Julie, our son with Sotos also has autism. He was doing fine (meeting milestones within a reasonable time) until age 26 months when he received the MMR...
Hi Julie, My son Kevin who is Sotos-like was dx as autistic by the school psychologist prior to finding he had Sotos Syndrome....but a highly recommended ...
You are right folks, it maight be a bit premature to diagnose a 3 yr old who has Sotos to also have autism. We were told ,with David, that many characteristics...
Hi Cathy, We use the autism dx to get more from the school system...it did get us some funding, but not alot. As for insurance companies they hear that little...
Hi Julie... My son is sotos'like and also has PDD ... recently his phycologist stated that he has portions of autism and aspergers autism. Jenny ... From:...
Just a quick question ..... has anyone had their Sotos child or Sotos-like child on Straterra? And if so, what kind of results are you seeing? Thanks, Carla...
Correction: Dr. Juan Sotos was born in Spain. Actually, he is Spaniard, and speaks correct Spanish, he wasn't specifically endocrinologist, he worked as a...
Hi Julie, I do know someone who's child has both diagnosis. Autism and Sotos- like. This woman isn't an active member of this group but you can contact her any...
Hi Carla, I had my eight year old Zane on Straterra and had mediocre results..what I mean by that is that we didn't have any negative side-effects and he...
4pawsforcarter@...
Nov 1, 2003 6:23 pm
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Hi Julie, Both my sons (Sotos) have autistic like behavior and are also diagnosed PDD. We have used the autism label as well to get some services (and to get...
4pawsforcarter@...
Nov 1, 2003 6:24 pm
22203
Has anyone had experience with speech generating devices? My two sons both dx with Sotos (and PDD) continue to be selectively verbal (Zane 8) and non verbal...
Marilyn, My son Kevin is Sotos-like and is just starting to speak now at age 4. Speech delays are common with Sotos kids...from what I have read. We still use...
Dear Marilyn, That is so great to hear about Zane....I can imagine how proud and happy you must be...not to mention I bet he feels better in general too!...
Thanks for the info Irene I copied and pasted that information from the web sight http://www.sssac.com/geninfo.asp So I guess they need to make corrections on...
I did e mail http://www.sssac.com/geninfo.asp ... group to see if they could look into this. I think it is important for the correct information to be posted...
Matt had a bad week.He fell last Sunday and broke a tooth off and damaged the teeth on either side of that tooth.He said his feet went to sleep and he fell on...
I had my son on Straterra for a couple of weeks without any good or bad results. We have him on Abilify now and he is doing wonderful! (5mg once a day). Teri...
Teri, Nice to hear from you again ! Glad Alex is doing so good ! How did you make out with the school ? Also, did Neuropsych sent a report to your home address...
Dear Rene Sorry, I am in a real hurry but have just seen your post and had to reply. My son (5) falls all the time. We have had him at neurologists for...
my grandson Shane is very clumsy. He was tested for ms and his cpk level did come out high and they thought maybe he had some form, but it improved and that...
Yes, we fall alot also tends to trip over own feet. I think this has so much to do with growing all the time, feet bigger than expected. Due to the slow...
Candra was taken to the emergency room a number of times due to head injuries, I was sure she must have a concussion on a number of occasions. I am surprised...
Just wondering if anyone else had their child in physiotherapy? Kayla went until she was 5, and then a school therapist took over. She was discharged last...
Hi Marcia Yes Finn has physio and it is making some difference. We also do a huge amount of physio at home, but it does not stop the falling. I think many of...
... Marilyn, late talking is very common among Sotos kids. Our son is somewhat unusual in that he regressed at age 26 months, lost all speech and has not...
Irene, I had heard Dr. Sotos was from Portugal. This came up because it has always been a question to us as to why his name is spelled with the "s" on the end...
