Hi everyone - First all Happy New Year to all!!!! My Emily will be 3 years old this month. She has large hands with long fingers. I notice that since she...
I'm reading this late...so hope all went well for Amos while getting fitted for the braces. Megan usually does fine in that part. I felt SO sorry for her...
Tam, I am definitely no expert on this as I have never seen signs of seizures with Megan so have kinda "blown by" all postings on it. BUT...arching back,...
My child was 5 when the PT finally thought we would try the AFO's (we have what they call the HOt DOG ones) Yes we were already walking but still falling down...
I just changed my daughter's diaper, (she pooped) and there is a noticable amount of blood in it. The docs office is closed today for New Year's, and it...
Hi Mini, Happy New year! Beth has very wide wrists too and ankles as well. I always assumed this was because her bone age is advanced (Beth is 6 her bones are...
And for us, most adult bracelets and watches won't fit Alex's wrist. She's 8. I have to find extra large sized ones, but then again, things on her wrist...
We had that happen once when Jacob was very little.... The ER was cool about it and he never did it again... If its bright red and a large poop... then she may...
Alex is very flat footed and I have noticed that Alex walks well in very thick sole shoes. She has bowling style shoes, very flat, and she walks more clumsily...
Happy New Year! Finn too! - this is something we have always noticed and I describe it as 'his arms go straight into his hands and his legs go straight into...
Some stool softener would help greatly... higher fiber diet if she'll respond to it.... never worked with Jacob. He's on permanent stool softeners..... Jenny ...
Very interesting replies - thank you all who answered. A problem I have with Emily is that she tends to still put things in her mouth and mouth things - an...
Hi all I had a question. My daughter will be three years this month. She has never had a seizure. We are awaiting her gene sequencing test for Sotos. She...
Epilepsy represents the most common serious neurologic problem affecting children, with an overall incidence approaching 2% for febrile seizures and 1% for...
Hi Mini, My son is Sotos-like and has never had a seizure and he is 4. Not all kids/adults with Sotos have seizures...the handbook has seizures listed under...
Hi, I need to hear back from someone experiencing or who has experienced similar stuff. My daughter Jordan will be 3 in March. Diagnosed with Classic Sotos ...
Sonya, I definitely do understand I have been there. Let me encourage you that it does get better, but it comes with understanding. These children need ...
hi everyone happy new year! Well the house is finally calm! Do you ever feel like no matter what you say to your child they just don't get it???? Derek who is...
Has she been checked for Sensory Disfuntion??? Her PT or OT can do this with a simple 80 some questions that they ask you. She might need Sensory brushed....
It might be insightful to read the book, Unraveling the Mystery of Autism and Pervasive Developmental Disorder, by Karyn Seroussi. It is an easy-to-read book...
Hi Sonya, My son did not like strangers coming into his home either. I considered some of his grandparents/aunts/uncles strangers in "his" eyes because he did...
... experienced similar ... Classic Sotos ... delays made ... getting ... difficult, ... Anyways...over the ... arrived she ... and then ... when she saw ... ...
Thanks Everyone! I definitely feel better after reading your posts. We are just starting the brushing technique. I am hoping this will help. This autisitic...
Hi Sonya... I know its hard.... my son is Sotos Like... he has pdd, odd and sid.. along with some medical issues too. He didn't do the "afraid of people"...
Sonya... Think of Sotos like Downs Syndrome.... Both are genetic mutations.... Now... How many Downs kids are exactly alike in every way? NONE...lol.... none...
Sonya, I am experiencing some similar things with Megan. Megan turned 3 in September. The behavior concerns are the ones that scare me, also. When she...
My son has the leap pad as well and does the same thing....flips through...however he loves the wheels on the bus in the starter book and will let that page...
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