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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 39655 - 39684 of 69269   Oldest  |  < Older  |  Newer >  |  Newest
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39655
Hi Claudia Walking round in circles and constantly looking behind are both very autistic traits and maybe Johnny has moved on from his fiddling to these new ...
susan smith
shannick145
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Jan 1, 2006
4:14 pm
39656
Hi Jason Shannon walked at 19 months but preferred to mostly crawl around until 2 1/2, and then was quite unsteady for the next couple of years. She said a ...
susan smith
shannick145
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Jan 1, 2006
4:28 pm
39657
Hi Cisca The word you are looking for is constipated but I think obstipated is such a lovely alternative, that we should use it on here instead!! Somehow your...
susan smith
shannick145
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Jan 1, 2006
4:33 pm
39658
Thank you to all who gave your perspective about Johnny's strange behavior. I really appreciate it. You have a point, Susan, that his going around in circles...
hubby4kids
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Jan 1, 2006
10:37 pm
39659
Hi Jason: We have a daughter (8 1/2 yrs) with Sotos, diagnosed since about 1 1/2 yrs old. Initially we were told she may never walk or talk. She walked 'on...
canadianstewcrew
canadianstew...
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Jan 1, 2006
11:24 pm
39660
Etelyn didnt walk until 20 months and talked all of maybe 3-5 words at 2. By 2- 1/2 you wouldnt know it was the same kid, she talked so much it was mind ...
tamica@...
etelynwarren
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Jan 1, 2006
11:25 pm
39661
We are adopting a daughter, age 6, who has autism (though very little about her seems to be autistic) and possible soto's. She had a bone test done, but not...
tractyger
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Jan 2, 2006
1:12 am
39662
We had basic genetic testing done to rule out other things, but we didn't have testing done specifically for sotos cause Jacob's symptoms are mild. ... From:...
Jennifer Heater
jennyheater
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Jan 2, 2006
1:31 am
39663
Hi Jason, My daughter turns three about a week. She started with S.T. and O.T. at about 8 months. She began walking at about 20 months. She wore AFOs early...
paigelw@...
paigescooter
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Jan 2, 2006
1:45 am
39664
Claudia, Medicines can cause these problems so you may want to check that out. I would definitely call his Neuroligist. It sounds like a physical problem. ...
Kellie Siers
sierskellie
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Jan 2, 2006
2:30 am
39665
I read every post but I don't usually have any responses to anyone who has a child older than mine because I don't know as much as those of you that have...
skc73@...
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Jan 2, 2006
5:00 am
39666
Just wondered if anyone had an umbilical cord knot when your child was born. My daughter had a true knot in her cord although it did not affect her delivery or...
momofsweetgirl
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Jan 2, 2006
5:30 am
39667
Hi; Yes, Luke, 15, Sotos and Autism, was born with a true knot in his cord! he was quite blue and was oxygen depleted. Our initial concerns in the first few...
linda
lkwllms2003
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Jan 2, 2006
8:55 am
39668
I cannot believe it! I have two Children with Sotos! Tanner-5 and Laney-3 Both were born with true knots in thier cords! The doctor said that the cords...
bjtlcluff
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Jan 2, 2006
9:41 am
39669
Susan, Check into local resources or the school system for places to learn sign language. There is also you local societies for the deaf. I learned sign from...
Jennifer Heater
jennyheater
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Jan 2, 2006
11:24 am
39670
Nope! My daughter is now 3, and did not have a knot in her cord...actually had a very healthy cord and placenta....our midwife commented that the placenta was ...
tamica@...
etelynwarren
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Jan 2, 2006
11:25 am
39671
Yes I was going to mention the school system. We had that in Etelyns birth-3 plan and worked at it with her speech therapist. The st was very resourcful with...
tamica@...
etelynwarren
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Jan 2, 2006
11:40 am
39672
We also started with simple signs too.... the ones that would help stop the grunting and pointing. Words like more, want, mommy, daddy, milk, cookie, hungry,...
Jennifer Heater
jennyheater
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Jan 2, 2006
11:46 am
39673
Hi all, My son Emo (11 1/2 classic sotos) had an extra long cord. I thought it was because he rolled around so much in utero. I believe it was about three...
Calentra
calentra2003
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Jan 2, 2006
3:09 pm
39674
My son is going to be 4 years old in April. He was born by emergency c- section because of his size and he also had a knot in his cord. He had no speech at 2...
slysmit
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Jan 2, 2006
4:15 pm
39675
Andy barely talked at 4. In fact, I got mad at my boss when he mentioned it just before we left Germany. Then, within a couple of years, we couldn't get him...
Ed St.Clair
coloradoramled
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Jan 2, 2006
8:08 pm
39676
has anyone ever dislocated their shoulder, kristopher fell on the 23rd, he had an MRI thursday and due to the holiday we just found out it was disclocated at...
abjkv99
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Jan 2, 2006
10:11 pm
39677
i need your prayers right now. my father in law had a massive stroke today and is not expected to live through the night. please pray for us that gods will be...
sherri oneal
josokoso
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Jan 3, 2006
1:02 am
39678
god i wish i had a ciggarette. i know i should quit smoking but it is hard. the stress is bad now. wish i had the money and a car to go get me some smokes....
sherri oneal
josokoso
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Jan 3, 2006
1:04 am
39679
sherri, I'm sorry your family is hurting.. and your hurting. My thoughts are with you all... Jenny ... From: sherri oneal To: all group Sent: Monday, January...
Jennifer Heater
jennyheater
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Jan 3, 2006
1:20 am
39680
If it pops in to place, and there are no torn ligaments, it will be super sore for several weeks. But it will heal. ed The Ramled Engineers, Architects of...
Ed St.Clair
coloradoramled
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Jan 3, 2006
1:37 am
39681
I did not have preeclampsia or any other complication other than the anticardiolipin antibody which really only affected my first and second trimester. I think...
momofsweetgirl
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Jan 3, 2006
3:04 am
39682
SHERRI, OUR PRAYERS ARE WITH U AND YOUR FAMILY HOPE EVERYTHIN ENDS UP WELL. GOD BLESS. NORMA FAMILY AND CELINA (soto's 6) NRMA...
NoRm@
queenbabis
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Jan 3, 2006
3:08 am
39683
Sherri, my prayers are with you. When our loved ones are in such poor health and their lives are on the line, it really puts things in perspective. If it ...
aigjr@...
cailg547
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Jan 3, 2006
3:42 am
39684
i hate to bring the bad news but heyward g oneal passed away at 9.15pm tonight. please pray for our family as we prepare for the funeral and going home service...
sherri oneal
josokoso
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Jan 3, 2006
4:11 am
Messages 39655 - 39684 of 69269   Oldest  |  < Older  |  Newer >  |  Newest
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