Thank you everyone for the replies. I'm afraid that I made it sound worse then it is. My mother-in-law only makes these comments to my husband when no one else...
Hi Pam, Meir at six years old still has some sotos charachteristics, but he is doing great. He attends a regular school and is at the top of his class. He...
Shirley, My son Kyle just turned 9 and has classic Sotos. He is pretty high functioning and he has come such a long way. From not being able to hold his head...
I wander what your bil would say about the whole thing? I mean if my Mother tried to say that one of my Nephews (whom I adore) shouldn't be at my wedding I'd...
. My issue is that since she never says anything to me, how am I supposed to adress it? why not just ask her what she meant by it? Just be direct with her. ...
I agree with Kellie.... I would just ask her directly. Â Alexis mom to Aidenn D 6 yr old Sotos & Autism ________________________________ From: Kellie Taylor...
We are working with him, with his dr/therapist. .. but he has to help himself too.... and that is part of our problems. I feel ya on that one girl. ...
I disagree. Since she said those things to your husband I think it's your husbands place to discuss and correct the issue with her. Even I she did say...
Aww Rivka, I am sorry, reading that makes me sad. They should both be accepted. Geesh, for an event like a wedding, I would be more concerned that Meir...
I really appreciate your time in writing me. This is so wonderful to read. Shanna also was around 7 months before she was able to hold her head up, just...
Hi Steve I just replied to Rivka's post and I see it at the top of the message forum. I am new to this site and not sure what I am doing yet. I wanted to...
Normalcy! What's that? I don't want to disilusion anyone, but I've been a Sotos Dad for 36 years, and I don't think there has been a 'normal' one among them. ...
Shirley, by all means put Shanna in dance if she wants to do it. It's amazing what some of our Sotos Kids can do. It is up to us, as parents, to find that ...
I would talk to the bro-in-law and the bride - have them talk to her about how hurtful it is - I also agree with all or non... how sad that this woman cannot...
Just wanted to pass this along. A few weeks ago in a desperate attempt to figure out why after years and years of OT and intervention my son cannot write or...
My husband I went out for the first time in almost three months last friday night. Had a good time but worried about my daughter. We have a 2 year old with...
It sounds like they are wanting to help. I think that's wonderful that they are offering that to you. Whether they are capable to handle the situation or not,...
hugs to you, 5 of us!!! Â ________________________________ From: 5 of Us <deyarnes@...> To: Sotosyndrome@yahoogroups.com Sent: Tuesday, May 22, 2012...
Hi, I can understand your frustration particularly with the meds. That is something that I would not back down on. If they take her they need to make SURE...
Just wanted to add a comment about the speech, maybe to put it in perspective. When Zachary was learning to talk, he would hear the word, process the word and...
I agree about the name thing. my Zak uses "mama" instead of "abuelita" (the spanish name) because it's easier. (He pronounces it in spanish.) He hears his dad...
When Delia posted about this the other day I asked Dr. Cole about it since he's in the UK (where Delia said this is recognized). Here is what he had to say. ...
Kevin definitely has the loose joints or is double jointed. He can bend his fingers in ways I could never do. He had issues when younger with fine motor...
I would say Johnny (age 14) also has joint hypermobility. The part about "bladder problems and bed wetting" is his problem too, unfortunately. At age 14 he...
For our kids grandma is very hard to say - when my parents were coming to visit and Kyle was just getting speech (he still couldn't say "Mommy") I had the...
Thanks for asking Dr Cole - Kellie. On that website she talks about Ehlers-Danlos syndrome, I guess that is very severe and has a alot of other issues that go...
That's how I took what he was saying. Insurance companies love the word "syndrome" anyway. They use it as an excuse to deny. I hate insurance companies. Kellie...
