Hmm ...... must be special rules for the airlines only ? Or for people who aren't US citizens ? I say this because I live just outside of Metro Detroit and...
Hello, I am a new member of this list and the SSSA. My son Jerry, 18 months, was just diagnosed with Sotos. Having never heard of this before I'm still ...
Hi Miranda and Robin, The same with my daughter Rachel (9). We went on a camping trip with the girl scouts and by the end of the first full day there we had...
Denise, Welcome to the group. Although I can not answer your questions directly I can say that my son Chris is Classic Sotos and he is on the boarder of...
Denise, Welcome to the group. My name is Kellie and my son is Daniel. Daniel is 16 months and was diagnosed with Sotos at 12 months although they suspected...
Mary Kay, I don't think you went overboard with the rude girl. Those kids have to educated. If not, others in the group may start acting along with them. I...
Diane, My son is only 16 months but his Physical Therapist is already addressing his low muscle tone in his shoulders per my request. After reading the...
Welcome Denise, It makes perfect sense to want to prepare yourself. All of us here feel that too. Ok.. severity. I don't know how others feel.. but with...
I agree.. It is hard. I have actually kicked 3 kids off my front lawn that were beating up on Jacob. I was so mad! Others down the street pick on him too....
Dear Sotos Members, I have older children and as a mother have known something was profoundly different about my middle son, with less obvious variants in my...
Hi Denise - welcome to the group. Our son is 6 now. We didn't have a diagnosis for him until age 26months (many in this group found out way later!). If I could...
Linda, you don't come right out and say that you suspect your middle son has Sotos, but it sounds as if you do. I am the mom of a 28 year old young man...
YOU GO, KELLIE !!!!!!!!!!!!!!!!!! Chances are that child has never been reprimanded for doing what he did to your kid! I would have done the same thing! We...
I am planning to answer, but it may take a few days, please be patient Lisa _________________________________________________________________ MSN Premium...
Thanks for replying guys, Kellie, I think you are absolutely right to start working on this provided the OT thinks it is ok. Unfortunately, we did not have...
... here feel ... Sotos... ... mild ... severe all ... mutations, ... Syndrome. No two ... I agree with you there Jenny, the kids are all different, even...
Hi Denise, My daughter Zoe, who is 11, has Sotos Syndrome. She was not diagnosed until she was 11, but we knew there was something wrong since her birth. She...
Hi all, I thought I would share this with the group! Pam :-) ... hours ... in ... and ... then ... into ... was ... jar. ... jar ... table ... empty ... the ...
Pam, this is absolutely beautiful. I am going to print it out and hang it by my computer. Liliane ... From: Pam To: Sotosyndrome@yahoogroups.com Sent: Sunday,...
Pam, Thank You for reminding me of what is important. I feel so ashamed for sweating the small stuff, THANK YOU,. Robin~Chris' Mom~Classic Sotos Pam...
Hi Denise, Welcome to the group. I thought I might share some sites that I have used to pass info the professionals that deal with Zachary. This site (SSSA)...
Lilane, We are and always will be our Sotos child's primary advocate, always! Thanks. I try. Kellie Rotten Rottie Mama www.kelliescaninetraining.com...
Miranda, Miranda, How wonderful that you are seeing progress. You're moving in the right direction! Kellie Rotten Rottie Mama www.kelliescaninetraining.com ...
Hello, Thank you for all the replies to my questions. I've gotten a lot of information. Jerry is almost 19 months now and has been receiving OT, PT, ST, and...
I don't think you were rude at all. We HAVE TO stand up for our kids. They are innocent angels and we must protect them. I had the same thing with my Scott....
CHERYL MARTIN
SNOWYOWL_44@...
May 3, 2004 1:06 pm
25933
That is one term I can't use to describe mine kid...lol.. Innocent angel.... Oh heck no.... (ggggg).... Jenny...
Unfortunately, I will not be able to attend the conference this year. We are relocating to FL at that time. I plan to make the conference the following year...
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