-Have they checked the adrenal gland also? Just wondering? Arlene -- In Sotosyndrome@yahoogroups.com, "debra_hanley" ... and ... ruled ... MRI ... It ... is ...
I need Dr. Schaefer's contact info Please help. Kenneth Rupert ... From: "debra_hanley" <debra_hanley@...> To: <Sotosyndrome@yahoogroups.com> Sent:...
Kenneth Rupert
spamjunkie@...
Jan 4, 2005 9:25 pm
30959
not sure that Etta wakes in pain......often she is just awake but then...plenty of times she does wake crying. I will pay more attention but I dont think that...
Tamica's problems with Etelyn's sleeping got me to wandering something. Daniel has NOT slept through the night in three nights. He wakes up crying (which is...
Deb, I pray for the answers to come your way faster rather than sooner. Kellie Rotten Rottie Mama www.kelliescaninetraining.com ... From: debra_hanley To:...
Dear Kathy, It is hard, the only groups here when our son was small and first dx were down groups. We didn't fit in there and I felt like I was wasting my...
Everyday I sit down and read the posts and everyday I think I am going to post and get so frustrated just thinking about what it is I want to post and then...
Thanks for all of your replies. I am so confused and somewhat overwhelmed right now. We have 3 slightly elevated blood levels and EVERYTHING else has come...
Just wanted to check in after the holly days. We have been reading but had no time to really post! You know how it is I am sure [if anyone does!]. Etta is a...
Hi Tara, Ryanne sounds very much like our Nicholas (almost 8, Classic Sotos dx at 3 1/2). Nagging is his best skill, apart from remembering what you've...
Hussell
hussell@...
Jan 3, 2005 2:56 am
30951
Claudia....Do you mind if I "join in"? Megan's teacher at school finished a great PECS book a few months ago. It is a big red binder...8x11...it contains...
We love you too sweetie! Jenny ... From: Lisa Moore To: sotosyndrome@yahoogroups.com Sent: Sunday, January 02, 2005 7:08 PM Subject: [Sotosyndrome] Our...
Each time I visit our group , I catch myself counting all of our blessings as I read each post .......a heart surgery gone well.......a Christmas cap that...
Your descibing Jacob.... socially, he can hold his own... He may be considered by kids "weird", but in public, he has great manners... we can take him...
I learn about the graduation hats before his graduation from 6th grade. The teacher insist that there wouldn't be a problem. Of course I knew there would be....
Your story sounds just like ours. Alex is 9 now, and what you are telling me about Ryanne (very beautiful name) reminds me so much of our past several years...
... Most sotos kids are delayed in social skills, they are also very trusting so going into the store and being friendly is what my son would do expect he...
I have sat on this list for years and try to read the posting as much as possible. I have a six year old daughter that has classic sotos. My husband and I...
Mark's is a "Bell Kinghead." Adult XL. Says it fits 24.7" to 25.9". At the time we got it, it was $30. I'm sure it's more now. I know I found it online,...
There is a source for extra large bike helmets. If no one posts, I'll do some searching. I found out about it years ago from this list. Mark's is sitting in...
Cathy - so ya know what I mean! Could you tell me what you mean by "use the pecs"? I know what pecs are (the picture/symbol cards the child shows to express...
I am so with you on this Claudia! My David, 13, like his navel oranges, skin and all..... at least we don't have constipation problems now! We just say, its...
Tears of joy filled my heart when he put that cap on. We all have the same problem with caps, helmets, etc. When he started tee ball the batting helmet...
Deborah, Thank you so much for sharing. I am finally reading e-mails as I have been gone. I have tears all over my face and my husband is looking at me like ...
Tomorrow Johnny goes back to school. Am I glad about that! The holiday time is quite stressful as he is not as active as he needs to be and so his obsessions...
Happy New Year Everyone!! May 2005 bring all the peace, joy, wisdom & clarity we all so rightly deserve. Many Blessings Kristy & Ethan ... Post your free ad...
... I didn't realize she had heart surgery, she has over come alot, she is a strong little girl and yes a miracle like Kristopher we were told if he had went...
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