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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 51678 - 51707 of 58782   Oldest  |  < Older  |  Newer >  |  Newest
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51678
Michelle! You are an awesome mom!!! I can just see Jalen! It could be that he was acting up because it was something different than normal. Kyle use to get...
Jeannette VanDenberg
jeannette.va...
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Oct 1, 2007
10:40 am
51679
Hi Michelle It is brilliant that the other mums and the teacher were so positive towards Jalen after the music lesson. So often on here it is said how others...
shannick145
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Oct 1, 2007
12:10 pm
51680
That's great that everyone at the class was so supportive. I can empathize with the upper body workouts... that's how much Landon weighed when he was 2 (and...
Wendy Lebel
wendyslebel
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Oct 1, 2007
12:26 pm
51681
Hi Michelle, Go back next week…he may do better and recall what it was like from this last visit!! I am glad to hear the other parents and teacher were...
Pam
kevsmom72699
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Oct 1, 2007
12:46 pm
51682
This topic is bringing back memories.  We tried several music classes--one of which we loved.  Another was just too "up and down" for us.  The kids would be...
paigelw@...
paigescooter
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Oct 1, 2007
1:16 pm
51683
Oh Wendy that is why we are so strong all our big MUSCLES!!! LOL Are kids sure do give us a work out! Laugh because I can beat my 18 year old 280lb teen boy...
Jeannette VanDenberg
jeannette.va...
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Oct 1, 2007
2:04 pm
51684
Hi everyone, I just got some of the best news on Devon and wanted to gloat. Every three years the school has to re-do some testing for his IEP goals. The...
April
ahooburg79
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Oct 1, 2007
2:06 pm
51685
I am a whole 5' tall so I definitely have my work cut out for myself too!! Jak is already 36 lbs and he is 18 months, I can only imagine what the future will...
Darcy Bjerke
darcyboos
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Oct 1, 2007
2:09 pm
51686
Darcy I am only 5'4" and man let me tell you, its amazing how much we can pick up hold and carry when you think how big our kids get when they are little!!!...
Jeannette VanDenberg
jeannette.va...
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Oct 1, 2007
2:25 pm
51687
That's awesome! You should be so proud of him!!! ~ Wendy P.S. He gives me hope for my 4 year old who can barely handle 2 1/2 hours of preschool (cries and...
Wendy Lebel
wendyslebel
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Oct 1, 2007
2:48 pm
51688
My son Christopher drooled alot also. When he was younger we used a lot of bibs, changed his shirt often, tried to make him aware of his drooling and the need...
Teora Henderson
chrismyhe
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Oct 1, 2007
2:59 pm
51689
Wendy, this is Devon's forth year of school. His first year he only went 2 hours, twice a week, the next year he went 2 hours three days a week, last year he...
April Hooper
ahooburg79
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Oct 1, 2007
3:13 pm
51690
Yea for Devon! and you too mom- you work hard for all of his successes! Michelle...
michelle_eastey
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Oct 1, 2007
3:19 pm
51691
Thanks for all of the positive feedback- I knew I would have to give myself a few days rest after the music class to make a decision. I was just really...
michelle_eastey
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Oct 1, 2007
3:23 pm
51692
Its so nice when you can get him in such a good class where everyone understands! AWESOME!!! michelle_eastey <michelle_eastey@...> wrote: Thanks for all...
Jeannette VanDenberg
jeannette.va...
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Oct 1, 2007
3:32 pm
51693
April,    How wonderful!!!!!  Pat Devon on the back for me... Tell him I said Good JOB!!!!! Jenny On Mon, 01 Oct 2007 14:05:10 -0000, April wrote ... -- ...
jaheater3@...
jennyheater
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Oct 1, 2007
3:50 pm
51694
Hi April That's wonderful news.I am so pleased that Devon has made such excellent progress. Well done to both of you. Susan UK ... to ... his ... on ... He ...
shannick145
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Oct 1, 2007
4:56 pm
51695
HI Michelle, Dont feel bad, my sister is a music teacher, she teaches private lessons, and tried to teach a class of 3,4,&5 year olds she gave it up in less...
Robin Griffith
r_griffith82
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Oct 1, 2007
4:58 pm
51696
Hi April, That is excellent!!! Woo-hoo for him!! Pam :-) ... From: Sotosyndrome@yahoogroups.com [mailto:Sotosyndrome@yahoogroups.com] On Behalf Of April ...
Pam
kevsmom72699
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Oct 1, 2007
6:15 pm
51697
Great thread!! Gracie is a champion drooler. This is a topic I always interested in working on. Recently Gracie was evaluated by an OT and SLP. They both gave...
graceoutof4
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Oct 1, 2007
6:23 pm
51698
Michelle , Isn't shocking how small those other kids are? I always forget till I see Gracie with her peers. The music class sounds like fun and the people seem...
graceoutof4
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Oct 1, 2007
6:35 pm
51699
Hi my name is Tammy and I am new to the group. I live in Nevada, I am married and we have 5 sons. Their ages are 23, 20, 19, 18 and 2 1/2. Our 2 1/2 year...
ccnvcabin@...
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Oct 1, 2007
7:35 pm
51700
Hi tammy I'm jenny...I have 11 yr old jacob. Welcome to the group. I'm going to jump right in and say that the earlier that your son is in school, the better...
Jenny Heater
jennyheater
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Oct 1, 2007
7:56 pm
51701
Tammy welcome! Is he classic sotos? I have a classic sotos son age 15 now. I am remarried and have 6 kids Ages - 24 (Natalie) - 21 (Talya) - 20 (Garret) - 18...
Jeannette VanDenberg
jeannette.va...
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Oct 1, 2007
9:17 pm
51702
Hi Tammy and welcome to this group! I have a almost 6 yr old dx'ed with Weaver Syndrome, it is very similar to Soto's. I can sure relate to those fears...I had...
April Hooper
ahooburg79
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Oct 1, 2007
10:08 pm
51703
Hi tammy, I'm donna. My son Zak is 12 now. Even though I felt somewhat like you do (I was a stay at home mom and had four older ones and even homeschooled some...
donnarlee@...
donnartleef
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Oct 1, 2007
10:24 pm
51704
Tammy, It's natural to worry when we first send our kids out into the world "alone". I was lucky because William's preschool had a big two- way mirror window...
wsilr
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Oct 1, 2007
10:53 pm
51705
Hi Tammy, Welcome to the group. My name is Tammy also and I also have 5 children, 3 girls and 2 boys. My 6 year old boy, Jesse, has Sotos. I am a stay at...
Tammy Burtt
tammy_jesses...
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Oct 1, 2007
11:06 pm
51706
Hi guys, I am hoping you can give me some insite on crawling and all that good stuff. Kason can crawl but he crawls funny always keeping his right leg up and...
Robin Griffith
r_griffith82
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Oct 1, 2007
11:58 pm
51707
That is wonderful April, give Devon a big hand for me. April <ahooburg79@...> wrote: Hi everyone, I just got some of the best news on Devon and...
Robin Griffith
r_griffith82
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Oct 2, 2007
12:18 am
Messages 51678 - 51707 of 58782   Oldest  |  < Older  |  Newer >  |  Newest
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