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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 43468 - 43497 of 69268   Oldest  |  < Older  |  Newer >  |  Newest
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43468
Hi Tracey, sure Its www.racketys.com take care love Allison xx ... _________________________________________________________________ Are you using the latest...
Allison Fisher
dest1968
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Jun 1, 2006
8:47 am
43469
Good for you I think they are great too, Take care love Allison xx ... _________________________________________________________________ Are you using the...
Allison Fisher
dest1968
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Jun 1, 2006
8:52 am
43470
Daniel was in a special needs play group from the time he was two until three. One of the boys in the class has Autism and does NOT liked to be touched. One...
Kellie Siers
sierskellie
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Jun 1, 2006
11:16 am
43471
im not coming there youve frightened me with the tales of alligators and eating people lol(only jokin) Michele (scotland) ... less crowded and it is already...
michele mccormack
michel_mccor...
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Jun 1, 2006
11:50 am
43472
-- it's best to be frightened of them anyway, the kids know to never go near them, they can move really quick too, they still surprise me how fast they are 5...
abjkv99
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Jun 1, 2006
1:11 pm
43473
Matts 9 now and knows he has Sotos but i don't think he fully realises what it means. We started talking about it about 3 years ago when he started realising...
nitasden
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Jun 1, 2006
2:20 pm
43474
We plan on telling Jesse, 5, once he is diagnosed, but his 8 year old brother has been asking alot of questions lately, mainly about Jesse's size, he is almost...
Tammy Burtt
tammy_jesses...
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Jun 1, 2006
2:47 pm
43475
Hi Robin, I would seriously consider Lyme Disease. Check the Lyme Disease Association or Lyme Disease Foundation online for more info. Susan Birch...
Susan Birch
wwrc2003
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Jun 1, 2006
3:07 pm
43476
Thanks, But that was Sherri's post. Robin Susan Birch <wildwings@...> wrote: Hi Robin, I would seriously consider Lyme Disease. Check the Lyme Disease...
Robin Cowley
cowley3b
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Jun 1, 2006
3:46 pm
43477
Thanks, Robin for the info -- best wishes to Chris and hoping his new aid works well with him! Natalie Robin Cowley <cowley3b@...> wrote: Natalie, ...
myboys mommy
natalieandhe...
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Jun 1, 2006
6:37 pm
43478
Hi Aileen and everyone, It is amazing to hear from someone else whose child has PVL. Emma was born with very low muscle tone. She had an MRI at 5 days old...
Mike Roethler
lcroethler
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Jun 1, 2006
6:49 pm
43479
Hi Laura, It was lovely to hear from you. What i couldn't understand was how most of the kids with sotos all seemed to be able to walk and talk and Lukas...
AILEEN BYRNE
byrne_aileen
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Jun 1, 2006
9:50 pm
43480
Lindsay, Thank you for sharing. It is very refreshing to hear a story such as yours. We have a 9 yr old daughter with Sotos & we try not to treat her...
Karen
canadianstew...
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Jun 1, 2006
10:39 pm
43481
I was the one who put the idea out for a picnic. The person that said she would start the plans , has not replied to my email. I think we should do it but i...
raymond seifried
jrmr2222
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Jun 2, 2006
2:01 am
43482
Hi there, I have a 4 yr old with sotos syndrome and twin 7yr olds. I am divorved from the father of these 3 children. My new partner and I were talking about...
danijja
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Jun 2, 2006
3:04 am
43483
It is very unlikely unless you have Sotos, then it is 50/50. Sarah My Yahoo 360 Page http://360.yahoo.com/waytoopoortobeme ... From: "danijja"...
Hair Doctor
waytoopoorto...
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Jun 2, 2006
3:10 am
43484
I found a wonderful book about siblings of kids with special needs. It is called, "Being the Other One" by Kate Strohm. The author herself had a sibling with...
Mary Hearing
momofalex031505
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Jun 2, 2006
3:33 am
43485
Thanks! I went right to amazon.com to buy one! Here's the link: ...
Hair Doctor
waytoopoorto...
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Jun 2, 2006
4:18 am
43486
In 13 years of going to SSSA Conferences, I've only seen two families with two Sotos Kids. One, the mother apparently has Sotos. The other was a set of...
Ed St.Clair
coloradoramled
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Jun 2, 2006
4:47 am
43487
Thanks for sharing this information. I will check into it! Monica ... From: Mary Hearing To: sotosyndrome@yahoogroups.com Sent: Thursday, June 01, 2006 10:33...
Monica Boers
monica4megan
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Jun 2, 2006
5:01 am
43488
Hi ya'll.. wanted to check in and say hello.. I am still not allowed to be up and around and sitting without my legs elevated.. but I wanted to let you know my...
cathiecat2000
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Jun 2, 2006
6:14 am
43489
odd question.. but how old was Lauren when the incident with the baby dolls happened.. I am having a hard time with kirby's nana in dealing with kirby's...
cathiecat2000
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Jun 2, 2006
6:20 am
43490
My 16month old had an x-ray yesterday to determine her bone age and verify soto's. I was OK when the genetisis explained soto's. I would even feel releived to...
daddonatraub
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Jun 2, 2006
10:56 am
43491
Hmmm ok all you ontario folks, chime in here with some idea's for where we could have a picnic this summer, and also when, I am thinking sometime in july,...
Calentra
calentra2003
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Jun 2, 2006
12:34 pm
43492
Hi Michele, How you doing? hope you and the crew are all fine. Well we got some good news today, cam got assessed by his physio, she only sees him every couple...
linda taylor
linda_taylor73
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Jun 2, 2006
12:35 pm
43493
Welcome, Theresa, My name is Natalie, mom to three boys, the last of whom is Nathan, 15 months old yesterday. We went to the geneticist when he was 10 months...
myboys mommy
natalieandhe...
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Jun 2, 2006
12:37 pm
43494
Thank you. ... From: myboys mommy To: Sotosyndrome@yahoogroups.com Sent: Friday, June 02, 2006 8:36 AM Subject: Re: [Sotosyndrome] waiting Welcome, Theresa, My...
Theresa Daddona-Traub
daddonatraub
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Jun 2, 2006
1:16 pm
43495
Late July sounds good. Where does everyone live? We could choose a location that is easy for everyone. We are in Hamilton. Tammy ... From:...
Tammy Burtt
tammy_jesses...
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Jun 2, 2006
5:17 pm
43496
Hi Theresa! We have a 2 year old sotos girl. At 16 months my daughter was not walking yet, it took many months to practise and at 22mo she took off walking...
taina.hickey
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Jun 2, 2006
6:00 pm
43497
We have a picnic to go to on July 22nd! How is July 15th or 29th?? Grace P/S Thank God ,Michelle(23 years old *_*!!) will be going back to her 2 days of...
George Tey
gwctey
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Jun 2, 2006
7:08 pm
Messages 43468 - 43497 of 69268   Oldest  |  < Older  |  Newer >  |  Newest
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