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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 16486 - 16515 of 69269   Oldest  |  < Older  |  Newer >  |  Newest
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16486
Steph, Take heart and to others with younger SS kids. Now mine is only "Like", but was non verbal until about 3 - 3 1/2.... We used signed english (as opposed...
Jenny Heater
jennyheater
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Mar 1, 2003
3:20 pm
16487
Wow Annette! That's alot for a little (big?) guy! We've never had alot of the physical stuff going on...just the average ear infections, and tubes put in....
Donna Fernandez
donnartleef
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Mar 1, 2003
4:04 pm
16488
HI everyone,Im not new to the group ,Just took a break from it for a while,Iguess do to the reason i was in some kind of denial,Didn't want to except the fact...
As me <girlsatisfied@...
girlsatisfied
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Mar 1, 2003
4:31 pm
16489
my wife says that I am in denial but the fact is that god has blessed me with a beautiful princess that can tear up a house in no time, throw a fit at a drop...
Monica Boers
monica4megan
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Mar 1, 2003
4:42 pm
16490
Not being very organized, I use the checking account to keep records. I just make sure that I use that account for things that do qualify (household expenses,...
Rueliziemba@...
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Mar 1, 2003
5:11 pm
16491
That's going to be my first plastic surgery...I'm too old for the breast augmentation now! Only kidding....kinda Cathy...
Rueliziemba@...
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Mar 1, 2003
5:16 pm
16492
The EEGs aren't painful at all but the child has to stay very still so they will usually sedate them, at least that's what they did with my son. Cathy...
Rueliziemba@...
Send Email
Mar 1, 2003
5:26 pm
16493
That is an excellent way of doing it. I did this also for a long time. Now it is just thrown in one pile. I'm not just real good either in most things. But...
renda lewis
rendalewis
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Mar 1, 2003
5:47 pm
16494
Shelby is classic and she did not talk until she was 3 years old and about a month. Now the kid will not shut up. She still has some pronunciation problems...
renda lewis
rendalewis
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Mar 1, 2003
5:52 pm
16495
... From: Ann Salefski Sent: Friday, February 28, 2003 11:43 PM To: Sotosyndrome@yahoogroups.com Subject: Re: [Sotosyndrome] behavior I understand...
Ann Salefski
asalefski
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Mar 1, 2003
9:03 pm
16496
Hello all, this is all new to me here. I have a 7 year old named Gordie who was diagnosed in Nov. 2001 with this disorder. I have gone through hell and back...
hotstaffiepup <lddirk...
hotstaffiepup
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Mar 3, 2003
12:24 am
16497
Renda, What is no gag reflex?? Does it mean that Shelby doesn't choke easily?? I'm curious, Megan does not chew her food very well and has only choked once....
Monica Boers
monica4megan
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Mar 3, 2003
12:36 am
16498
Hello all, this is all new to me here. I have a 7 year old named Gordie who was diagnosed in Nov. 2001 with this disorder. I have gone through hell and back...
hotstaffiepup <lddirk...
hotstaffiepup
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Mar 3, 2003
12:48 am
16499
I'm probably not the best one to respond, since our "tantrums" aren't so severe as you describe. But one things that's helped us up until now is Essential...
Donna Fernandez
donnartleef
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Mar 3, 2003
12:52 am
16500
Hi Kathy, Is Shane been enrolled in a preschool program yet? My son is completely non-verbal and goes to special education preschool full-days. He uses ...
Pam LeProhon
kevsmom72699
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Mar 3, 2003
1:00 am
16501
child life, essential fatty acidsI'm not sure if I e-mailed thanks.so thanks! I had started Megan on one to get us by until I found this Child Life or...
Monica Boers
monica4megan
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Mar 3, 2003
1:12 am
16502
Hi, Annette, Sounds like a lot of stress... It's great to be able to get onto this group and talk about it with people who understand what you are going...
spudzmama2000 <spudzm...
spudzmama2000
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Mar 3, 2003
1:21 am
16503
... ADVERTISEMENT...
Wayne Kreider
carlakreider
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Mar 3, 2003
1:24 am
16504
We somehow got bumped from this list again, so I am sending this "TEST" message to see if we are on again. Carla...
Wayne Kreider
carlakreider
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Mar 3, 2003
1:26 am
16505
Another place that sells EFA's and other great supplements is Kirkman Labs. wesite is www.kirkmanlabs.com . Pam ... From: Donna Fernandez...
Pam LeProhon
kevsmom72699
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Mar 3, 2003
1:46 am
16506
Hi Carla, I was bumped last week.. I wonder what's going on?...
Donna Fernandez
donnartleef
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Mar 3, 2003
4:38 am
16507
hmmm, I'm interested in this too...Zak hates to chew but rarley gags, even though I'm sure he should, for all the large amounts he swallows at once... donna ...
Donna Fernandez
donnartleef
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Mar 3, 2003
4:41 am
16508
Okay, something happened with Zak tonight that seems to answer alot of questions for us. I want to tell you all about it and see if anything similar happens...
Donna Fernandez
donnartleef
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Mar 3, 2003
5:20 am
16509
here's a link to one website I have that gives a good decription of the simple partial seizures: ...
Donna Fernandez
donnartleef
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Mar 3, 2003
5:26 am
16510
Donna, I read your mail regarding Zak's experience with lights. My 21 yr.old daughter who has controlled gerelized seizures, and has had absences too at 4,...
Irene Talarico Pinto
groly16
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Mar 3, 2003
2:03 pm
16511
Irene, with simple partial seizures, one doesn't loose consiousness. perception of senses are altered for a minute or two. from what I read last night, this ...
Donna Fernandez
donnartleef
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Mar 3, 2003
2:48 pm
16512
Shelby used to choke easily when she was little. It was due to the texture not the size of the bite. What I mean by gag reflex is you can stick your finger...
renda lewis
rendalewis
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Mar 3, 2003
3:07 pm
16513
Thank you for your feed back on my questions regarding Gordie. He has been diagnosed with 'Sotos-like' (I had to dig around and find the geneticist report!)....
hotstaffiepup <lddirk...
hotstaffiepup
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Mar 3, 2003
3:12 pm
16514
Welcome Annette, LJ, at 21 months is about the same size as Jordan. He's 35 pounds and 36 3/4 inches. Did Jordan start saying mama and dada after the tongue ...
kieanitria paschal
kapaschal
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Mar 3, 2003
3:55 pm
16515
Hi Martha, I have not been there (and hope I never will)... Do you have family or friends that are VERY understanding and can help you out at all? Maybe with...
kieanitria paschal
kapaschal
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Mar 3, 2003
4:05 pm
Messages 16486 - 16515 of 69269   Oldest  |  < Older  |  Newer >  |  Newest
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