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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 34826 - 34856 of 58782   Oldest  |  < Older  |  Newer >  |  Newest
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34826
hi deborah, mia also has an high palate and she also had her first 4 teeth at 3 months and the full set by 1 year including the back one, but because she has...
kerry rostron
kezrostron
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Jul 1, 2005
12:06 pm
34827
Hi Kellie, LOL! My son learned a few choice words while in the car with my husband and me! Oops! He now understands they are bad words and should not say ...
Pam
kevsmom72699
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Jul 1, 2005
12:20 pm
34828
You are most welcome, one of our doctors wrote our son off, he told me under no uncertain terms that accept him like he is, he was sitting on the floor, no eye...
Deborah Andreasen
boss4161
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Jul 1, 2005
1:38 pm
34829
reading over my reply, like pains of childbirth I sometimes forget that he used his head as a weapon of my destruction, I have had so many nose bleeds because ...
Deborah Andreasen
boss4161
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Jul 1, 2005
2:40 pm
34830
thanks kerry, iguess its been a hard slog 4 u, i expect mia means the world 2 u just like michael does 2 me! i know already what u meam about temper tantrums...
maxine powis
mxnpowis
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Jul 1, 2005
3:03 pm
34831
Hi to all, We read most of the mails from the group but hardly participate really. Our son, Ivo, is turning 7 in October. He is a great kid, who is progressing...
Tullio Sanchez
tulsonline@...
Send Email
Jul 1, 2005
5:56 pm
34832
You must be looking for Claudia! ... From: Sotosyndrome@yahoogroups.com [mailto:Sotosyndrome@yahoogroups.com] On Behalf Of Tullio Sanchez Sent: Friday, July...
Pam
kevsmom72699
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Jul 1, 2005
8:07 pm
34833
laura,thanku im in bexleyheath kent not 2 far! we r having portage and the ot and endless other stuff, i know exactly how you feel, mentally its exhausting!...
maxine powis
mxnpowis
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Jul 1, 2005
9:23 pm
34834
Oh, how exciting. Yes, we live in Costa Rica and our son has Sotos. I would love to meet you! I'll write you privately and discuss dates and places! Claudia ...
hubby4kids
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Jul 1, 2005
10:13 pm
34835
... many parents especially on this site are fighting just to try to get their child on SSI, many are over the income limit and can't get medical and are...
abjkv99
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Jul 1, 2005
10:59 pm
34836
... are more comfortable or even into a tape recorder , let him try by himself, kristopher used to dictate or talk into a tape recorder, when he was younger he...
abjkv99
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Jul 1, 2005
11:10 pm
34837
The problem is that when he tells a story verbal wise, he can't seem to get the words out to get his point across, but I understand him. And I wish others...
Robin Cowley
cowley3b
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Jul 2, 2005
3:05 am
34838
he said "shit, shit, shit" ... They really are precious, aren't they?! Kellie...
Kellie Siers
sierskellie
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Jul 2, 2005
3:32 am
34839
Paige, It is nice to laugh about the words coming out of their mouths! It really is good to be able to laugh at their words. I often wandered if Daniel would...
Kellie Siers
sierskellie
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Jul 2, 2005
3:35 am
34840
Pam, My son learned a few choice words while in the car with my husband and me I have to be really careful when I'm driving otherwise he'll be learning a few...
Kellie Siers
sierskellie
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Jul 2, 2005
3:38 am
34842
Good GOD, I can't get mine to shut up... I'd have to buy the bulk audio tape to make sure I had enough! Jenny ... From: Robin Cowley To:...
Jennifer Heater
jennyheater
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Jul 2, 2005
5:32 am
34843
Arlene are you talking to me? If you are, Then I have to believe your comment the other day was directed towards me! I'm sorry you would even say someone would...
Drivingmissmary@...
acunasmommy
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Jul 2, 2005
9:11 am
34844
... the system and get keep themselves on the system because they can, these are not even people with disablilities, they are young girls having babies to stay...
abjkv99
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Jul 2, 2005
1:07 pm
34845
... Mary, I was not judging you and I never judge anyone on this site, I stated my opinion of the system and have been on this site along time and I will give...
abjkv99
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Jul 2, 2005
1:26 pm
34846
My Chris tells his tells and constantly says, "you hear me" or "you understand". Sometimes he will chatter away with one of his stories then in the middle he...
Robin Cowley
cowley3b
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Jul 2, 2005
3:31 pm
34847
Thought I would share this typical moment with you all. Shannon needed three 20 pence pieces for school. Although she knows that 10 + 10 makes 20 she cannot...
susan smith
shannick145
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Jul 2, 2005
3:56 pm
34848
I think it's great either way, his imagination is there and he is communicating, kristopher sometimes did this when telling other people stories he would...
abjkv99
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Jul 2, 2005
5:00 pm
34849
Wow Susan, I found this really sad for some reason. I guess because it is so true of our kids. I always say to people that if you tell Teagan, "The grass is...
Deborah Kroeker
dksrottie
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Jul 2, 2005
5:35 pm
34850
Hi Moneta and others, We are planning to move to NY (near Ithaca) in the fall or winter. I was worried about getting medicaid for my Sotos child (Rachel 10)...
lori
loriwilhide
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Jul 2, 2005
7:30 pm
34851
Hi Debbie Yes we can't use innuendos either. Phrases like "laughing your head off" really scare Shannon. She also can't understand jokes and gets terribly...
susan smith
shannick145
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Jul 2, 2005
8:42 pm
34852
This individual has been banned. Ed The Ramled Engineers, Architects of Battle my web site: VietnamJournal.com...
Ed St.Clair
coloradoramled
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Jul 2, 2005
9:44 pm
34853
Arlene, would you like my help?.....your right,some dont get the help, ALOT DONT VOTE, I've done my time under the bridge. It's about the kids, forget being...
Drivingmissmary@...
acunasmommy
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Jul 2, 2005
9:54 pm
34854
Sorry, I am Laughing out loud....That is just the cutest lil story....Reminds me so much of my Chris..... Robin susan smith <shannick@...>...
Robin Cowley
cowley3b
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Jul 2, 2005
9:59 pm
34855
... Arlene ... help, ALOT ... forget ... there will always ... help.BUT,.. like ... are!!!..............................................................Le t me...
abjkv99
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Jul 2, 2005
10:13 pm
34856
... lives upstate NY, varysburg...near attica , she gets all benefits from medicaid and even had in home therapy when she was younger she's about 10 now and...
abjkv99
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Jul 3, 2005
12:21 am
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