Jenny, Does he seem ill in any other way? Sorry it's taken me so long to respond. My Mom is in town so I have limited access to email right now. Anyway, he...
Maxine, Happy New Year to you as well. May it be a great year for all of us. Kellie Rottie Mama ... From: maxine powis To: Sotosyndrome@yahoogroups.com Sent:...
Susan, Thanks. I hope you have a wonderful New Year. Kellie Rottie Mama ... From: shannick145 To: Sotosyndrome@yahoogroups.com Sent: Monday, December 31, 2007...
Michelle, Thanks for the input. We actually live in North Carolina so it's fairly warm here most of the time. I feel in my gut that it's probably medication...
Monica, Wow a bump that never went away? Poor girl! Kellie Rottie Mama ... From: Monica Boers To: Sotosyndrome@yahoogroups.com Sent: Monday, December 31, 2007...
I know. What makes it worse is that my dad was carrying her and fell outside and her head hit the cement. I just saw him over x-mas and he said, did Megan...
Our family plans on attending the conference at Niagra Falls in July. We have never attended a conference, so we haven't paid any attention to how to register....
Hi all-- I introduced myself here a while back, but have been a lurker ever since. I've been reading with great interest for the last 2 months. That was about...
Poor guy. I hope he gets over it. Kellie Rottie Mama ... From: Monica Boers To: Sotosyndrome@yahoogroups.com Sent: Tuesday, January 01, 2008 8:10 PM Subject:...
Hi! My son is having some problems with his eyes. It started in October.He had bumps on his eye and his eye (right) was red but with no drainage. I took him...
Hi April Kyle has sleep apnea and is on a cpap machine. When they tested him the one thing that stuck in my mind is that he never got past level 2. He also...
hi, please can you hep? my little boy thomas has sotos syndrome he is coming up six year old in march and he can only speak a few words, mam, dad and car. i've...
Hi Jeanette. Devon was on a sleep apnea machine until he was 15 or so months. He would quit breathing and not start again until CPR was done. He had...
... would of posting that on the doctor review on the internet!!! That is sad when you are trying to help your baby and knowing something is wrong even before...
Hey April you know more than me!!! Kyle when he was little stopped breathing several times. He was on a monitor. At that time they never did a sleep test on...
Daniel's Pediatrician had her Nurse call me twice today to get all the information and ask some questions and is now deciding on if she wants to order blood...
April, My mom has eye allergies and for her they are recurring (not one time as your Dr. indicated). I know that she has drops that she uses, but I am not sure...
Hi April, We go through the same thing with Aidenn with his eyes. His eyes get really red, bumpy, itchy, and really swollen but there is never any drainage. We...
... hi, sorry its took me so long to reply i havn't been on the computer all over xmas. thankyou for your message and saying thomas is adorable i tried to pick...
Here's some general conference information. The SSSA will post more detailed information on www.sotossyndrome.org in February. 2008 SSSA Annual Conference July...
Hi Kelly, Eliezer is three. I have pictures of him and his brother in the album titled "Eliezer and Meir Schmelczer". Eliezer has been seeing a geneticist...
... album ... old ... Sotos) ... lol. ... test ... a ... photo's ... hi rivka thomas hasn't had any other tests apart from the blood test, i've just got the...
Hi Michelle, thanks for your knowledge! I just got off the phone with the Dr office, they said it is not allergies, but an allergic reaction. At first we...
Hi I have posted today about this subject, but have another question for all the parents that have kids with sleep apnea. My son has both kinds of sleep...
... kids should that will go up and above for our children to rule things out, we need to remember on top of sotos they can get things normal and unnormal as...
... from canada? I know the rules are getting stricter every year. Arlene In Sotosyndrome@yahoogroups.com, Michele Harding ... more detailed ... adults and...
Hi Wendy, waiting is hard. It is probably going to take a few weeks to get back. Even is it comes back with no NSD1 abnormality, it does not "rule out" sotos...
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