I'm glad the picnic went well and everybody had fun. I'm sorry I had to miss it. Jenny ... From: Karen To: Sotosyndrome@yahoogroups.com Sent: Sunday, July 30,...
Hello beautiful people...I know this is off topic, but I know you have good hearts and this is an extreme emergency. I have a very dear friend who has been...
Welcome, Kellie Rotten Rottie Mama Thanks Kellie. My son has joined the list too. I've found all sorts of interesting things I didn't know. You guys are...
dear kristy, hello to DEANNA, to you ,the family, the friends, you can "COUNT ME IN" ,i will pray for her . i will add her to my list for needed prayers....
Thanks so much!! You're the BEST! (again...sorry this is off topic but I am desperate!) Love always, Kristy Will send healing energy her way. It is in my...
Hi Karen & all, Wonderful to have met you all !! Michelle had fun in the "water area" getting herself cooled off too! Yes, we will come if there are more...
Sorry it's taken me so long to answer the conference questions. I'd be interested in some handouts or whatever else, as well, if you're able to get some extras...
Hi! Does anyone else on here who has a child with SOtos or sotos-like have problems with lots of congestion and mucus and also with feeding issues even after...
Hi! Does anyone else on here who has a child with SOtos or sotos-like have problems with lots of congestion and mucus and also with feeding issues even after...
i'm sure you'll get a lot of answers from others here more knowledgeable, but i know for US, we had 'congestion' problems until recently... both of my boys...
THANK YOU MONEE. THIS IS EXACTLY WHAT I"M TALKING ABOUT. We are up at night, he can't sleep, starts coughing trying to get it up, can't get it up and then will...
Hi Grace, It was wonderful meeting you all, too. I'm glad Michelle had fun...and goodness knows we needed cooling down that day,eh? We'll try to do this...
Thanks for getting back to me Kellie. I'm assuming I can get the updated handbook through the website, do you know? I'm glad you found the conference ...
-my son ate soft foods for years, ( he was tube fed for the first 9 months) he had a high palate and low oral motor muscle tone so chewing food was very...
-- There is also a form of asthmatic bronchitis where they cough up the mucus and have non stop spasms. Arlene - In Sotosyndrome@yahoogroups.com, Julie Barr...
... That is a really good point that you remind others that it is important to find doctor who do specialize in dealing with special needs children ,...
... symptoms....my daughter non sotos was this way she cough so bad with the spasms she threw up also, my sotos son who is severely asthmatic is more scary...
Kristopher turned 17 on monday, he is still as excited as ever over is birthday. He had presents at 9am!!!Yes he still likes presents. For those with younger...
This sounds VERY familiar. My son just turned 2 in June and in Oct. of last year he saw a Pediatric Gastro specialist as well as an Allergist. He was...
HAPPY BIRTHDAY KRISTOPHER. My Christopher turns 14 the last day of August. He is so excited, has a list a mile long, you would think it was Christmas. HA ...
My youngest Chase (age 5 in September, Sotos Like) is exactly what you are talking about. He no longer coughs all night long thanks to asthma meds. I have...
This may be a first. Sotos couple goes to the prom togehter. Dan and Colleen met each other at the Boston SSSA conference in 1991. They were about 3 yrs....
Hi- My daughter is five with Sotos and we had feeding issues from day one, she had pyloric stenosis and projectile vomiting and then reflux until age four and...
hello dan and colleen, you look so wonderful in your prom pictures. hooray for you both. i just wish my daughter would have just been a little luck and be able...
hello dan and colleen, you look so wonderful in your prom pictures. hooray for you both. i just wish my daughter would have just been a little luck and be able...
This is unbelievable! I'm still crying because I'm so happy for both of them (and you parents). What a lovely couple. I'm sure they both enjoyed their...
Thanks Arlene, We have the feeding tube too as our first 13 months were horrible. He will now take the pureed baby food and does have a speech therapist. We've...
Hi Julie, My niece does not have Sotos, but has many of the things mentioned in the post below below. I would see a gastroenterologist (sp) as many of these ...
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