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Sotosyndrome · For the parents/grandparents raising children diagnosed with SOTOS SYNDROME. Come share your concerns/achievements with others
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Messages 69335 - 69364 of 69364   Oldest  |  < Older  |  Newer >  |  Newest
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69335
Well, he was going to go to the Pediatrician on Saturday for the flu clinic to get his mist done.  I was going to have my husband (who is taking him) ask...
Kellie Siers
rottiemamadogs
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Nov 20, 2009
4:49 am
69336
Jeremy licks his lips, he has been of medidate for a few years and he still has it ... From: Kellie Siers <rottiemamadogs@...> Subject: Re:...
jan ferguson
jan4bri
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Nov 20, 2009
5:04 am
69337
Daniel was treated for migraines for a while.  I get migraines though so I don't know if it's related to Sotos or more genetic stuff. Kellie Rotten Rottie...
Kellie Siers
rottiemamadogs
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Nov 20, 2009
5:08 am
69338
Cool. Kellie Rotten Rottie Mama ________________________________ From: Jenny Heater <jaheater3@...> To: Sotos Syndrome <Sotosyndrome@yahoogroups.com> ...
Kellie Siers
rottiemamadogs
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Nov 20, 2009
5:22 am
69339
AJ, Follow your instincts on all of it.  If you think it's time to stop pushing so hard then stop.  IF you feel like it's time to push really hard then do...
Kellie Siers
rottiemamadogs
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Nov 20, 2009
5:32 am
69340
No, headaches are not a part of Sotos as far as I know. Andrew (33) had plenty of ear aches, but not headaches that I can remember. Ed...
Ed St.Clair
coloradoramled
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Nov 20, 2009
6:09 am
69341
There are only two degrees of Sotos, Sotos (classic) or sotos-like (mild). While the gene test can determine that a child has Sotos, it is nbot the only way...
Ed St.Clair
coloradoramled
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Nov 20, 2009
6:27 am
69342
Zak gets migraines. ... From: "Kellie Siers" <rottiemamadogs@...> To: Sotosyndrome@yahoogroups.com Sent: Thursday, November 19, 2009 10:08:13 PM GMT...
donnarlee@...
donnartleef
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Nov 20, 2009
6:29 am
69343
a big congrats Jenny!!! ... From: "Jenny Heater" <jaheater3@...> To: Sotosyndrome@yahoogroups.com Sent: Thursday, November 19, 2009 3:45:50 PM GMT...
donnarlee@...
donnartleef
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Nov 20, 2009
6:30 am
69344
Liliane used to say there were two types of Sotos Kids. Thin, triangular heads, with a sharp chin; usually Sotos. And, block heads, usually Sotos-Like. Of...
Ed St.Clair
coloradoramled
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Nov 20, 2009
6:30 am
69345
way to go Jacob!!! ... From: Jenny Heater <jaheater3@...> Subject: [Sotosyndrome] Brag moment for mom To: "Sotos Syndrome"...
james candy
jkcandy2000
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Nov 20, 2009
11:37 am
69346
Thanks Donna! _____ From: Sotosyndrome@yahoogroups.com [mailto:Sotosyndrome@yahoogroups.com] On Behalf Of donnarlee@... Sent: Friday, November 20, 2009...
jenny
jennyheater
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Nov 20, 2009
2:20 pm
69347
Oh geez, is Jacob a block head! _____ From: Sotosyndrome@yahoogroups.com [mailto:Sotosyndrome@yahoogroups.com] On Behalf Of Ed St.Clair Sent: Friday, November...
jenny
jennyheater
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Nov 20, 2009
2:21 pm
69348
Thanks Kathy! _____ From: Sotosyndrome@yahoogroups.com [mailto:Sotosyndrome@yahoogroups.com] On Behalf Of james candy Sent: Friday, November 20, 2009 6:38 AM ...
jenny
jennyheater
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Nov 20, 2009
2:21 pm
69349
Thank you Kellie for responding.  My instincts are clouded by being tired.  I'm only starting my Journey with Sotos and I'm exausted!:( thank you again for...
