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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 33741 - 33770 of 69268   Oldest  |  < Older  |  Newer >  |  Newest
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33741
HAPPY BIRTHDAY BETH !!!!!!!! Gloria (Zach's Nana) We would like to remind you of this upcoming event. Happy Birthday Beth! Date: Sunday, May 1, 2005 Time: All...
Gloria Wheeler
gloriajeanwh...
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May 1, 2005
11:41 am
33742
Robin, if your child is anything like mine, it starts upon rising in the morning and doesn't stop until she is in bed. It makes me soooooo weary. She actually...
leanna scott
bssotos
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May 1, 2005
1:54 pm
33743
It seems we have always had this problem with Brittany, even before she was diagnosed, but when she was little we could throw her over our shoulder and be on...
leanna scott
bssotos
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May 1, 2005
1:59 pm
33744
Jacob seemed to be that way too ... argued from day one.... the medication he is on has helped alot. ... From: leanna scott To: Sotosyndrome@yahoogroups.com ...
Jennifer Heater
jennyheater
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May 1, 2005
2:27 pm
33745
Jennifer what kind of meds is he on? Brit has been on tegratol for about 5 years of seizures Jennifer Heater <jaheater3@...> wrote: Jacob seemed to be...
leanna scott
bssotos
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May 1, 2005
4:57 pm
33746
This is great. From my Cousin, Rosemary, who has 4 kids and umpteen grandkids of her own. Have a fun day. Ed The Ramled Engineers, Architects of Battle my web...
Ed St.Clair
coloradoramled
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May 1, 2005
5:49 pm
33747
I just received the report from the Geneticts department. I need your help to tell me what it means, I am having a hard time figuring it out. I guess I am...
Robin Cowley
cowley3b
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May 1, 2005
8:27 pm
33748
It says they found a change in a different gene, but can't rule out a change in the gene that causes Soto Syndrome. Sarah Want to read my blog? ...
Sarah Kelley
waytoopoorto...
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May 1, 2005
9:12 pm
33749
Jacob is on Concerta and Respidal... Jenny ... From: leanna scott To: Sotosyndrome@yahoogroups.com Sent: Sunday, May 01, 2005 12:57 PM Subject: Re:...
Jennifer Heater
jennyheater
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May 1, 2005
9:58 pm
33750
I'd email the SSSA advisory panel and have them ask them for their opinion. We've haven't done the genetic testing yet...not sure if we will...maybe. In a...
plinkette@...
PLINKETTE1
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May 1, 2005
10:46 pm
33751
Hi, I have just had it confirmed that my daughter Amanda is ADHD (as well as having Sotos) and it has been suggested that we try medication - although it has...
Nanci
colenanci
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May 2, 2005
12:35 am
33752
Who ever created Concerta.... My hats off to them! Jacob is night and day on it.... His autistic behavior is reduced on it... His ODD behavior is...
Jennifer Heater
jennyheater
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May 2, 2005
4:08 am
33753
To make things easier, I copied and pasted this from my blog: Sunday, May 01, 2005 Saturday morning about 2:30 am, we awoke to the baby throwing up, but...
Sarah Kelley
waytoopoorto...
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May 2, 2005
4:15 am
33754
Good Blog, I can relate to the weather, we didn't have high winds but we had over 4 inches of rain fall in less than 90 minutes. Cars were floating down the...
Deborah Andreasen
boss4161
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May 2, 2005
10:27 am
33755
Thanks for getting back to me. I appreciate it. I don't know anything about this drug so I am going to research it, but the best is from people already using...
Nanci
colenanci
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May 2, 2005
1:14 pm
33756
I haven't updated any of you on Daniel lately and I thought it might be a good thing to do. Daniel is saying so many words right now. We've hit a MAJOR spurt...
Kellie Siers
sierskellie
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May 2, 2005
2:42 pm
33757
I remember those feelings well, good for Daniel and momma as well. Hard work will pay off, Deborah A ... __________________________________________________ Do...
Deborah Andreasen
boss4161
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May 2, 2005
2:46 pm
33758
Deborah, good for Daniel and momma as well. Thanks. Kellie Rotten Rottie Mama...
Kellie Siers
sierskellie
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May 2, 2005
5:40 pm
33759
Robin, I think every kid is different and so they have to be treated differently. I do discipline Daniel because I know he understands what's being asked of...
Kellie Siers
sierskellie
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May 2, 2005
5:42 pm
33760
Dominique, Welcome. My name is Kellie and my son is Daniel. Daniel was diagnosed at almost 12 months. You will find a lot of very useful information on this...
Kellie Siers
sierskellie
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May 2, 2005
5:44 pm
33761
Cisca, Welcome. My name is Kellie. My son is named Daniel. "talking with her hands" is called Sign language here and you will hear the word "signing"...
Kellie Siers
sierskellie
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May 2, 2005
5:47 pm
33762
Gwenda, Welcome to the group. My name is Kellie. My son Daniel is two and has Sotos. There are others on this site who are more knowledgable about the DNA of...
Kellie Siers
sierskellie
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May 2, 2005
5:50 pm
33763
Hi Robin I feel just like you do. Shannon also hasn't any real friends.. She calls all the kids in her class her friends, but no-one ever invites her home or...
susan smith
shannick145
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May 2, 2005
6:49 pm
33764
Nanci, Jacob is a bigger pain in my can if he's not on the Concerta. Its not a miracle worker.. and he takes it with Respidal... I usually tell people.. the...
Jennifer Heater
jennyheater
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May 2, 2005
9:06 pm
33765
Easter Seals ... From: Easter Seals To: jaheater3@... Sent: Monday, May 02, 2005 8:00 AM Subject: Disability programs at risk due to budget cuts Dear...
Jennifer Heater
jennyheater
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May 2, 2005
9:08 pm
33766
How much concerta is Jacob on? Shane takes a very low dose and to tell you the truth I don't see a difference. Maybe he needs more. But the thing that...
james candy
jkcandy2000
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May 3, 2005
12:55 am
33767
Both sound just like Andy (now 29). Every one is his "friend", but he sits at home alone except when working, taking percussion lessons, and rehearsing and...
Ed St.Clair
coloradoramled
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May 3, 2005
1:07 am
33768
I have been told that Amanda's teacher does not see the same things at school as I see at home. She is not as aggressive or argumentative, etc., but she will...
Nanci
colenanci
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May 3, 2005
1:41 am
33769
Congratulations Kellie and Daniel!!!! I know how it feels when you see such progress in your child. I remember some days feeling like it would never come...
Kathy Purdy
purdy_kathy
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May 3, 2005
3:32 am
33770
Respidal .25mg 2x a day Concerta 18mg 1x a day ... From: james candy To: Sotosyndrome@yahoogroups.com Sent: Monday, May 02, 2005 8:55 PM Subject: Re:...
Jennifer Heater
jennyheater
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May 3, 2005
3:33 am
Messages 33741 - 33770 of 69268   Oldest  |  < Older  |  Newer >  |  Newest
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