Hey Michelle if you do the floor thing he can jump all he wants and will be safe! Once Kyle started getting out of bed and into bed he would lean over the...
hi everyone havent had a chance to get on the site for a long time but im back demi seems to be doing better now she loves early learning school that she is...
Hi Jodie how old is Demi? I would suggest taking her to the Dentist. It sounds like she is pretty young if she is losing teeth. The reason I say this is...
... because ... teeth ... out ... to ... Make ... has ... hole ... time ... learning ... also ... have ... as ... to ... lost at the front not sure if there is...
Hey Jodie, dont worry about the diaper thing. It took Kyle a very long time to get trained. I finally was able to train him during the day before he started...
... long time to get trained. I finally was able to train him during the day before he started first grade. But he continued to have problems in the evening....
Jodie, I understand completely. Kyle also needed to be sedated during proceedures on his teeth, mri you name it. He is better now it seemed to be more when...
I have a myspace account for the beauty pageant we have to raise money for us to attend the conference. Anyhow, there are pics of Sophie and stuff on it if...
... Arlene & Kristopher ... had Scouts tonight, so he got to share cup cakes with the troop. ... Friday. He got to pick where he wanted to eat his birthday...
--Kristopher just had a physical last week he had a reaction the the 2nd chiken pox booster, he had the first when he was 4, they now reccommend the 2nd one,...
-- that's funny hooters.....we have hooters here,they never go because they like the wings at this other place better.The went in middle school after the...
Sarah- Hi- I am Kim with Faith 17months sotos. I just looked at your myspace account. Sophie is adorable!!!! What a great idea to raise money. We are not...
I had to laugh about Kyle's "right mom?" That is also one of William's signature phrases. It's kind of nice to have one kid that still thinks my opinion is...
Jeannette, Individual members have done fund raising for the conferences through golf tournaments, car washes, bake sales, plant sales, etc. SSSA can also...
Its fun being right for at least one of my kids... ha ha. 2 years ago Kyle was really sick and they could not figure out what it was. He was not with it...
Thanks Kristen! Do you have Donna email address. Here are my thoughts... when we do individual we have to claim the money as personal income. Also when you...
good idea. We are remodeling our master bedroom- so in a few days- we will all be in our own rooms again and that is why I 'm looking for ideas. Michelle ... ...
On this past Monday, my 5 month old son was diagnosed with Soto's Syndrome. We have not had the genetic testing done as of yet so we don't know how mild or...
I know how overwhelmed/depressed you feel. We're waiting for a dx, but think that Sotos is the dx we'll get. I've known in my heart that there was something...
Hi! You should feel lucky that God has blessed you with a special child. I went through the very same feelings you are going through. But I did not know that...
My son is not old enough (nor has he officially be diagnosed) but I want to say what a testimony that you are seeking out ways to benefit this child. That is...
First off... Welcome to the group.. I'm Jenny..and I have 11yr old Jacob and 3 greyhounds. It is normal to go through some depression... or what I refer to as...
--everything you are feeling is perfectly normal, it is hard to understand why and howcome you have had a child that is different, everyone on this site has...
Hi, My son is 18 months old and the geneticist that he is seeing feels that he may have Sotos syndrome. We can't afford to do the CSA test and insurance won't...
Hi Welcome to the group.My name is kerry.I have son called Tristan.I think we all batle with bouts of deppression.In fact i have recently been put on...
Hi I was wondering whether any parents on this site have experienced similar issues. Our eldest son Thaafir (non-sotos and 6 years old) has been displaying...
Hi Yes.My son Tristan displays aggressive behaviour.My son went to the school psychologist and he did some behaviour management with him.The school also has...
We're still in the diagnostic process as well, so I'm far from an expert, but I can share our experience so far. We just received the geneticist's report, and...
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