... committed to a fundo operation, you may find that they find something else that works,you may find they have something they can give for reflux that may...
Julie, I will gladly answer to three of your questions. Regarding apraxia, it means that there is a deficit by which a person cannot execute the sequences of...
to the lady in cambridgeshire , My son is now 13 I used to have all these problems however I fond been strict really does work and been consistent , my son and...
Others have already given you good answers. I'll just add a few bits of advice. Our son became autistic at age 26 months - we lost eye contact with him and he...
It is also clearly part of the autism mystery! You can read up on how to help and cope with literal language on any of the autism web sites.Both my kids have...
Spencer had a similar problem that was diagnosed as Eosinophilic Esophagitis (s/p?) by an endoscopy back in Oct. of 2005 and also as having food allergies....
Having a diagnosis of NLD and having difficulty with abstract thinking is certainly true. They think in literal or concrete terms most of the time. My...
Just a quick update Liams results came back - they were negative for the NSD1 which I might have already posted. They came back positive for the PTEN gene, but...
THANK YOU TO EVERYONE who has given me so many great ideas. Lisa, we are on the flovent and singular- it didn't make any chances for us so we went off the...
AS for the Autism spectrum yes we just got the PDD added to us and I am sure that at 22 months we showed signs of it but just never added it to our spectrum....
As Sasha started school in September, all children in her school have a "health check" carried out. I meet the School Nurse at one of Sasha's meeting and she...
Just to share. We will be 10 soon weight is 114 lb. with a height of 4 ft. 11 in. (above the 95%). HC is 60cm. I expect a growth again soon just because our...
Hi Jacqui It seems that Sasha is following what I have read in most literaure, that her height is slowing down after 5 years old. I thought you might be...
HI Julie Re your autism question - Shannon at 22 months was screaming (not crying, but opening her mouth and letting out ear-piercing screams), constantly...
Hi, first of all, I must say it is very interesting to read and see that there are others that share the same problems and hopes with our children. I am a...
We were living in Germany when our son with Sotos was born (1997). I attended a Sotos syndrome conference in Mainz. Are you aware that there is a Sotos...
Welcome to the Group. My name is Kellie. My son, Daniel, Sotos-like and was diagnosed just short of his first b-day (he's four now). There is a lot of...
My son Emo is almost thirteen and I haven't checked his weight in some time, but he is over 100 lbs, and is, I estimate, somewhere in the vicinity of five...
Note: forwarded message attached. ... Now you can have your favourite RSS headlines come to you with the all new Yahoo! Mail. Just in case you've had a rough...
I recently made a decision to better my chances of my son walking because the doctors diagnosed him with blount's disease and he was having so much difficulty...
I recently made a decision to better my chances of my son walking because the doctors diagnosed him with blount's disease and he was having so much difficulty...
Laura, You made a decision to do something that you believed would help your son. Don't give yourself such a hard time. We make decisions everyday as parents...
Hi Laura One of the hardest things about being a mum is having to make important, and sometimes life-changing, decisions about our children. We are not...
Hi Laura, I can understand your doubts if you've done the right thing. We're looking at a nighttime cast to stretch out tight heel cords which leads to my...
... not chosen this surgery his condition may have worsened or caused more problems when he was older as an adult. I also agree 3 months is just too soon to...
Just wondering, I am trying to figure out if there is any chance my baby has Sotosyndrome. I tend to make doctors mad with all my guessing, when I have no idea...
It sounds very possible. I'd definitely discuss it with a doctor and possibly ask for NSD1 testing (the gene test for Sotos). Also, the dark discoloration...
Very similar to our child. The facial features are very important for knowing if she has Sotos or not. Some children don't show it till around 2 years old - as...
--ask for a referral to a genetics doctor and neurologist, she shows signs of motor delays so will need speech, occupational and physical therapy , most kids...
I tend to make doctors mad with all my guessing, when I have no idea what I am talking about. If the Drs. are getting mad at you then you might try switching...
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