hi krystal,i hope you dont have to wait too long for your results,i know what the uncertainty can be like,my son michael has an overgrowth syndrome,they keep...
im so happy for you,its a great feeling when you know what your dealing with,knowledge is power!!! its really good that the doctor spent three hours with...
kristy, congrats on getting an official diagnosis. we only have the word of dr kent who when he saw kyle he stated he thought that was his other child that he...
Susan Thank you for your kind words. Believe me, I also make sure I have "me time". When the children are with their dad, I make sure I become "Jacqui" and...
Congratulations on your diagnosis I understand how you feel I had myself convinced Melissa had something terminal wrong with her and was relieved when Sotos...
Thank you, Birgit! Very well-said... I am finding the same thing (" there's learning, there's improvement, and most things can be dealt with with perseverence...
-- I would call the doctor and let them know what happened to you, especially after just getting out of the hospital. Numbness in arms is a sign of strokes,...
Mary, Scott was very lethargic as a baby, although he could really scream when he wanted ( or didn't want) something. Overall, his temperament has been fairly...
Congratulations, Dancing with you. Robin Kristy <kristyofnj@...> wrote: I just have to share...after waiting months and months and months (nearly two...
Sherri dear, I agree with Arlene. Those are VERY suspicious symptoms and not to be taken lightly. Treat it as life-threatening until you know for sure. Get...
thank you for your concern, i did call the doctor and he said to increase the meds and see him on monday. if it continues i will go back to the emergency room....
A bone age is where they take apicture of the hand, usually. And they compare it to pictures and it tells what age the pt. bones are. My son had one at the age...
Hi all, Just thought I would share with you all that we had a baby girl named Iris Bay last week. Biggest sister (51/2) is doing very well with new baby....
congrats on the new baby. with 3 girls i know your hubby feels overwelmed being in a household full of women. they will bring you tremendous joy and pain...
Congratulations! All girls, huh? Sarah My Yahoo 360 Page http://360.yahoo.com/waytoopoortobeme ... From: paigelw@... To: Sotosyndrome@yahoogroups.com ...
Sherri, I hope you feel better soon. I know exactly what you are going through with the hubby thing, O how I could rant.....LOL.....I hope you rested well....
Hi Kristy, I,m here to share your news with you, How relieved you must be, Like you said its funny how parents feel happy when they get told of there child...
Sherri, did your husband refuse to go? Or was he occupied with something *important*? If he just wouldn't do it....I'd go on a man hunt....as in find a new...
Hello Everyone, Some of you may have heard that I am putting together a team to plan and execute the 2007 East Coast Sotos Syndrome Conference. The response...
he was asleep when i first started itching and the chest pain started. he told me to take a warm bath and maybe that would help. then when i told him i had to...
yikes! How bizarre that your husband doesn't want to take you to the hospital and pay the bills/car registration. Is it that he expects you to do everything?...
Sherri Said: "I'm too old to break in another man besides tomorrow on the 2nd i will be 46 way too old to find a new guy. also if he doesnt take care of his...
Our son has had permanent tubes in both ears since age 5.But they were no longer "working" correctly causing perforation of his ear drums. Last month he had...
Johnny is non-verbal and is using Boardmaker pictures. However, we were recently told that the speech device called "Smalltalker" would be especially...
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