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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 51056 - 51093 of 69280   Oldest  |  < Older  |  Newer >  |  Newest
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51056
where do you live jenny? maxine Jenny Heater <jaheater3@...> wrote: I didn't know that... I guess they do sweep it under the rug. In our area....
maxine powis
mxnpowis
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Sep 1, 2007
10:54 am
51057
nope shes not next time i see her im gonna act like theres a huge bad smell coming from around her!!! take care,maxine Kellie Siers <rottymama@...>...
maxine powis
mxnpowis
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Sep 1, 2007
11:03 am
51058
hi beth ,i hope your feeling better,my partners backs pretty sore too! at least it wasnt worse,im just glad hes ok and that you are too! take care,maxine uk ...
maxine powis
mxnpowis
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Sep 1, 2007
11:11 am
51060
I'm in the metro Detroit area, Michigan.  I'm about 30 mins from the border of Canada. On Sat, 1 Sep 2007 11:54:10 +0100 (BST), maxine powis wrote ... To help...
jaheater3@...
jennyheater
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Sep 1, 2007
1:41 pm
51061
It is true they are not "lazy" but struggle with low muscle tone. It's a lot of effort for them. Find ways to put him in positions in which he is rewarded when...
hubby4kids
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Sep 1, 2007
1:50 pm
51063
In a message dated 9/1/2007 10:42:23 A.M. Central Daylight Time, abjkv99@... writes: does anyone know if there are alot of long term issues with kids...
plinkette@...
PLINKETTE1
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Sep 1, 2007
4:22 pm
51064
I've attended the last three conferences and I honestly don't remember the subject coming up. At this years' conference there was a young lady who spoke to us...
Kellie Siers
rottiemamadogs
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Sep 1, 2007
7:17 pm
51065
all i know is that with kyle even though he has the mind of a 12 year old with an iq of 70 they are trying him as an adult with no problems what so ever..it...
sherri oneal
josokoso
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Sep 1, 2007
7:43 pm
51066
What state are you in? Have you tried contacting the State's attorney's general's office,or your state senator or Representative, or your US Senator or ...
plinkette@...
PLINKETTE1
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Sep 1, 2007
8:44 pm
51067
In a message dated 9/1/2007 2:49:10 P.M. Central Daylight Time, josokoso@... writes: kyle was diagnosed until he was 12. thats a long time in wasted...
plinkette@...
PLINKETTE1
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Sep 1, 2007
8:51 pm
51070
It really is sad when the system breaks down. I really do feel for you and appreciate you sharing. I've been wandering for a while how Kyle is fairing and how...
Kellie Siers
rottiemamadogs
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Sep 1, 2007
11:30 pm
51071
Hi Everyone! It's been a long time since I've posted but I do check in regularly to see how the kids are doing. A quick update on Aaron. His overgrowth...
woodeliz
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Sep 2, 2007
4:52 am
51072
Hi! Here in New York the speech therapists I got through early intervention are SLP's. I thought it was like that everywhere. From reading all these posts, I...
Rivka Biller
rschmelczer
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Sep 2, 2007
7:48 am
51073
It is clear from the info you provided Sherri, this is about the system NOT!! you or your parenting. It is the system who is responsible for this tragedy. They...
Grayce/Lynne's Mom
hollyreese
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Sep 2, 2007
4:46 pm
51074
The AMBER ALERT legislation is only in the US, I believe. I have registered them with Medic-Alert www.medicalert.ca) & they wear a bracelet which includes my...
Grayce/Lynne's Mom
hollyreese
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Sep 3, 2007
12:07 am
51075
I believe the AMBER ALERT is only in the US. We are in Canada, I have registered my girls with the MEDIC ALERT (www.medicalert.ca)service. Emergency personal...
Grayce/Lynne's Mom
hollyreese
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Sep 3, 2007
2:22 am
51076
Hi Everyone, I haven't been online since January when I was peppering everyone with questions about scoliosis prior to my son Charlie's operation. I'm...
bellsharyn
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Sep 3, 2007
3:27 am
51078
... can take it off at home they also give you a sticker for the bedroom window of the person and one for your car so medical personnals will be aware. Anyone...
abjkv99
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Sep 3, 2007
12:12 pm
51079
How will i get the form for the medic alert. ... From: abjkv99 <abjkv99@...> To: Sotosyndrome@yahoogroups.com Sent: Monday, September 3, 2007 8:08:09 AM ...
renee hasse
renee_hasse
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Sep 3, 2007
5:25 pm
51082
Congrats on the new baby! Kellie Rottie Mama ... From: bellsharyn To: Sotosyndrome@yahoogroups.com Sent: Sunday, September 02, 2007 11:24 PM Subject:...
Kellie Siers
rottiemamadogs
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Sep 3, 2007
6:16 pm
51083
Daniel has had an SLP since he was one years old. However, we have private insurance that pays for it so I don't know about the EI program here in NC. Kellie ...
Kellie Siers
rottiemamadogs
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Sep 3, 2007
6:47 pm
51084
My Jalen (now 2) was the same way. He did have some low muscle tone, but also fluctuated with the tightness in his arms. I remember, when he would drink a...
michelle_eastey
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Sep 4, 2007
4:53 am
51085
Does anyone here have a problem with a sibling not wanting their friends around because the sibling with soto's might have a melt down or embarrass them? A...
james candy
jkcandy2000
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Sep 4, 2007
12:10 pm
51086
Yes, we sure do! Our son, Johnny, also 9, gets frustrated easily and has meltdowns - his is in the form of hitting his head on the desk or wall. He is...
hubby4kids
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Sep 4, 2007
1:28 pm
51088
Arlene - you said that so perfect! When Kyle was very little we explained to Justin Kyles brother what Sotos was and how different his brother would be and...
Jeannette VanDenberg
jeannette.va...
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Sep 4, 2007
4:19 pm
51089
Just a note about siblings...I am currently reading a wonderful book entitled "Being the Other One" by Kate/Katie Strohm. She grew up with a sister with CP....
jklafleur@...
jklafleur
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Sep 4, 2007
4:42 pm
51090
this was posted by someone on a bulletin in myspace and i thought i'd share in case any of you (or someone you know) could use it... Date: Sep 4, 2007 12:51...
Monee
monee_dartt
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Sep 4, 2007
7:57 pm
51091
I am testing this as I cannot post anything. Tammy...
tammy_jessesmommy
tammy_jesses...
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Sep 5, 2007
12:28 am
51092
Having pain like Sprains or Strains? Use Skelaxin! This Product is a muscle relaxant drug used to relax muscles and relieve pain caused by strains,...
reggie_mohan
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Sep 5, 2007
5:31 am
51093
Hi Kathy, I have a couple of suggestions for meltdowns. The first is the book (and i believe there is also a video/dvd out there) by Dr. Ross Greene, called...
Susan Brattin
sdb2956
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Sep 5, 2007
9:46 pm
Messages 51056 - 51093 of 69280   Oldest  |  < Older  |  Newer >  |  Newest
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