Hi Susan - Thanks for the information. Sorry it took me a while to respond my Internet has been down. I looked up BRR but we don't really have many of the...
Hello everyone, my name is Ruby. I have two wonderful daughters, Ryksea ( 3y/o) and Ruella ( she'll be 2 on the 5th of July). Ruella was diagnosed with Soto's...
Hi Kathy Welcome to the group, you will find lots of new friends here, who all know what you are going through.My eldest son Cameron (5) has sotos. I know its...
Hi Ruby Welcome to the group, What great names your kids have, My Name is Linda and I have two boys Cameron whos 5 and has sotos and Lewis whos 7 months....
Hi Jenny, When I read the link I thought it was for MI state legislation.not federal. Also, the place you sign said MI residents. "Petition To Move Senate...
Hi Amy, I would take your son to a gastrointestinal doctor.that kind of vomiting is NOT normal and could be something else going on. Was he actually tested...
Oh well, I can read, can't I?! lol... Thanks Jenny ... From: Pam To: Sotosyndrome@yahoogroups.com Sent: Saturday, July 01, 2006 8:32 AM Subject: RE:...
Oops! I guess you were asking for info on SOTOS! I just sent you a long letter about info on how to work with our kids! Oh, well, it may be helpful anyway! ...
Dear Gitch (I don't know your name) Our son was diagnosed with Sotos at age 26 months. About the same time he became autistic. He no longer said the words he...
Thanks Monica! I can't believe how fast they grow! The dog in the background is Starlight. He's one of my retired greyhounds. Jenny ... From: Monica Boers ...
Hi Amy & group, I'm Lisa and I am the mother of Spencer who is 2 and was diagnosed with Sotos Jan. 25, 2006. Prior to his Sotos dx, he was diagnosed with...
The tantrums are an age thing, but if Alex cannot talk yet, the tantrums are worse. Emo couldn't talk until about four, five. He pointed a lot and tantrumed...
... sense, kristopher has scoliosis too but he was 6 weeks premie and on a ventilator for a week, we figured he never stood a chance of fully developed lungs. ...
... intolerant tests and had an upper GI done? My son is lactose, has allergies but also has had gastric reflux esphaghitis for years, it made his asthma worse...
... my son we finally found out he had chronic allergies to most everything which cause his sinuses , ear infections etc....he had 6 sets of tubes, ear graft...
... You need a pediatric gastroentrologist, it is not normal and he should be referring you out to find out why he keeps vomiting, he may have a reflux value...
Hi Lisa! So nice to read from you! The other day I was wondering where has "spencerzmama" been? I remembered you had joined around close to the time I had --...
You all behave! Hear! See some of you in Anaheim, and the rest of you on 7 August. Ed Moderator The Ramled Engineers, Architects of Battle my web site:...
Hi Amy, I know you are in Canada, so the suggestions offerd by others re doctors are not the same for us. It doesn't matter that the dr who diagnosed your son...
what beautiful skin your son has, this could sound crazy, don't really care what it sounds like, but this is the first time i have seen another person with the...
Maureen Paterson
maupaterson@...
Jul 1, 2006 11:28 pm
44078
Yes we had actually tested him for food allergies but it came out normal. We thought it might have been garlic we were giving him. He was in a special class...
I have taken him to the family doctor she sais it is stomach flu, so I eventually gave up and try to deal with it myself. My son can run to the bathroom when...
Hi Lisa, What you wrote sounds very much like my niece (non-Sotos but has global delays from an unknown cause) she was vomiting daily and once she went to a...
Note: forwarded message attached. ... Why keep checking for Mail? The all-new Yahoo! Mail Beta shows you when there are new messages. ... And, please let me...
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