Lisa, check out Giant Steps, its a school just like you discribed. Or call your local autism society, they will give you details. Re the IEP, don't sign...
We have HBOT on our list as an option. It was recommended to us by the home therapy program we have been following. We found a place near Houston we would go...
Denise - I am all for keeping our kiddies at home with mama as long as possible. For some, it means up until 3 years old, but for me with our Sotos son, it is...
Hey All, Caleb (13 months) started crawling this weekend. YEAH!!! He's a little slow at it, but he is trying so hard. He has realized that he can get to his...
Wendy, If you would like.... If you want a definition to a medical term used... Let me know, I can look it up in my medical dictionary here at work... WAY TO...
Jenny, The one that really sticks out in my mind (I'm at work right now) is "changes in the "platyspondylia" in the thoracic spine and cervical spine" Thanks ...
Hi - TO EVERYBODY WORKING ON SSI. By the way - I will have another "Advice Column" for people who are trying to get SSI for their young adult child (18 and...
Wendy - congratulations on your little crawler! Make sure he crawls as much as possible! Create "crawling races", put a toy or cookie in front of him, like a...
The placenta was another factor in Daniel's oxygen depravation. His placenta was listed as in the LESS THAN 10 PERCENTILE. Extreemly small for a child who...
Ken Rupert
spamjunkie@...
Jun 1, 2004 11:48 pm
26352
It might help for Autism because it is suppose to help those brain cells that are not firing quite right to fire on a more normal scale (for lack of a better...
Ken Rupert
spamjunkie@...
Jun 1, 2004 11:52 pm
26354
Tammy...I hope you don't mind me asking...where do you live?? I know "First Steps" is the name of the program in Missouri...are you located in Missouri? If...
Wendy...Ear infections are common with Soto's. Megan had tubes put in her ears almost two years ago and has only had one ear infection. Before that....she...
I don't have an actual diagnosis yet, but the symptoms of Soto's fits our 10 year old daughter to a T! She started with a diagnosis of Ataxia Telangeictasia,...
Hello again I just wanted to let you know ( I hope you are the right person to let know!!) that my husband Justin and I, and daughter Alyssa will definately be...
Hi Danielle I just noticed that you are from SA. My husband Stewart and I have a daughter - Georgina May. Georgina has SS as well as Aspegers syndrome as...
My daughter was diagnosed with SOTOS following a febrile convulsion in December (at 16 months). The pediatrician did a wrist x-ray (because of her size) and...
I'll give a few answers from my point of view. Others may have different answers to give you. We all just share what we know. ... It seems to be very common....
Hi Monica, I am from Indianapolis, Indiana.Glad to meet you via e-mail anyway. My daughter Sarah will be 4 Sept. 7. She has 2 older sisters Rachel 11 and ...
tlbindy@...
Jun 2, 2004 3:37 pm
26364
Hi Tracy, When my daughter was really young she didn't really make eye contact either. The Drs. thought maybe she was blind. I went to get her eyes checked...
Hi Tracy! When you described your baby, I felt as if I knew her well! I can even see that beautiful smile! It seems as if our lives for the past few months...
Platyspondylisis Flatness of the bodies of the vertebrae. Origin: platy-+ G. Spondylos, vertebra _____ From: Wendy B. [mailto:caleb_s_mama@...] Sent:...
Tracy- We have a 2 1/2 year old girl with Sotos, and her speech started out much the same as you're describing with your daughter. If she had 10 words in her ...
I read a book one time called How To Teach Your Child To Read. It stated that if you had a child always on the go you had a extremely bright child. Not all...
Zachary was on Carnitor for 10 months in 2001 (he was 3 at the time). There was a noticable difference in his muscle tone after one week and improved for...
Welcome to the group. My son is Daniel and he's 17 months. Daniel had some regression when he turned 12 months old. He stopped making the "m" sound. I...
Tracy, A piece of advice.........don't worry about your family being in denial. That's their problem. Our problem is dealing with the here and now. All the...
Hi, Tracy Welcome to our wonderful Sotos Chat Family! You describe it almost like it happened to me when our son was born 28 years ago! He developed...
Sarah I read a lot of your post. Today I had the pleasure of opening your web site. You were not kidding about needing the tissue. It really hit home. When I...
tlbindy@...
Jun 3, 2004 5:46 am
26376
Hey Sarah Anne does the same thing she was born club footed and was casted and in brace shoes the first year, but learned to walk at 15mo. let me know how ...
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