We are considering taking Johnny out of school to homeschool him. He's not at the social nor academic level to benefit from what the school has to offer....
That is a personnal descion, I believe if it is not working then you have nothing to lose by trying something else, that is what this syndrome is about, keep...
... I thought I'd pass this on - if any of you know of any parents of kids who might need glasses, which are getting extremely expensive these days - please...
I have been researching and researching. It seems like Hannah has West syndrome. I have a call into the doctor to ask him. He said her seizures are similar...
The only problem with taking him out of school is that he would lose whatever social interaction he does get. From our experience with Andy (30), Sotos Kids...
... themselves and those with bigger families are lucky to have interaction this way but as they get older they tend to do their own thing and become less...
Hi Donna I used to know a boy who had West Syndrome. He had "drop seizures" where he used to go down very suddenly. He was in a wheelchair so the top half of...
Billy brought this letter home from school today. "Each month students are chosen by their teachers for displaying a particuar Character Trait. The Character...
Hello, I have a 23 month old son diagnosed with Sotos Syndrome. He has had 3 surgeries, (2 for hernias, and 1 for a shunt placement). He currently takes OT,...
I couldn't agree more! However, for some kids who are harder hit with the autistic-traits, "socializing" just sends them further into their own world. The best...
Milk products seem to make it worse for Hannah. Also, we started her on Zyrtec and it has been wonderful. I give her lots of water also. Hope this helps. ...
Rebecca, I would first rule out any medical problems that would indicate the vomiting- for example is the shunt still working?.... (it is interesting that your...
Barbara, Good for Billy. You should be proud of him. Kellie Rotten Rottie Mama ... From: Barbara To: Sotosyndrome@yahoogroups.com Sent: Friday, December 01,...
... wrote: refer to taking johnny out of school, when i was in school it was hard for me during the time between 2nd and 4th grade because of having soto's i...
Hi! I feel your pain! Our son is 20 months old and has thrown up on the carpet in every room in the house and he is also ALWAYS CONGESTED. It's terrible. He...
maybe a bad gag reflex . my sister throws up off and on all day all she has to do is cough and shes a running to restroom . theres nothing wrong with anything...
... relux, hiatal hernia, etc... and it has been ruled out I would either suggest allergic to what you are giving him for drinks or food ( maybe a dairy...
I feel socialization is extrememly important and would of said do not take your child out of school, times have changed through the last 20 years, when we grew...
Hi Barbara What a wonderful trait to be awarded for. I always feel that kindness is one of the most important gifts to be given to anyone. It is the basis of...
Thank you, Arlene, for sharing from your experience. Among the many good things you said I wanted to comment on this sentence: "Unless he has a program to fit...
Dear Karen, I have just read your post and am so proud of you. My little girl and I were diagnosed with Sotos at the same time, by way of genetic testing...
Hi Rebecca, I spoke to my friend this morning and she said that she feeds her son a lot like Arlene has stated below. She feeds him 11 times a day, small...
Hi Rebecca, I spoke to my friend this morning and she said that she feeds her son a lot like Arlene has stated below. She feeds him 11 times a day, small...
And let's not forget that our kids are not typical, so even if socialization were a valid argument for not homeschooling typical kids (which I personally know...
I have not heard of West being connected with Sotos but I have heard Weaver syndrome being connected with it....
prazedncr2@...
Dec 2, 2006 5:07 pm
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Thanks to everyone who responded. Some very good suggestions. Mikie has had a modified barium swallow test done in the past to rule out packing food in the...
... than the regular endoscopic scope test, they actually can see what exactly is going on in the esophagis,they put a capsule in the esosphagis and it...
--if they feel warm or have red cheeks many times this is a food intolerance or allergic reaction, especially when not running a fever. this is how we could...
