Hi Ashlee Until I read your post, I had completely forgotten that Shannon used to crawl with one of her hands bent right over just as you describe. Susan UK ...
Maria, Daniel's geneticist took one look at him and said Sotos. She did the bone age test afterwards. We talked about doing the FISH test and the NSDI Gene...
Funny....Etta has the deep wrinkle in the ball of her foot too and i was just noticing that it is much less dominant now. First I had heard of this before! ...
Hello. Just thought i'd mention about my daughter Poppy (aged 4.5, classic sotos) who had an operation last June to correct both feet as they turned/pronated ...
Sarah, You mentioned in your email that your daughter's geneticist was interested in a research project that could possibly be distributed at the upcoming SSSA...
Good morning Andrea & all Ontarians & everyone else here!! Been a while since I last emailed you all! Hope that this email find you all well! We live in...
Hi everybody, my name is Marie-Claude and my son gabriel is 10 with sotos-like. I come from quebec,canada. i read you a lot but since my english is not too...
Hi Kellie, Thanks for the welcome!! This is what I'm thinking the geneticist will do with us, look at Liam and say "yeap Sotos". We'll see! Looking forward to...
Hi Monica, I know you were asking Tracey.but I was asked to provide insurance information when my son was signed up for school. They never said he could not...
Hi Marie-Claude I don't know what to say about the abdominal pain, but it is interesting to see.. Your son had the pharyngial plasty as well. Jacob had it...
Monica, This is Robin, Tracey lives Close to Arkansas but not in Arkansas. I do. The school must have proof of Insurance or Medicaid so the School isn't...
Hi Nicky, I was just wondering, did you have bring Poppy's feet to someones attention
or were you refered by someone after them noticing them? My son sounds...
Hi Jennifer, thank for your replay. It's the second surgery for Gabriel, the first one was too low.. but the second one seem fine, the speech is a lot better....
hi alison,dont apologise,i expect youve been really busy!! im glad sophies first day at nursery wasnt too bad,it will give a bit of a break!!! make sure youve...
Kirby goes to school in arkansas. as far as I know they can't deny services in school at all.. kirby did not have medicaid/tefra for a while and she was still...
Kirby wore these from age two - six.. then stopped and now she is worse with pronating than ever and is going back in them.. just as soon as it all gets sorted...
as it stands now we do not have the money to attend this conference though I had hoped we would... but let me just say that as a mom that has taken her kids to...
I said adventure island.. and I meant to say adventure city.. knowing full well most parents would not let their kids go to a water park without them.. I know...
... My son has gastric reflux espophagis disease, he always had stomache aches, .....he had a 48 hour esophagis bravo monitor surgery and they put him on...
Marie-Claude, I'm sorry Gabriel had to have the surgery twice. Jacob had such a bad reaction to the anesthetic, I wouldn't want him to have it again. He does...
Hi Pam, you say your son had an awkward gait...is that where the foot isn't flat when they walk or stand and it kind of turns in as if they are walking or...
Hi, I'm wondering what the age range of the kids is usually at these conferences? I'm planning to come this year for the first time (yeah!), and will bring my...
I remember Michelle very well. She was the one who didn't speak but her wonderful personality shone through. Hope all is well with your family and looking...
Susan, Thanks. I appreciate the support. Kellie Rotten Rottie Mama ... From: susan smith To: Sotosyndrome@yahoogroups.com Sent: Tuesday, January 31, 2006 4:27...
Aileen, Thanks for the tip about the yogurt. Daniel loves it. I swear he'd eat yogurt 24/7 if I let him!! LOL!!! You're right I do feel like it' never...
Maria, Thanks and again welcome. Kellie Rotten Rottie Mama ... From: mariaandliam To: Sotosyndrome@yahoogroups.com Sent: Wednesday, February 01, 2006 11:55 AM ...
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