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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 35573 - 35602 of 69269   Oldest  |  < Older  |  Newer >  |  Newest
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35573
Hi everyone. I am Joseph's grandmother. I have written in only a few times. Please excuse me if this question has already been answered but, is there a way for...
susan denison
catsrockyamber
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Aug 1, 2005
11:46 am
35574
I had also noticed that Dr COle and Dr Kurotakis presentations were not included. Anyone know how we can obtain those two? ~best tamica estelle...
Tamica Leonardo
etelynwarren
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Aug 1, 2005
11:54 am
35575
... have been pestering Kristophers father for years to please make sure he does not leave him in his will a share of the house to either leave his part to...
abjkv99
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Aug 1, 2005
1:46 pm
35576
This is interesting info. Has anybody experienced a Canadian persective on this. In Canada, we are all covered by your respective provincial health care. Is...
Dawn Wheeler
zacharyw98
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Aug 1, 2005
2:35 pm
35577
Great comments from everyone! I am putting all of the posts pertaining to SPECIAL NEEDS TRUST in a separate folder on my computer. As a matter of fact - I am...
Liliane
mysongalways
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Aug 1, 2005
4:27 pm
35578
Liliane, you're the BEST! Dawn and Zachary (6 1/2) ... pertaining to ... matter of ... computer crashes. ... person to ask ... and ask ... what that ... ...
Dawn Wheeler
zacharyw98
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Aug 1, 2005
4:35 pm
35579
Tracey, you always come up with such terrific ideas! I ran into Rotten Rottie Mama by sheer accident and was so happy to meet her. Maybe we could catch people...
Liliane
mysongalways
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Aug 1, 2005
4:37 pm
35580
... all the families in case many miss the posts???? Not sure who is in charge of putting the newsletter together but it seems to have helpful info at times. ...
abjkv99
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Aug 1, 2005
4:59 pm
35581
Thank you, Dawn! It is so nice that I can now put your smiling face to your name! Liliane ... From: Sotosyndrome@yahoogroups.com...
Liliane
mysongalways
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Aug 1, 2005
5:12 pm
35582
Arlene, the new editor is: Cheryl Mckenzie. I am attaching her intro post below. Please send her your idea !!! Liliane ... From: Sotosyndrome@yahoogroups.com...
Liliane
mysongalways
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Aug 1, 2005
5:50 pm
35583
Ooops - the attachment was actually where that little paper clip is on the right! ... From: Sotosyndrome@yahoogroups.com...
Liliane
mysongalways
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Aug 1, 2005
6:00 pm
35584
This is a post from our new Sotos Newsletter editor. Just thought it worth re-posting for all post-conference comments, ideas and other stuff. ... From:...
Liliane
mysongalways
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Aug 1, 2005
6:27 pm
35585
... Arlene ... intro post ... [mailto:Sotosyndrome@yahoogroups.com]On ... to ... in ... computer ... trusts!) ... of ... future, I ... make ... either ... ...
abjkv99
Offline Send Email
Aug 1, 2005
7:19 pm
35586
... Arlene ... out ... is ... site ... small ... in ... to ... Mothers) ... sotos ... and ... THE ... has ... a ... know ... they ... they ... will ... need ...
abjkv99
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Aug 1, 2005
7:28 pm
35587
... yes good idea! I actually didnt get the oppurtunity to formally meet you and say hello while there! By the time I figured out which family you were...it...
Tamica Leonardo
etelynwarren
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Aug 2, 2005
1:05 am
35588
Just wanted to let ya'll know that the new show on ABC called "My Kind Of Town" used our town in one of its episodes and I was in the audience. It will...
Sarah
waytoopoorto...
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Aug 2, 2005
1:30 am
35589
Wow, a budding star in our midst! I should've got your autograph in San Antonio ;-) Dawn and Zachary (6 1/2) ... Kind Of ... audience. It ... one. I'm ... ...
Dawn Wheeler
zacharyw98
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Aug 2, 2005
1:39 am
35590
We finally returned home tonight from our two week long trip. It's sooooooooooo nice to be home and not have to live out of a suitcase any longer. It was...
Tracey Box
traceyltb
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Aug 2, 2005
5:01 am
35591
Happy Birthday ALex! love tamica eric hailey etelyn! ... sooooooooooo ... to ... a ... along ... to ... of ... so ... catch...
Tamica Leonardo
etelynwarren
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Aug 2, 2005
11:12 am
35592
Cool deal, Sarah! ... From: Sarah To: Sotosyndrome@yahoogroups.com Sent: Monday, August 01, 2005 9:30 PM Subject: [Sotosyndrome] My Kind Of Town Just wanted to...
Jennifer Heater
jennyheater
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Aug 2, 2005
11:33 am
35593
Unfortunately, my husband & I chose to leave our son, Zachary, 2 1/2, diagnosed by a developmental peditrician and many other doctors in NYS, at home when we...
moneta_lamont
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Aug 2, 2005
11:47 am
35594
In a message dated 8/2/2005 6:49:35 A.M. Central Daylight Time, moneta.lamont@... writes: Our son has a larger round head/face instead. However, I did...
plinkette@...
PLINKETTE1
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Aug 2, 2005
12:41 pm
35595
Hi Lori, I checked out your son's picture. He is a good looking young man. Zachary has a round face like his and actually some of the other children that is...
moneta_lamont
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Aug 2, 2005
4:04 pm
35596
Moneta, Don't feel bad... that happened with Jacob... I can go through the whole story on private email, but its the same thing... We go by the U of M...
Jennifer Heater
jennyheater
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Aug 2, 2005
4:41 pm
35597
Hey Moneta! I am mum of Miha from Slovenija. Miha does not have Sotos nor Sotos like definetively the doctor said. We must make another three tests for his ...
lidija
lidija.senekar@...
Send Email
Aug 2, 2005
4:47 pm
35598
In a message dated 8/2/2005 11:05:01 A.M. Central Daylight Time, moneta.lamont@... writes: Hi Lori, I checked out your son's picture. He is a good...
plinkette@...
PLINKETTE1
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Aug 2, 2005
4:51 pm
35599
Jenny, I would love to hear your story. Feel free to e-mail me at moneta.lamont@... when you have a spare minute! How old is Jacob? Thanks. Moneta ...
moneta_lamont
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Aug 2, 2005
5:17 pm
35600
That we had a really good time in texas. To everone who was their and took the time to talk to Delaney and answer her questions I want to thank you so much....
momof3anddog
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Aug 2, 2005
5:41 pm
35601
got a question. at the conventions do you have to pay for the dr to see the child and make a dx. we got one for kyle from columbia sc, and never have...
sherri oneal
josokoso
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Aug 2, 2005
7:04 pm
35602
doc visits are included in conference prices. you can always write to dr. schaefer or call him. traveling with any and all ages of kids can be tough. LOL! ...
Tracey Box
traceyltb
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Aug 2, 2005
7:07 pm
Messages 35573 - 35602 of 69269   Oldest  |  < Older  |  Newer >  |  Newest
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