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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 49035 - 49064 of 69268   Oldest  |  < Older  |  Newer >  |  Newest
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49035
-Great, sounds like it will work out , better for them to be off guard than you being tricked into something you really didn't want for your child. Arlene ... ...
abjkv99
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Jun 1, 2007
10:58 am
49036
hi michael has at least 8 ,and you can clearly see more are starting to develop,his are siuated mainly on his back ,tops of his legs and he has 3 on his...
maxine powis
mxnpowis
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Jun 1, 2007
1:02 pm
49037
Hi, Glad you had a good experience!! Ours have always gone smoothly. I feel for those who have had bad experiences. Pam :-) ... From:...
Pam
kevsmom72699
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Jun 1, 2007
1:50 pm
49038
Dear Zoe, Thank you so much for being so thoughtful. It really helps. I'm thinking about posting a picture of my family........your photo is beautiful. Hope...
The Syndromes
thomes1993
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Jun 1, 2007
2:56 pm
49039
Hi, I'm glad it went well. Ours usually goes well too, or at least nothing I can't get if persistant. Marlie rschmelczer <yyandrms@...> wrote: Hi! The...
marlie gernhardt
gernie5
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Jun 1, 2007
3:50 pm
49040
Hi Kellie, Thanks for the great laugh!!! ROTF!!! My son uses my Blistex.I don't think he could catch my cat though!! LOL!! Pam :-) ... From:...
Pam
kevsmom72699
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Jun 1, 2007
5:13 pm
49041
I took merris to the neurologist(spelling) to get some results from some test he ran well the good news is all those test came back good. So then he tells me...
teana
maesmommie
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Jun 1, 2007
5:49 pm
49042
... from ... good. ... he ... that ... small for ... bangs and ... months ... height ... shes ... are ... everything I ... much ... help ... her ... collage ...
abjkv99
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Jun 1, 2007
6:08 pm
49043
... from ... good. ... he ... that ... small for ... bangs and ... months ... height ... shes ... are ... everything I ... much ... help ... her ... collage ...
abjkv99
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Jun 1, 2007
6:09 pm
49044
WOW. It amazes me how some doctors can be downright CRUEL. I'm so sorry you had to go through that. We've been there with a few doctors as well and it...
Julie Barr
energy_train
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Jun 1, 2007
6:11 pm
49045
... would call and see if I could see a different neurologists in the practice and tell them exactly what you feel, also if genetics felt sotos and they are...
abjkv99
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Jun 1, 2007
6:17 pm
49046
My Son Jesse is 6. Although his sister is 6 weeks older than him (she has FASD), I never realized how big Jesse was. He is skinny, but a last check, he was...
Tammy Burtt
tammy_jesses...
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Jun 1, 2007
6:24 pm
49047
Hi Everyone, Thanks so much to those who responded to my last post about fundo or no fundo. We had a gastric emptying study done on Wed. and the results were...
energy_train
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Jun 1, 2007
7:02 pm
49048
Teana, My .02 get a different Dr. Who does this Dr. think he is to tell you not to expect much from your child? What a jerk! Yes, they are big all over. I...
Kellie Siers
rottiemamadogs
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Jun 1, 2007
7:09 pm
49049
That doctor was a tool!  He opens his mouth and stupid fell out!  I can't say how a classic Sotos body should be.  Jacob his mildly sotos-like... he had a...
jaheater3@...
jennyheater
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Jun 1, 2007
7:13 pm
49050
Hi Teana, You are soooo right. Lydia's mesurements were all in-sink proportionally at the 90-100 percentile from 6 months on. At one year, she was the overall...
marlie gernhardt
gernie5
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Jun 1, 2007
7:46 pm
49051
Hi, Try a geneticist if you can.  Or even a developmental pediatrician.  Our neurologist experience was unfortunately along the lines of yours.  But the...
paigelw@...
paigescooter
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Jun 1, 2007
9:50 pm
49052
Teana, The nuerologist in our area is a real tool as well. We avoid him as James doesn't have any problems that would require him to see one at this point....
bullzqt
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Jun 1, 2007
10:21 pm
49053
yeah she was sitting right there the whole time fortunatly she was busy coloring, but I know she caught some of what she said because when we got home she made...
Jason Childress
maesmommie
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Jun 2, 2007
1:02 am
49054
I want to thank everyone that has responded. Im glad to know that not everything a nuerologist says is correct and that the geneticist will have a better...
teana
maesmommie
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Jun 2, 2007
1:11 am
49055
Your appointment sounds horrible! I would definitely find a new Dr. Since your geneticist seems helpful and supportive, you may want to call her and ask her...
michelle_eastey
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Jun 2, 2007
3:04 am
49056
Just a question- Does anyone's Sotos child have frequent bowel movements? Lately Jalen has been having bm's like crazy. He must have went approximately 6-8 ...
michelle_eastey
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Jun 2, 2007
3:08 am
49057
Hi - We went through almost complete gastroparesis with our oldest, so I understand your struggles. She also had severe reflux as a result. As for our own...
Kelly Weiderman
kellyw8863
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Jun 2, 2007
11:49 am
49058
Wow! That sounds great! They offered you so many services too, I'm glad that it all went so well for you. It must be nice to have it over & know the plan &...
gypsysoulcindy
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Jun 4, 2007
12:17 am
49059
Sotos kids ARE big all over. They have unusually large hands and feet. Our daughter was the size of a 10 year-old when she was five. We didn't have a...
anne_mcclard
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Jun 4, 2007
3:16 am
49060
Hi everyone: First of all I want to thank you for sharing all your experiences. I apollogize for my english but my native language is Spanish. My name is...
Susana Llerena
spllerenat
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Jun 4, 2007
4:26 am
49061
hi michelle,michael goes about 4 times a day,then other times he wont go very often,i know it sounds awful but his poos are huge ,it makes my eyes water just...
maxine powis
mxnpowis
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Jun 4, 2007
9:38 am
49062
hi julie,my son has severe reflux since birth,hes 3 in september,ive tried so many things,hes had ranitidine,gaviscon,a special thickened formula to drink,hes...
maxine powis
mxnpowis
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Jun 4, 2007
9:43 am
49063
I don't normally do these things but since I know this is a real case I thought I'd pass it along. Kellie Rottie Mama Dogs Pass this email on to everyone in...
Kellie Siers
rottiemamadogs
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Jun 4, 2007
11:18 am
49064
hi can anybody tell me is it normal for children with sotos children to lose there teeth early my 4 year old daughter demi i have just found a loose tooth and...
jodie
demikinser
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Jun 4, 2007
11:30 am
Messages 49035 - 49064 of 69268   Oldest  |  < Older  |  Newer >  |  Newest
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