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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 39246 - 39275 of 69269   Oldest  |  < Older  |  Newer >  |  Newest
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39246
http://www.irlen.com/sss_main.htm...
Tracey T Box
traceyltb
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Dec 1, 2005
2:37 pm
39247
I am wondering if anyone else has had themself or their child dx with winged scapula? http://freespace.virgin.net/steven.fromm/ here is a good link to what I...
tamica@...
etelynwarren
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Dec 1, 2005
2:53 pm
39248
anyone have it handy? I am on a new computer now and finding it would mean sifting through hundreds of old emails on my old laptop. I have talked to him before...
tamica@...
etelynwarren
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Dec 1, 2005
2:54 pm
39249
Sorry I am barraging your inboxes today... Anyone tried cranial saccral therapy? It was actually mentioned to me first by Ettas ENT, (ear nose throat doctor)...
tamica@...
etelynwarren
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Dec 1, 2005
3:00 pm
39250
DR. SCHAEFER E-mail Address(es): gbschaef@... ... From: <tamica@...> To: <Sotosyndrome@yahoogroups.com> Sent: Thursday, December 01, 2005...
Tracey T Box
traceyltb
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Dec 1, 2005
3:04 pm
39251
thanks Tracey! You the best! ps...thanks for the other link I just checked it out...very interesting! tamica...
tamica@...
etelynwarren
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Dec 1, 2005
3:15 pm
39252
-- This is a new therapy on me....I have never eard of it before. What exactly do they do? Arlene mentioned to me first by ... this ... medical ... school ... ...
abjkv99
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Dec 1, 2005
5:54 pm
39253
... If you go to google and put int cranial saccral therapy alot of information does come up. I think this would be a personnal decision you would have to...
abjkv99
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Dec 1, 2005
6:06 pm
39254
Tamica, I have heard of this therapy being used with some significant success. The SID facility we went to offered this therapy though we did not try it with...
Pam
kevsmom72699
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Dec 1, 2005
6:11 pm
39255
Hi Tamica, Check the files section on the Sotos group page.I believe it is listed there! Pam :-) ... From: Sotosyndrome@yahoogroups.com...
Pam
kevsmom72699
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Dec 1, 2005
6:32 pm
39256
Well..it is her current physical therapist that is provided by the school district that actually does this therapy in addition to traditional pt. SHe is ...
tamica@...
etelynwarren
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Dec 1, 2005
6:55 pm
39257
Our son had 8 sessions of cranio-sacral therapy. We did not see any difference, however, we were told he really should do it over a period of a year or so....
hubby4kids
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Dec 1, 2005
6:55 pm
39258
as you may know etta has had a lot of questionable seizure activity. I would certainly not want to mess with something that would make her more prone to ...
tamica@...
etelynwarren
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Dec 1, 2005
7:23 pm
39259
Hi Tamica, We tried it about two years ago. Nicholas had seizures BEFORE the therapy and was on meds, so the therapy had no obvious effect on that. However,...
hussell
hussell58
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Dec 1, 2005
10:19 pm
39260
Tamica - Johnny had only 2 febrile convulsions his whole life until he started having regular seizures at the time of the cranio-sacral therapy, age 5 1/2....
hubby4kids
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Dec 2, 2005
12:56 am
39261
Tamica, His address and things are on the group site under files. If you don't find it I will and send it to you. Robin tamica@... wrote: anyone...
Robin Cowley
cowley3b
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Dec 2, 2005
4:46 am
39262
I read about this type of therapy and wanting to help our son, I spoke to our neurologist about it (who has worked with Dr. Schaefer for years and has studied...
jklafleur@...
lafleurphx
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Dec 2, 2005
11:44 am
39263
Hi Claudia, Yes, my daughter has been taking depokote since May. When her Depekote level drop I can see this so can the therapist. She is not respoding to...
dgoncalves6
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Dec 2, 2005
1:37 pm
39264
Hi Claudia, Yes, my daughter has been taking depokote since May. When her Depekote level drop I can see this so can the therapist. She is not respoding to...
dgoncalves6
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Dec 2, 2005
1:37 pm
39265
Hi Claudia, Yes, my daughter has been taking depokote since May. When her Depekote level drop I can see this so can the therapist. She is not respoding to...
dgoncalves6
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Dec 2, 2005
1:38 pm
39266
I was looking through some old e-mails about bowel problems and found where someone said that they gave their child primadophilus. When I went to health store...
james candy
jkcandy2000
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Dec 2, 2005
4:21 pm
39267
Hi Kathy, that was my old email. I guess Primadophilus is a brand name, but yes, it is acidophilus, and it helps my 9 yo tremendously. I have mentioned ...
katbeaudry@...
katbeaudry
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Dec 2, 2005
4:35 pm
39268
Oh, another thing, this acidophilus helps soften his HUGE BM's, so they do not hurt when he goes to the loo. If I miss giving him the tablets, (forgetful),...
katbeaudry@...
katbeaudry
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Dec 2, 2005
4:40 pm
39269
... I would let the doctor know also, It may be a side effect of the medication he is taking. Arlene In Sotosyndrome@yahoogroups.com, james candy...
abjkv99
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Dec 2, 2005
9:43 pm
39270
Hi! Welcome to the group. My name is Kellie and my son, Daniel, has Sotos-Like. Daniel wore orthotics for about a year. They helped him a lot. Kellie Rotten...
Kellie Siers
sierskellie
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Dec 3, 2005
4:39 am
39271
My son, Angelo which is 3 yo. He do not have a regular bowel movements. They are like little pebbles and then sometime it comes out so big, you know that must...
Carruthers, Deniese
dcarruthers2003
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Dec 3, 2005
8:35 pm
39272
Kristopher finally decided today was the day he wanted to ride Tripoli.( His sisters horse) He loved it!! His sister and I couldn't get him off for an hour and...
abjkv99
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Dec 3, 2005
9:07 pm
39273
We recently had a visit from the PT and OT and are finding that we are kind of at a plateau in Claudia's therapy. She is not walking and is being fitted for...
momofsweetgirl
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Dec 4, 2005
3:34 am
39274
This is a problem for my daughter too. I did give her Sorbitol (prescribed) but I found that eating a prune a day has worked wonders. She loves them and it is...
momofsweetgirl
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Dec 4, 2005
3:50 am
39275
Zak has had it. it seems to help him some. His chiropractor has had some training in it but I think not too much. he tags on a little cranio-sacral at the end...
donnaleef@...
donnartleef
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Dec 4, 2005
6:46 am
Messages 39246 - 39275 of 69269   Oldest  |  < Older  |  Newer >  |  Newest
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