Hi Kellie What a dreadful experience for you, I would have been terrified too. I think its bad that the police didn't knock on your house to give you an...
Dear Donna, this must be so distressful for you! Your dear little princess is struggling with many health issues! Yes, our son had infantile spasms - rather,...
... That is pretty scary, since you called the polic I wonder if you can call the police station and ask to speak to the officer who came out and ask him what...
Christy, I'd also like to add to Paige's e-mail. When we finally had a test that showed us in black and white that it was Sotos with 100% certainty, I...
Hi Everyone Ive not posted here for a while as things have been really hectic, but today was a good day so I thought I would share it with you all. I went to...
What a frightening experience that must of been. I applaud you for trusting your instincts. I only pray that I would've done the same thing. - Janet Janet...
Susan, Thanks. We are doing better. Kellie Rotten Rottie Mama ... From: Susan Smith To: Sotosyndrome@yahoogroups.com Sent: Wednesday, November 01, 2006 5:13...
Linda, That's fantastic!! Daniel would be in hog heaven being in charge of the recycling bin. Kellie Rotten Rottie Mama ... From: linda taylor To: sotos Sent:...
Arlene, Thanks. I"m much better today. I thought about calling the police and asking them but decided against it. Whatever he told them I still know that we...
hi my name is angie and i am the parent of a 12 year old daughter with sotos, she does fairly well in school, math her weakness, but she has very compulsive...
Hi Angie, My son is also twelve, Emo has classic sotos and yes, he has behaviour problems as well. They are not bad enough to warrant drugs though. He still...
Janet, Thanks. I'll bet you would have done the same thing. Our Mom instincts are usually dead on. Kellie Rotten Rottie Mama ... From: Janet Winski To:...
Hi Linda Its good to hear from you again. Its great that Cameron asked to do something like that when he is still only in nursery. Its a big responsibility...
Thank you for the offer Tamica. Unfortunatley or rather fortunately given the natural beauty of our city and country, but we reside in Cape Town South Africa....
... Well done to Cameron, you must be so proud of him! Shuaib is 2yrs 7 months (diagnosed last month) and for the last 3 months he has started saying some...
Hi everyone.After attending the UK conference and hearing that people with Sotos can suffer kidney reflux,our fantastic paediatrician arranged an ultrasound...
Hi Susan Hes pretty good at tidying in the house, its his brother thats the messy one, he is soo proud of himself and the other kids are following him around...
Hi Kellie Thanks, the funny thing is cammy hates getting dirty, but he says its ok because its clean rubbish linda Kellie Siers <rottymama@...> wrote: ...
halee has developed but not started yet she complains with her stomach lots, had her in louisville and one of her tests showed something on her spleen that we...
Another food additive that can cause hives or a bad red, itchy rash is Splenda (the artificial sweetener.) It can also cause very bad stomach cramps. My...
From a mother with a child who has Sotos, I would say that Sotos and Autism do NOT always go hand in hand. Sasha does have Sotos (confirmed) but has no...
Sotos and autism are seperate. Many children with sotos exhibit autistic like tendencies or have dual diagnoses of autism, but not all. Some children with...
He's ok, thanks! He enjoyed halloween - we didn't go out trick or treating but stayed at home waiting for people to come to us - he really enjoyed other...
Hi Ganief Yes we are really proud of him, for a while he was really bad with tantrums and was beating me up daily, but that has stopped thank goodness and...
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