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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 34191 - 34220 of 69269   Oldest  |  < Older  |  Newer >  |  Newest
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34191
hi there i was just wondering how many members are from the UK. love karen&lyall(age 2 on june 27th&has confirmed sotos)...
karen
lyall27
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Jun 1, 2005
4:33 pm
34192
If you go to www.smartcrosswords.com you can find some free crossword puzzles to print. Some are very simple and can be a guessing/spelling game for little...
hubby4kids
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Jun 2, 2005
1:43 am
34193
Good Idea. Thank You. I Like to Add another Idea to keep the kids busy for the summer and challenged. I find papers in Chris' school work that hasn't been...
Robin Cowley
cowley3b
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Jun 2, 2005
1:57 am
34194
Shane is scheduled to have his iep June 9. He was suppose to have it last month but his teacher took some time off and it was cancelled. Mom talked to...
james candy
jkcandy2000
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Jun 2, 2005
2:33 am
34195
The IDEA LAW is the least restrictive placement. As far as a Aid is concerned, I have no Idea, the school that my son goes to always refused me saying they...
Robin Cowley
cowley3b
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Jun 2, 2005
2:42 am
34196
catsrockyamber <catsrockyamber@...> wrote: hi, susan, my name is donna and i really identified with what you wrote about your grandson. my son,justin,is...
donna mazzella
justinbenlucas
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Jun 2, 2005
3:04 am
34197
hi everyone, i just want to really thank you all for your support, i wasnt expecting such a response and it really felt a lot better to know that others are...
donna mazzella
justinbenlucas
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Jun 2, 2005
3:41 am
34198
Hi Donna, Your insurance sounds similar to ours. That cap is why we ultimately got started with the early intervention program in our city. That $5,000 ran...
paigelw@...
paigescooter
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Jun 2, 2005
1:34 pm
34199
They should not be saying they don't have funding for something he needs to move into the least restrictive environment. Budget constraints are not the SPED...
Pam
kevsmom72699
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Jun 2, 2005
4:00 pm
34200
- you can request an IEP review anytime you want, if the treacher will be out so long maybe you should ask for shane to be place with a different teacher and...
abjkv99
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Jun 2, 2005
5:03 pm
34201
Hi there my son Damon whom is 4 takes several meds for seizures and lamictal is one of them. He has done really good with it we have had a hard time getting...
Michelle Huskey
ohtobelikeme...
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Jun 3, 2005
4:28 am
34202
Hi Susan Damon was diagnosed at 1 with one leg longer than the other but at 2 they said it was better I just dont agree. But you may be right it could just be...
Michelle Huskey
ohtobelikeme...
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Jun 3, 2005
4:54 am
34203
Hello all you wonderful people! Are any of you going through what I'm going through? Well, I'm making it sound like torture - it really isn't. My little...
Kristy
kristyofnj
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Jun 3, 2005
5:21 am
34204
Salve! se c'è qualcuno che riesce a rispondermi in italiano mi fa un grosso piacere! Sono la mammma di Lorenzo ,un bimbo di 9 mesi con la sindrome di sotos....
antonecava@...
Send Email
Jun 3, 2005
11:13 am
34205
Sorry Kristy... Jacob never nursed on me... and had problems with the bottle nipple. Jenny ... From: Kristy To: Sotosyndrome@yahoogroups.com Sent: Friday, June...
Jennifer Heater
jennyheater
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Jun 3, 2005
11:33 am
34206
Here are other good sites regarding chelation: http://www.tddmps.com http://www.generationrescue.org Also there is a good book on the subject: ...
htbenz
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Jun 3, 2005
12:07 pm
34207
Hi Kristy - I'm not going through what you're going through because our son with Sotos is 7! :) But I will give my thoughts and you can do with them whatcha...
hubby4kids
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Jun 3, 2005
12:26 pm
34208
... say they will have the tantrum anyway, you will have to just stop and find something else to redirect her, everytime you give in is not helping,as it only...
abjkv99
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Jun 3, 2005
12:45 pm
34209
Claudia, your son is seven and is still non-verbal? Are there 'levels' of Sotos syndrome (mild, moderate, severe, etc.) and some kids take a lot longer to...
Kristy
kristyofnj
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Jun 3, 2005
1:00 pm
34210
Kristy, I visited your site, Looks good. About your breastfeeding, I agree with everyone else by saying...Go cold turkey and redirect. I mean....What if you...
Robin Cowley
cowley3b
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Jun 3, 2005
5:02 pm
34211
Hi Kristy - it seems that MOST kids with Sotos are delayed in their speech and DO end up speaking. But there are some who don't speak. In the case of our son,...
hubby4kids
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Jun 3, 2005
5:06 pm
34212
THANK you, Claudia, for the advice about the book, site, and other things. I will definitely look into them. Yeah...speech therapy was a joke. I'm not going...
Kristy
kristyofnj
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Jun 3, 2005
5:42 pm
34213
Donna, Ask your Pediatrician for a referall to Early Intervention. They can help you with the costs. Kellie (Daniel's Mom). Rotten Rottie Mama ... From: donna...
Kellie Siers
sierskellie
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Jun 3, 2005
6:54 pm
34214
Kellie that is a good suggestion asking the ped for a referral.but a referral is not necessary at least in MA to access EI services. A parent can self refer...
Pam
kevsmom72699
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Jun 3, 2005
8:17 pm
34215
North Carolina requires a Pediatrician or other medical professional (like a PT, for example) to do a referral. Kellie Rotten Rottie Mama ... From: Pam To:...
Kellie Siers
sierskellie
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Jun 3, 2005
8:26 pm
34216
Hi karen I'm here periodically - not often at the mo as too much going on and I have been working a bit as well, but I drop in to read as much as poss and...
finnedward1998
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Jun 3, 2005
8:32 pm
34217
Hi everyone. I would like to know about "levels of Sotos" too. Joseph is nonverbal but therapists say he will get words. Do all Sotos kids talk eventually?...
susan denison
catsrockyamber
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Jun 4, 2005
11:35 am
34218
... Florida also requires one and sometimes you have to follow up with a neurologists and other doctors, it takes time and there are many kids with...
abjkv99
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Jun 4, 2005
1:05 pm
34219
There are different levels of Sotos... Seems like different manifestations of symptoms too. My Jacob didn't aquire the physical symptoms as much as the...
Jennifer Heater
jennyheater
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Jun 4, 2005
1:33 pm
34220
Someone on the group has used theraputic horse back riding and I was wandering who it was and if they got any assistance with paying for it. Any information...
Kellie Siers
sierskellie
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Jun 4, 2005
2:04 pm
Messages 34191 - 34220 of 69269   Oldest  |  < Older  |  Newer >  |  Newest
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