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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 32496 - 32525 of 69835   Newest  |  < Newer  |  Older >  |  Oldest
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32525
Congratulations on her accomplishment!! I remember how that felt, that was around the same age as my son Jordan sat up. Keep up the good work!! Take care: ...
Kathy Purdy
purdy_kathy
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Mar 3, 2005
1:38 am
32524
... that is wonderful, I still remember kristopher trying and falling over alot, he was more like 14 months, we propped him up and held him for his first...
abjkv99
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Mar 3, 2005
12:46 am
32523
That is a huge accomplishment!!! Good for her! Jenny ... From: Taina To: Sotosyndrome@yahoogroups.com Sent: Wednesday, March 02, 2005 4:31 PM Subject:...
Jennifer Heater
jennyheater
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Mar 2, 2005
11:47 pm
32522
Congratulations, My daughter with sotos is 18 months now and I remember her sitting up and rolling over for the first time like it was yesterday. Their...
C Daly
breacara
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Mar 2, 2005
11:43 pm
32521
Hi! I just wanted to share our good news. My daughter has learned to sit up by herself at 9.5 months of age. It is a huge deal for us as she has been working...
Taina
tainahi
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Mar 2, 2005
9:31 pm
32520
... these periods of joy and sadness over and over through the years wondering if we are doing the right thing. My son 15 now does not have friends who call or...
abjkv99
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Mar 2, 2005
7:13 pm
32519
Thanks, Tracey. Yes, this gene is often linked to a nasty form of pediatric cancer -- congenital or under 2 yrs. -- in the kidneys or brain, called...
cecily2242000
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Mar 2, 2005
6:34 pm
32518
after reading, what I find is chromosome 22 and gene hSNF5/INI1 is related to tumor's in overgrowth such as Wilm's tumor. ... From: "cecily2242000"...
Tracey Box
traceyltb
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Mar 2, 2005
5:13 pm
32517
Hello all, Has anyone had a Geneticist make any correlation between their child's Sotos or Sotos-like Syndrome and gene hSNF5/INI1, on chromosome 22? I know...
cecily2242000
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Mar 2, 2005
3:58 pm
32516
Hi Kathy, We are in Winnipeg. How did you enjoy the conference? It was nice to have it in Canada and relatively close by. My sister-in-law is Marianne Moll...
Deborah Kroeker
dksrottie
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Mar 2, 2005
2:50 pm
32515
Does anyone know if there is any help for those of us in canda? Lisa...
Calentra R
calentra2003
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Mar 2, 2005
2:17 pm
32514
Hi Linda, I can't comment on all practices in the US.. but with Jacob. He has had IQ testing twice. Once at 4 and once again at 6. At 4, Jacob was still very...
Heater, Jennifer
jennyheater
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Mar 2, 2005
1:56 pm
32513
Hi Linda, Our son was evaluated by a school hired psychologist who used various tests to evaluate him. We also had various evaluations done privately. If a...
Pam
kevsmom72699
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Mar 2, 2005
1:50 pm
32512
cool.... ... From: Liliane To: Sotosyndrome@yahoogroups.com Sent: Wednesday, March 02, 2005 12:34 AM Subject: RE: [Sotosyndrome] Money, Money, Money Jenny,...
Jennifer Heater
jennyheater
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Mar 2, 2005
1:04 pm
32511
Hi to all; Just wondering if anyone can enlighten me on whether it is standard practice in the USA for IQ testing of children with developmental or ...
linda
lkwllms2003
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Mar 2, 2005
9:37 am
32510
Hi to all; Just wondering if anyone can enlighten me on whether it is standard practice in the USA for IQ testing of children with developmental or ...
linda
lkwllms2003
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Mar 2, 2005
9:37 am
32509
Tracey, I will follow up on Mississippi, too! Hugs, Liliane ... From: Tracey Box [mailto:traceyb@...] Sent: Tuesday, March 01, 2005 10:37 PM To:...
Liliane
mysongalways
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Mar 2, 2005
6:18 am
32508
Hi, I have a friend (mom of a Sotos kid) in PA, and she told me they were no help. I will personally follow up, via e-mail AND phone, and will respond to you...
Liliane
mysongalways
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Mar 2, 2005
6:15 am
32507
Hi Liliane, What about in Mississippi? I believe I have checked before and found nothing, but I would like to check again. Thanks! Tracey ... From: Liliane ...
Tracey Box
traceyltb
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Mar 2, 2005
5:36 am
32506
Jenny, thanks for the info on Michigan. I will follow up. Liliane ... From: Jennifer Heater [mailto:jaheater3@...] Sent: Tuesday, March 01, 2005 8:16...
Liliane
mysongalways
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Mar 2, 2005
5:34 am
32505
Hi Deborah, Where in Manitoba are you from? We are in Shoal Lake Manitoba and were also at the Calgary conference Kathy Jordan(5sotos)Carley(2)Purdy Deborah...
Kathy Purdy
purdy_kathy
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Mar 2, 2005
3:05 am
32504
I got this from one of my other listserves and found it to be very insightful . . . Lesa in Indy From "Justice for All": "NDY's Diane Coleman on Million Dollar...
MommyTrkr@...
Send Email
Mar 2, 2005
2:14 am
32503
Thank you. That was good to hear about the conference. I'm just nervous about scaping up all that money to fly 4 of us out, and not knowing if joren would even...
keeneblair
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Mar 1, 2005
5:41 pm
32502
Hi, Yes, I have a whole bookcase full of books about Aspergers. J was given that diagnosis years ago, but they really didn't take into account all of his...
keeneblair
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Mar 1, 2005
5:38 pm
32501
Hey Liliane, Just FYI.... Michigan doesn't fund for this. I tried with the contacts you had given me before and I couldn't even get straight answers.... Just...
Jennifer Heater
jennyheater
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Mar 1, 2005
3:15 pm
32500
Hi Keene, My daughter, Teagan, will be 15 on April 1st. She was diagnosed at 12 1/2 years of age and we attended the conference in Calgary last year. We...
Deborah Kroeker
dksrottie
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Mar 1, 2005
2:59 pm
32499
Hello Ed and Liliane, I had the pleasure of being in touch with Liliane recently, and was interested in reading your posting giving more detail about your son ...
cecily2242000
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Mar 1, 2005
2:08 pm
32498
Handsome young man!!! Deborah...
boss4161
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Mar 1, 2005
1:24 pm
32497
Hi! Reading these posts is interesting to me in part because my daughter Etelyn is 2 and I wonder what future years may bring but also, because I just finished...
Tamica Estelle Leonardo
etelynwarren
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Mar 1, 2005
12:58 pm
32496
Cool, I didn't know there was state moeny for this. I live in Pennsylvania. Thanks! ... Antonio? If so, ... attend ... the 'file' ... by Dr ... Service....
keeneblair
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Mar 1, 2005
12:31 pm
Messages 32496 - 32525 of 69835   Newest  |  < Newer  |  Older >  |  Oldest
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