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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 44823 - 44853 of 69268   Oldest  |  < Older  |  Newer >  |  Newest
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44823
... yes, do it over the phone if you can , call the social security office and they will send you the paperwork, then they will call you with a time for a...
abjkv99
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Sep 1, 2006
11:12 am
44824
... If you were told it would correct itself then I would find another opinion from another orthopedic doctor as it can stay stable but it won't correct...
abjkv99
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Sep 1, 2006
11:22 am
44825
--my son had tons of therapy when younger, never needed a brace but he was xrayed every 4-6 months for years and now once a year, infact you reminded me this...
abjkv99
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Sep 1, 2006
11:23 am
44826
Our son is currently being watched for his scoliosis--he is seen 2 times a year. We were told the brace would be the next step but his condition has not...
jklafleur@...
lafleurphx
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Sep 1, 2006
6:01 pm
44827
We first noticed the curve in our sons spine around 4 mos old. He was being watched every 6 mo until around 16 mo old when he had a great increase in the...
Katie Smith
gunlarsmom
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Sep 1, 2006
8:07 pm
44828
... the kids and husband!! That is a long recovery and very difficult with a house full of kids! Glad to here you are finally taking care of you! Get well...
abjkv99
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Sep 1, 2006
10:36 pm
44829
Thank you! This all sounds very similar. Riley went from 40 to 50 degress in less than a year. I am glad to hear the brace is working. We went to get...
Wards
4wards1@...
Send Email
Sep 1, 2006
11:22 pm
44830
Arlene, Thank You for the Well wishes, My mom is the only one that is helping me...My husband stays in bed and yet my Precious babies seem to know that I need...
Robin Cowley
cowley3b
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Sep 2, 2006
12:20 am
44831
we got lucky on the original fitting for the brace. But the adjustments in the past 18 months have been little rough, that's putting it lightly :) The good...
Katie Smith
gunlarsmom
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Sep 2, 2006
12:39 am
44832
Hey Robin, I also hope you are feeling much better. I don't like pain myself and don't do really good with it either. I hope your having better luck and...
Marilyn Watson
hellokittymom31
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Sep 2, 2006
3:56 am
44833
Hi Karen I've been away for the holidays so am just catching up on all the emails. Shannon was 9 in May and is starting puberty. Her breasts are now showing...
Susan Smith
shannick145
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Sep 2, 2006
11:32 am
44834
Hi David I'm just catching up on emails and read your comment about your son being too sociable to be on the autistic spectrum. I just wondered whether you...
Susan Smith
shannick145
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Sep 2, 2006
11:40 am
44835
Thank you. We live in Southern Calif. ... From: Katie Smith To: Sotosyndrome@yahoogroups.com Sent: Friday, September 01, 2006 5:39 PM Subject: Re:...
Wards
4wards1@...
Send Email
Sep 2, 2006
3:13 pm
44837
Hi Kellie I am just catching up on my emails as I have been away, and just wanted to reply to your post. You always come across as a very confident and coping...
Susan Smith
shannick145
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Sep 2, 2006
6:37 pm
44838
Hi Debbie Shannon's school have always said she is one of the best behaved children they have. I have felt like such an inadequate mum whenever I have tried to...
Susan Smith
shannick145
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Sep 2, 2006
6:47 pm
44839
Hi Angela Welcome to the group. My daughter is 9, wears age 14-15 clothes, but functions as a 5-6 year old, so I know just what you are going through. Susan...
Susan Smith
shannick145
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Sep 2, 2006
6:55 pm
44840
Hi Susan. Welcome back & I hope you enjoyed your holidays. Ashbea also turned 9 in May, but she has shown no signs of any starts of puberty (yet). No hair,...
Karen
canadianstew...
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Sep 2, 2006
8:37 pm
44841
Susan, Thanks so much for your kind words. We are in a bad spot but we will get through. This group has been a great deal of help to me through the years and...
Kellie Siers
sierskellie
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Sep 3, 2006
12:43 am
44842
Hi. I just got on-line after two years of not getting on this website. I have a 12-year-old son, Zach who was diagnosed with Sotos before entering...
woodsey61994
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Sep 3, 2006
1:01 am
44843
Hey Woodsey, My son is almost 13 years of age and he wasn't day trained until while he was in kidnergarten. And he seemed to wet the bed only at night. Then he...
Marilyn Watson
hellokittymom31
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Sep 3, 2006
4:34 am
44844
My son is 10 and many of his original bathroom issues are done, but I was a big fan of Good Nights. Instead of having him in undies... would he be to...
Jennifer Heater
jennyheater
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Sep 3, 2006
5:10 am
44845
Hi! My 2 year old has had kyphoscoliosis and they follow up on that. Physical therapy 3 to 1 times a week helps but it might be worse when she grows older. I...
taina.hickey
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Sep 3, 2006
8:26 pm
44846
Hello Woodsey, I know your son is only 12 years old, but if he is really that bad in the bathroom area, Have you thought about a cathater and a colosamy bag? ...
Robin
cowley3b
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Sep 4, 2006
3:35 am
44847
Hello, I'm not sure what good this will do you, but my daughter who has classic Sotos, just this week had me quite anxious. She has had a delayed response...
Matthew Thomes
thomes1993
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Sep 4, 2006
3:37 am
44848
I am so glad you brought this up. I wondered if anyone with an older child had these same problems. Alex (age 11) is constantly wetting her pants at school...
Tracey T Box
traceyltb
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Sep 4, 2006
8:44 am
44849
Hi Tracey and Woodsey Shannon wore nappies (diapers) at night until she was 8 and was also drenched through. During the last 6 months of wearing them, I...
Susan Smith
shannick145
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Sep 4, 2006
11:44 am
44850
Similar to Shannon our son, Johnny 8, was wearing a diaper at night and it seemed to give him permission to wet in it. His therapist insisted NO MORE DIAPERS...
hubby4kids
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Sep 4, 2006
12:30 pm
44851
Hi Claudia Just wanted to say brilliant news about Johnny not having any seizures recently. Have you found a medication which suits him well, or is he just...
Susan Smith
shannick145
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Sep 4, 2006
3:25 pm
44852
We welcomed Carter Jameson Warren to our family on 8/29/06 at 5:33 a.m. He weighed in at 8 lbs and 15 ozs. and 21 1/4 inches long. Big sisters Hailey (13) and...
tamica@...
etelynwarren
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Sep 4, 2006
3:43 pm
44853
... Arlene ... a.m. ... sisters...
abjkv99
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Sep 4, 2006
4:16 pm
Messages 44823 - 44853 of 69268   Oldest  |  < Older  |  Newer >  |  Newest
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