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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 53143 - 53172 of 69269   Oldest  |  < Older  |  Newer >  |  Newest
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53143
... summer and I am not going anywhere where it is that cold in the winter, I moved away from that.......It is in the 80's here in florida today, hope you...
abjkv99
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Dec 1, 2007
1:15 pm
53144
... Thats funny how you describe it.... a drunk little old man!! Fits perfect too, kristopher was like that, and yes they do sometimes need pt on and off of...
abjkv99
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Dec 1, 2007
1:17 pm
53145
Hi Becki, we had our 5 winners on the books but I still have 10 of them left. I was going to put 5 on ebay and the rest to be auctioned at the conference. But...
Jeannette VanDenberg
jeannette.va...
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Dec 1, 2007
1:28 pm
53146
... wrote: Hi Maxine, My son has very poor reflexes too. He has virtually none on his right side and was recently diagnosed with right side dysfunction. He has...
Melanie
kstategirl68
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Dec 1, 2007
1:55 pm
53147
hi melanie,hows zachary doing now in all areas? hope you dont mind me asking! michael cannot walk anywhere without someone by his side in case he falls,bumps...
maxine powis
mxnpowis
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Dec 1, 2007
6:06 pm
53148
Shirley, Welcome to the group. My name is Kellie. My son, Daniel, is almost five and has Sotos-like. He has problems with Asthma and his immune system is...
Kellie
rottiemamadogs
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Dec 1, 2007
6:15 pm
53149
maybe it is typical of sotos,im just not sure if michael wii co-operate with the exercises etc! it will be fun,take care,maxine uk Kellie <rottymama@...>...
maxine powis
mxnpowis
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Dec 1, 2007
6:16 pm
53150
hi pam,i KNOW ,docs drive me crazy sometimes! im having a bad day 2day,3 loads of washing,ironing,hoovering chilren need i say more!! on top of all this my...
maxine powis
mxnpowis
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Dec 1, 2007
6:36 pm
53151
kellie,michaels EXACTLY the same,its the hightlight of the week when they come for the rubbish! take care,maxine uk Kellie <rottymama@...> wrote:...
maxine powis
mxnpowis
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Dec 1, 2007
6:37 pm
53152
I don't really have any advice about how to help him. Just some warnings. Behavioral treatment is like a hammer - not everything is nail, unfortunately many...
abnormaldiversity
abnormaldive...
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Dec 1, 2007
11:08 pm
53153
I don't blame you- it has been snowing nonstop today!! Michelle...
michelle_eastey
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Dec 2, 2007
2:37 am
53154
Dear Shirley, My name is Tammy and my son Hunter will be 3 in January. He was diagnosed with Sotos this past July. At this point I don't know if he is...
ccnvcabin@...
smashsis
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Dec 2, 2007
5:59 am
53155
Hi shirley.. I'm jenny.. My son is jacob. He is 11 now. At 2.5, I started teaching him sign after he had his spec ed eval. Jacob had 3 words in his...
Jenny Heater
jennyheater
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Dec 2, 2007
8:47 am
53156
hi cindy,i read your post about what you are going through with jonas,he sounds VERY much like michael,michael is now 3 but he too could not keep still or keep...
maxine powis
mxnpowis
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Dec 2, 2007
11:57 am
53157
Hi when Destiny was born they told me that she would never walk or talk. Around 21/2 she started walking, and said a couple of words, though they were barely...
Shirley Hoover
hope41599
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Dec 2, 2007
2:06 pm
53158
Hi Shirley....      Wow!  You've gone through alot with her!!!  Jacob at 11, is about 4'11" <somewhere in there, he's up to my chin and I'm 5'6">  and...
jaheater3@...
jennyheater
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Dec 2, 2007
2:47 pm
53159
... HI, one thing we haven't ever had to deal with is behavior problems, she never had that problem although the doctors always told me she probably would....
Shirley Hoover
hope41599
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Dec 2, 2007
9:34 pm
53160
Ooooh, I could see the high school volleyball team getting her..  :) On Sun, 02 Dec 2007 21:34:28 -0000, Shirley Hoover wrote ... -- WOW! Homepage...
jaheater3@...
jennyheater
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Dec 3, 2007
12:19 am
53161
Isaiah frequently complains of stomach aches. It happens mostly at night or in the morning. Anyone else experience this? Thanks. Sabrina...
sabrina.shaw74
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Dec 3, 2007
12:49 am
53162
When Zak was 5 he was about the size of most 8 year olds. He has pretty much kept pace with his older sister who is almost 3 years older than him. But now he's...
donnarlee@...
donnartleef
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Dec 3, 2007
1:05 am
53163
No...not here.... Not now that he's regular... jenny ... From: "sabrina.shaw74" <sabrina.shaw74@...> To: Sotosyndrome@yahoogroups.com Sent: 12/2/07 7:49...
Jenny Heater
jennyheater
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Dec 3, 2007
1:09 am
53164
Zak complains of this alot too, but it seems he's really constipated. ... From: "sabrina.shaw74" <sabrina.shaw74@...> ... Isaiah frequently complains of...
donnarlee@...
donnartleef
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Dec 3, 2007
1:14 am
53165
ha-ha, yeah, not when he's regular! ... From: Jenny Heater <jaheater3@...> ... No...not here.... Not now that he's regular... jenny ... From:...
donnarlee@...
donnartleef
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Dec 3, 2007
1:18 am
53166
My daughter who has Sotos syndrome is now 20 months old, i measured her yesterday and she is 88 inches tall. I cant seem to find a chart for children with...
Rob #01
fubuhawk
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Dec 3, 2007
1:52 am
53167
My son has always looked twice his actual age! LOL, that is why he is my gentle giant. He is 8 now and 5ft 5 right now. He actually holds me...
Dena Sowa
denajayanna
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Dec 3, 2007
2:40 am
53168
I have been dealing with the school lots lately, and explaining myself over and over again, being asked questions that I do not know the answers to etc. I let...
April
ahooburg79
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Dec 3, 2007
3:04 am
53169
My son will be 3 years old in January and he is 40 inches tall. You mentioned in your post that your daughter was "88 inches tall". Did you mean to say 88...
ccnvcabin@...
smashsis
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Dec 3, 2007
3:10 am
53170
Hi Ettina, Thank you so much for your advice & excellent ideas. I really appreciate it and I DO want to be so careful about this, although I am also at my own...
gypsysoulcindy
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Dec 3, 2007
4:24 am
53171
So sorry i did mean cm, sorry. xxxx...
Rob #01
fubuhawk
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Dec 3, 2007
6:38 am
53172
That's totally okay, mom's are allowed to make mistakes like that. I didn't think she could be 88 inches tall. That's like over 7 feet tall. Now that ...
ccnvcabin@...
smashsis
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Dec 3, 2007
7:18 am
Messages 53143 - 53172 of 69269   Oldest  |  < Older  |  Newer >  |  Newest
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