Ettas surgery is scheduled for the 26th of October and is to correct her sleep apnea. She did have ear tubes put in a few years ago and that went fine, and she...
Hi Jacqui, Matt, Nicky and Joyce Just wanted to say how lovely it was to meet you and your partners on Saturday, and especially Luke who is such a lovely...
Hi Kristin Joanna Saddington spoke about her paper in general, but said it was still at the confidential stage and won't be published for a couple of months...
Reminder from the Calendar of Sotosyndrome http://groups.yahoo.com/group/Sotosyndrome/cal Happy Birthday to Luke Monday October 2, 2006 All Day (This event...
Sotosyndrome@yahoogro...
Oct 2, 2006 6:44 am
45682
Hi Susan It was great to meet you too! - and thanks for the kind words about Luke. Maybe next year he can stay with his granny and grandad (and that way Helen...
Happy birthday wishes to Luke on your 5th birthday. It was nice to meet you and your parents on Saturday. Birthday wishes. Jacqui and family The contents of...
It was also lovely to meet you all as well. It is nice to be able to put a face to a name. Although this was my third conference, I still found it highly ...
Hi Susan and everyone else who i met at the conference on Saturday.We all had a great time, and i thought that the presentation by Dr Tatton Brown in the...
Happy Birthday Luke. I'm glad you had a lovely party and hope you have a great day today as well. Susan ... From: mtt_srs To: Sotosyndrome@yahoogroups.com ...
Happy Birthday Luke!!!!!!! I hope you have a fantastic day and get lots of presents. Kellie Rotten Rottie Mama ... From: Sotosyndrome@yahoogroups.com To:...
Hi Carole-Anne It was so lovely to meet your family too. Obsessions are a sore point with me right now! Shannon's treat for being good without me on Saturday...
Hi All Now I have had time to think after my first UK conference, I realise there were two very important issues for me. The first is that I now know...
Reminder from the Calendar of Sotosyndrome http://groups.yahoo.com/group/Sotosyndrome/cal Happy Birthday Angelo Carruthers II Monday October 2, 2006 12:00 pm -...
Sotosyndrome@yahoogro...
Oct 2, 2006 6:52 pm
45692
Dear Matt, It was lovely to meet you although it was briefly at least i can put a face to your name and that helps a lot. Arrived home late yesterday due to...
joycecummings1@...
Oct 2, 2006 8:28 pm
45693
Dear Susan, It was lovely to meet you on Saturday at the conference. I find it really helps to talk to other families with the same or similar problems and I...
joycecummings1@...
Oct 2, 2006 8:51 pm
45694
Susan, I think that going to the conferences is really important and this is one of the reasons why. You have gained some peace and understanding about your...
Susan, Sounds like everyone enjoyed the UK conference. I had a feeling since I couldn't find anything online regarding Joanna's paper that it wasn't ready yet...
Hi Joyce Its good to hear from you. There are several Overgrowth Syndromes of which Sotos is one. They all have different characteristics as well as...
my son was born premie but at 18 months he grew and he has been taller than all the kids 100% taller until about grade 8 when other kids started going through...
just wondering how many have gone through the eye surgery to pull the eye muscle into focus? After 17 years we may be at this point, we are going for a second...
Happy belated birthday Luke Love linda, cameron and lewis mtt_srs <mattasears@...> wrote: Hi Susan It was great to meet you too! - and thanks for the...
Hello all- I am mom to Luke-13mos. He was diagnosed with BWS by our geneticist last May. A few weeks ago we saw Dr. DeBaun here in St. Louis. Well, Dr. DeBaun...
Hello Everyone, I have not wrote in a while. I need advice and I do not know what to do. I will try my best to put all the important details in this letter...
Hi Kate I can empathise with you because my daughter has been tested (negative) for various syndromes. She remains what is known as Undiagnosed Overgrowth...
I was just going to post this Arlene! Etta has an appt next week with her pediatric eye specialist.....we are hoping glasses and patches will do for now but...
... did really help, what is happening now is he is focusing mostly with his good eye ( right eye) and his dept perception is off because of this, His vision...
This is horrifying. It doesn't sound like the principal is much help either. Does your school board have a director for student services? I would call the...
I would not leave my child in that school another day! Just depending on the aide to be on your side isn't enough. Is there another school you can take Emily...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
