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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 52488 - 52517 of 59154   Oldest  |  < Older  |  Newer >  |  Newest
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52488
Hi Maxine & Cindy, When Aidenn had his Psychological Evaluation done and they came back to us with an Autism Diagnosis i was very confused. I thought maybe it...
alexis rivera
r22alexis
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Nov 1, 2007
1:58 pm
52489
William learned sign language before he spoke and I think it was helpful. First of all, he realized that he COULD communicate with other people and this...
wsilr
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Nov 1, 2007
2:31 pm
52490
I am reading this book right now, as someone mentioned it a while back. Well worth the time to read if you have problems with meltdowns. About a lower IQ...
donnarlee@...
donnartleef
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Nov 1, 2007
3:28 pm
52491
Alexis, Sign language was a good thing for Zak. He never did learn a whole lot and it was hard for him to form some signs, but it just gave him another way to...
donnarlee@...
donnartleef
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Nov 1, 2007
3:29 pm
52492
Alexis, My son, Hunter (3 in Jan.) was diagnosed this past July with Sotos. At this point we don't know if he has Sotos Like or Classic or whatever. He...
ccnvcabin@...
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Nov 1, 2007
4:25 pm
52493
Susan, What an interesting thought. I would venture to say this could be true with anyone. When I read this, I thought about myself when I am angry and I can...
Melanie
kstategirl68
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Nov 1, 2007
4:42 pm
52494
Thank You Traci, At what age did William start to speak? Did you teach him a lot of signs or just the basics? wsilr <tsilr@...> wrote: William learned...
alexis rivera
r22alexis
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Nov 1, 2007
5:16 pm
52495
I posted on this group over the summer. A geneticist had suggested that my son Michael (7/29/05) has Soto's Syndrome. Some members of this board suggested I...
cyndirustauffer
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Nov 1, 2007
5:22 pm
52496
He was taught signs starting at about 14 months, and was also in speach therapy at this time. He didn't start to mimic words in his therapy sessions until...
wsilr
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Nov 1, 2007
5:30 pm
52497
I was thinking this same thing... but was having trouble deciding how to word it. You got it! Traci ... back. Well worth the time to read if you have problems...
wsilr
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Nov 1, 2007
5:33 pm
52498
Hi, We don't have our results back yet so I can't comment on that (i.e., similarity of what you got to what we get), but am I the only one reading this who got...
Susan Brattin
sdb2956
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Nov 1, 2007
5:45 pm
52499
I was just wondering how long it took to get the results back? My son will be having this same test done. And I will let you know what his results are. ...
ccnvcabin@...
Send Email
Nov 1, 2007
5:45 pm
52500
Hi Alexis, Your son sounds like my son when he was a toddler. He was given the autism diagnosis just before he turned 3. I highly recommend sign language and...
Pam
kevsmom72699
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Nov 1, 2007
6:16 pm
52501
Oh ok.... sometimes i lose my faith and then i hear or read stories of other children who started speaking and my faith comes back. I really wish he would just...
alexis rivera
r22alexis
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Nov 1, 2007
6:17 pm
52502
Hi Susan, I guess that would be the case for almost any person who is very angry or upset. I know I have said and done some pretty stupid things while upset...
Pam
kevsmom72699
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Nov 1, 2007
6:29 pm
52503
Thank You Pam, His school started teaching him some signs and it has been a while now and he still can't seem to get it but they are continuing to teach it to...
alexis rivera
r22alexis
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Nov 1, 2007
6:30 pm
52504
If he is babbling and saying momma and dadda at age 2 that's really a good sign! That's about where William was at that age. Funny thing is he loved music and...
wsilr
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Nov 1, 2007
6:34 pm
52505
Traci laughed my head off!! Kyle did the same thing! We went through about 3 or 4 of those things! He loved hearing himself but the microphone turned into a...
Jeannette VanDenberg
jeannette.va...
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Nov 1, 2007
6:43 pm
52506
Aidenn loves music but he just starts flapping and has the biggest smile on his little face. Does your son still drool? How old is he now? Aidenn drools also...
alexis rivera
r22alexis
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Nov 1, 2007
6:51 pm
52507
Well said Traci.we used to engage Kevin in things he liked and then gradually get him to join us in our activities. It took time and patience but it...
Pam
kevsmom72699
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Nov 1, 2007
6:51 pm
52508
William is 13 now and only drools once in a blue moon... if he gets very excited about something or is concentrating hard. But now, when he starts to drool, he...
wsilr
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Nov 1, 2007
7:21 pm
52509
Maybe you can carefully drill a small hole through the tape door and main body and insert a small screw... like they do on battery compartments on a lot of...
wsilr
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Nov 1, 2007
7:24 pm
52510
Kyle is the same at age 15... only drools really small amount on the corner of his mouth if he is really focused on something.... You would not even notice if...
Jeannette VanDenberg
jeannette.va...
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Nov 1, 2007
7:35 pm
52511
Zak went through a few too! It never occured to me before that the drooling might have contributed to their doom. I just thought he wore them out! LOL ... ...
donnarlee@...
donnartleef
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Nov 1, 2007
7:37 pm
52512
I was a little concerned about that myself, and actually sent a message to our genetics counselor to see if she can clarify this at all. This is our first...
cyndirustauffer
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Nov 1, 2007
7:37 pm
52513
Lilian, you are an inspiration to all of us! Thank you for your willingness to share your experiences and hope! There are days that I think the whole world...
bjtlcluff
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Nov 1, 2007
8:51 pm
52514
OK...This may sound stupid, but it is working for us! Nothing else worked. We started with the pee and made a star chart with 20 spots. Each time he peed in...
bjtlcluff
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Nov 1, 2007
9:06 pm
52515
It sounds to me like Michael is a one-off judging by the words "not previously reported". I have been told my daughter is probably a one- off too, so welcome...
shannick145
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Nov 1, 2007
9:16 pm
52516
Thank you to everyone who replied to this. I can see what you are all saying and you have explained it better that the speaker at the seminar! I will try to...
shannick145
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Nov 1, 2007
9:23 pm
52517
His test was done September 5th, and the report is dated October 19th, although I did not hear from the genetics counselor until October 29th... ... son will ...
cyndirustauffer
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Nov 1, 2007
11:37 pm
Messages 52488 - 52517 of 59154   Oldest  |  < Older  |  Newer >  |  Newest
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