we are going off topic with our trying to...
... highschool were told ( including my nonsotos daughter) if they ever were near or standing next to someone who was holding a drug or alcohol or weapon (...
--mine like the xbox too......LOL these are all great for kids fine motor skills hand eye coordination etc...it makes them react and think on a deeper level,...
What I want is to get him that Wii. I think that'd be great because he might get a bit more exercise of the larger muscles too... but EVERYTHING costs so much!...
I know that would be great for the hand eye coordination! My stepson has one downstairs but he wont let anyone touch it. I played bowling once it was a...
I was wondering if there is any information about what kind of social activities, groups, etc...or if it was ever mentioned or covered atr a conference that...
... coming in with neck, back, shoulder etc...issues from playing the wii too long or over using muscles they really never used. They said they and the office...
I see. I don't always receive all the posts. I did not know that. I don't think it is off topic either. If someone does not want to read it, then every...
Hi Kellie There have been times over the years where I have thought posts were way off topic and was surprised that the Moderator didn't step in at the time....
I think when we have our next conference call that we should discuss the issue of a separate group then. This gives everyone another week or so to voice their...
I don't think it's a problem to have so many messages on Kyle. As long as the title tells us what the topic is we can choose to read the message or not. If you...
hello My name is christina my 11th month daughter Gabriella was newly diagnosed w/ soto's syndrome. It came as a surprise to all of us. Deep down inside I new ...
Christina, Hi. Welcome to the group. My name is Kellie. My son, Daniel, is four and has Sotos-like. Speech Therapy, Physical Therapy, and Occupational...
Hi Christina, First let me say welcome to our wonderful group!!! You have come to the right place to get information. My name is Alexis and I have a 2 1/2 year...
Hi Christina. Welcome to the group. We have a son Declan who is now 10, but was diagnosed with Sotos soon after birth.We live in the UK and are members of The...
Welcome. HI! I'm Lori. I have a 24 year old son, Justin who was diagnosed with Soto's when he was 13. Though I think he may be Soto's like. He had speech ...
Thanks for replying, well was born with many issues due to her being a premie, but she has septum cavum pelldulum, something like that,other words her septum...
Welcome to the group Christina- My son Jalen is 2 1/2 years old and was diagnosed with Sotos when he was 12 months old. Both my husband and I were aware that...
If you don't mind me asking,was she diagnosed with Sotos with a clinical diagnosis or with the genetics test? Lori In a message dated 2/4/2008 12:12:35 P.M....
Welcome Christina and Gabriella! My name is Jeannette and I have a son who is 15 going to be 16 in march! Sweetest child I am telling you!! I can say that...
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