Hi all Melissa is home from hospital now . She has another urine/kidney infection ( 3rd one since Feb) it is looking more like the kidney that is not working...
Hi, My Name is Karen, and I live in the lower mainland(BC). My son Ryan has been tentativly diagnosed with soto's. I would be very interested in a Soto's...
Hi Robin I noticed you said that Chris "scoots his feet". I've not heard of that expression before. Do you mean he drags/scrapes his feet along the ground?...
Our geneticist told us that Sotos adults are tall people but not excessively so. A man could be 6ft 6ins but not 7 ft, and a lady could reach 6ft 2in but not...
Hi Michele I missed some emails because of computer problems, so I did not know that Mel was in hospital. It must be a real worry for you. I send my best...
Is anyone else having problems in replying to emails on this site, which come directly into their mail box? I can't reply to posts but I can create new...
In a message dated 5/1/2006 1:39:10 P.M. Central Daylight Time, ka_ba_be@... writes: Our Geneticist mentioned to me that Ryan will probably be between...
Hi Jaqui -- just wanted to chime in, although a bit late - that it was such an interesting story about the girl who calls Sasha her sister. In fact, it was...
hello, my 15 month old son has just recently been diagnosed with sotos syndrome. from about 6 months until now - we thought "something" was different. and now...
Susan, Yes, I meant drags, wears out the bottom before he should. I was told by his PT that it was a depth perception thing. That he does this due to the...
Sotos is a Overgrowth disorder that has many underlying labels. And then list a few of them. It works for me. Robin carter8844 <johannawhetstone@...>...
Hi there & Welcome! We have found (and I just experienced it again today) that we explain that Sotos is an 'overgrowth disorder' that has associated ...
My son who has sotos at twelve years old, still drags his feet, I didn't know it was a depth perception thing. Thanks for the info. Lisa ... From: Robin...
YW, That is what Chris' PT said. Our Doctors may say something different, I am going to trust the PT as that's the area they specialize in. Robin Calentra...
That sounds great Karen! In all fairness, I won't be able to set anything up until June. Technically, my son hasn't been diagnosed with Sotos yet and I'll find...
So far I've said it's rapid bone growth that delays various developmental areas in children. I then list some common delays: language, gross motor, social,...
Welcome to the group, My short answer for describing Sotos to people is "It's an overgrowth syndrome. That means she's physically advanced and delayed in...
Hi all, At the conference this past year, Dr. Cole, stated add 4-5 inches (on average) for boys to their projected heights. I did not note the girls. Tracy ...
Hi my name is Debbie and I have Danny Sotos 15 He is 6' 4" big boy ! Not over weight though! I would love a local support group, if that happens, I would love...
Well I'm hoping to set one up in the lowermainland. I'm from Vancouver and there's been several people here who are interested in a support group as well. Is...
Diabetes isn't one of the indicators of Sotos as far as I know. But, I can readily see where our Sotos Kids with their huge appetites could develop diabetes....
Hello there, welcome to the group! My name is Natalie and my son is 14 months - I understand your dilemma - and please know with time, you'll certainly have a...
Hmmm, my son is being tested for Sotos and I'd have to say, he doesn't have a huge appetite. In fact, we have to prompt him to eat. He's not skinny but rather...
Hello Ed! Hope you had a nice trip! Talking about appetites -- I'm going into shock with my little one, only 14 mos, how he will eat the world - and sometimes,...
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