A. Jay
ajet7373
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Nov 20, 2009
3:21 pm
69350
Hey AJ.. We're all beginners again with each new age and change with out kids. I had to fill out paperwork for the school i'm trying to move jacob to for 9th...
Jenny Heater
jennyheater
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Nov 20, 2009
3:37 pm
69351
Congrats to Jacob!, Ed...
Ed St.Clair
coloradoramled
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Nov 20, 2009
4:30 pm
69352
Andy (33) is a block head. Ed Oh geez, is Jacob a block head! ... From: Sotosyndrome@yahoogroups.com [mailto:Sotosyndrome@yahoogroups.com] On Behalf Of Ed...
Ed St.Clair
coloradoramled
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Nov 20, 2009
4:30 pm
69353
Jesse is a triangle with a tv in his head, lol. He was remembering stuff last night and that is what he told me ... From: Ed St.Clair To:...
Tammy Burtt
tammy_jesses...
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Nov 20, 2009
6:20 pm
69354
Eff if I know ROTFLMAO!!!  That's too funny! I have often wished that I could write something like that when I'm asked what his goals are. Kellie  Rotten...
Kellie Siers
rottiemamadogs
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Nov 20, 2009
7:23 pm
69355
Thanks Ed! _____ From: Sotosyndrome@yahoogroups.com [mailto:Sotosyndrome@yahoogroups.com] On Behalf Of Ed St.Clair Sent: Friday, November 20, 2009 11:30 AM To:...
jenny
jennyheater
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Nov 20, 2009
8:05 pm
69356
I'm sitting there with the paper. so the first questions are. What living situation do you think your child will be living in as an adult? A. At home B. Group...
jenny
jennyheater
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Nov 20, 2009
8:14 pm
69357
Thanks, Jenny:) ( I, too, enjoyed your use of "eff") I did get some sleep. Thank the Lord. I think I need to start thinking about putting Ethan in his own...
A.
ajet7373
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2:17 am
69358
Aj Just wanted to say that my son didn't crawl till he was 14 months old and it wasn't a crawl crawl it was an army crawl but boy could he move lol! Becki Sent...
Becki Merrill
bbay_04
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4:01 am
69359
That's awesome! Becki Sent from my iPhone On Nov 20, 2009, at 9:21 AM, "jenny" <jaheater3@...> wrote: Thanks Kathy! From: Sotosyndrome@yahoogroups.com...
Becki Merrill
bbay_04
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4:12 am
69360
Now THAT is an accomplishment.....way to go.....Jacob and probably Mom, too! Monica ... From: Jenny Heater To: Sotos Syndrome Sent: Thursday, November 19, 2009...
Monica Boers
monica4megan
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4:29 am
69361
Jesse was the same. Was over a year and would do this super fast army crawl ... From: Becki Merrill To: Sotosyndrome@yahoogroups.com Sent: Friday, November...
Tammy Burtt
tammy_jesses...
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5:01 am
69362
Thanks Monica!! ... From: Monica Boers <mboers@...> Sent: Friday, November 20, 2009 11:29 PM To: Sotosyndrome@yahoogroups.com Subject: Re: [Sotosyndrome]...
Jenny Heater
jennyheater
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7:31 am
69363
Thanks Becki! ... From: Becki Merrill <bbay_04@...> Sent: Friday, November 20, 2009 11:12 PM To: Sotosyndrome@yahoogroups.com...
Jenny Heater
jennyheater
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7:32 am
69364
Oh gosh... Jacob and I could never be in the same room too sleep... You'll definitely sllep better with him in his own room. ... From: A. <ajet7373@...> ...
Jenny Heater
jennyheater
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7:33 am
Messages 69335 - 69364 of 69364   Oldest  |  < Older  |  Newer >  |  Newest
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